Testosterone replacement

Posted by hergiew @hergiew, Jan 9, 2022

Treatment of my prostate cancer with radiation and Lupron killed my body's ability to create testosterone so my level is now at about 13 and should be a minimum of 300.Mayo has created a plan for me to take a testosterone replacement with Arimidex but I need a urologist, endocrinologist or other physician in the Twin Cities area who is experienced with testosterone replacement and Arimidex. Does anyone know of such a person?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I should have added that I need a specialist to manage the plan Mayo created for me.

REPLY

I am very surprised that anyone with prostate cancer would ever do tes therapy. I did srt and orgovyx which lowered my tes to 42 but its up to 232 now. Can anyone comment?

REPLY

Some men are not able to recover from the effects of Lupron. My last T test ( Nov/21) showed me at <10 and my last Lupron shot was July/2021. It takes Lupron as long as you were on it to recover or longer in some cases. I may also need T replacement in the future.

REPLY
Profile picture for itterac @itterac

I am very surprised that anyone with prostate cancer would ever do tes therapy. I did srt and orgovyx which lowered my tes to 42 but its up to 232 now. Can anyone comment?

Jump to this post

I am not familiar with srt and orgovyx. What are they?

REPLY
Profile picture for hergiew @hergiew

I am not familiar with srt and orgovyx. What are they?

Jump to this post

Orgovyx (relugolix) is a gonadotropin-releasing hormone (GnRH) receptor antagonist used to treat adult patients with advanced prostate cancer.
SRT = Stereotactic Radiation Therapy

Hergie, have you asked your Mayo team about a referral to someone in Minneapolis?

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Orgovyx (relugolix) is a gonadotropin-releasing hormone (GnRH) receptor antagonist used to treat adult patients with advanced prostate cancer.
SRT = Stereotactic Radiation Therapy

Hergie, have you asked your Mayo team about a referral to someone in Minneapolis?

Jump to this post

I have and they don't know of anyone. It's kind of a specialty niche.

REPLY

I am taking lupron now for advanced prostate cancer. My level of testosterone is now 13. Years ago before i developed cancer I was taking testosterone shots for low testosterone my levels were around 150. Not sure why you would have to take another drug.

REPLY
Profile picture for seabiscuit @seabiscuit

I am taking lupron now for advanced prostate cancer. My level of testosterone is now 13. Years ago before i developed cancer I was taking testosterone shots for low testosterone my levels were around 150. Not sure why you would have to take another drug.

Jump to this post

If I take only testosterone my breasts enlarged. The purpose of Arimidex is to prevent breast development.

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Orgovyx (relugolix) is a gonadotropin-releasing hormone (GnRH) receptor antagonist used to treat adult patients with advanced prostate cancer.
SRT = Stereotactic Radiation Therapy

Hergie, have you asked your Mayo team about a referral to someone in Minneapolis?

Jump to this post

I have and they know of no one who could serve me.

REPLY
Profile picture for itterac @itterac

I am very surprised that anyone with prostate cancer would ever do tes therapy. I did srt and orgovyx which lowered my tes to 42 but its up to 232 now. Can anyone comment?

Jump to this post

I had been on trt for ten years before being diagnosed at a Gleason 8. I resumed trt therapy 8 months ago and 15 months after my proton therapy my psa is .1

REPLY
Please sign in or register to post a reply.