1. < Prostate Cancer

Testosterone replacement

Posted by hergiew @hergiew, Jan 9, 2022

Treatment of my prostate cancer with radiation and Lupron killed my body's ability to create testosterone so my level is now at about 13 and should be a minimum of 300.Mayo has created a plan for me to take a testosterone replacement with Arimidex but I need a urologist, endocrinologist or other physician in the Twin Cities area who is experienced with testosterone replacement and Arimidex. Does anyone know of such a person?

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hergiew | @hergiew | Jan 9, 2022

I should have added that I need a specialist to manage the plan Mayo created for me.

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itterac | @itterac | Jan 10, 2022

I am very surprised that anyone with prostate cancer would ever do tes therapy. I did srt and orgovyx which lowered my tes to 42 but its up to 232 now. Can anyone comment?

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2 replies
cdcfbw | @cdcfbw | Jan 10, 2022

Some men are not able to recover from the effects of Lupron. My last T test ( Nov/21) showed me at <10 and my last Lupron shot was July/2021. It takes Lupron as long as you were on it to recover or longer in some cases. I may also need T replacement in the future.

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hergiew | @hergiew | Jan 10, 2022
In reply to @itterac "I am very surprised that anyone with prostate cancer would ever do tes therapy. I did..." + (show)
@itterac

I am very surprised that anyone with prostate cancer would ever do tes therapy. I did srt and orgovyx which lowered my tes to 42 but its up to 232 now. Can anyone comment?

Jump to this post

I am not familiar with srt and orgovyx. What are they?

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 14, 2022
In reply to @hergiew "I am not familiar with srt and orgovyx. What are they?" + (show)
@hergiew

I am not familiar with srt and orgovyx. What are they?

Jump to this post

Orgovyx (relugolix) is a gonadotropin-releasing hormone (GnRH) receptor antagonist used to treat adult patients with advanced prostate cancer.
SRT = Stereotactic Radiation Therapy

Hergie, have you asked your Mayo team about a referral to someone in Minneapolis?

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2 replies
hergiew | @hergiew | Jan 14, 2022
In reply to @colleenyoung "Orgovyx (relugolix) is a gonadotropin-releasing hormone (GnRH) receptor antagonist used to treat adult patients with advanced..." + (show)
@colleenyoung

Orgovyx (relugolix) is a gonadotropin-releasing hormone (GnRH) receptor antagonist used to treat adult patients with advanced prostate cancer.
SRT = Stereotactic Radiation Therapy

Hergie, have you asked your Mayo team about a referral to someone in Minneapolis?

Jump to this post

I have and they don't know of anyone. It's kind of a specialty niche.

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seabiscuit | @seabiscuit | Jan 15, 2022

I am taking lupron now for advanced prostate cancer. My level of testosterone is now 13. Years ago before i developed cancer I was taking testosterone shots for low testosterone my levels were around 150. Not sure why you would have to take another drug.

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1 reply
hergiew | @hergiew | Jan 16, 2022
In reply to @seabiscuit "I am taking lupron now for advanced prostate cancer. My level of testosterone is now 13...." + (show)
@seabiscuit

I am taking lupron now for advanced prostate cancer. My level of testosterone is now 13. Years ago before i developed cancer I was taking testosterone shots for low testosterone my levels were around 150. Not sure why you would have to take another drug.

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If I take only testosterone my breasts enlarged. The purpose of Arimidex is to prevent breast development.

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hergiew | @hergiew | Feb 14, 2022
In reply to @colleenyoung "Orgovyx (relugolix) is a gonadotropin-releasing hormone (GnRH) receptor antagonist used to treat adult patients with advanced..." + (show)
@colleenyoung

Orgovyx (relugolix) is a gonadotropin-releasing hormone (GnRH) receptor antagonist used to treat adult patients with advanced prostate cancer.
SRT = Stereotactic Radiation Therapy

Hergie, have you asked your Mayo team about a referral to someone in Minneapolis?

Jump to this post

I have and they know of no one who could serve me.

REPLY
jcsoldmyhome | @jcsoldmyhome | Mar 5, 2022
In reply to @itterac "I am very surprised that anyone with prostate cancer would ever do tes therapy. I did..." + (show)
@itterac

I am very surprised that anyone with prostate cancer would ever do tes therapy. I did srt and orgovyx which lowered my tes to 42 but its up to 232 now. Can anyone comment?

Jump to this post

I had been on trt for ten years before being diagnosed at a Gleason 8. I resumed trt therapy 8 months ago and 15 months after my proton therapy my psa is .1

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