Testosterone- confused
I have been off of ADT for well over a year now. Testosterone is coming up but extremely slowly (65 ng/dl). I understand that part (I’m 71). What I am confused about is the Free Testosterone (Direct) level suddenly spiking from low 3 months ago to being flagged as high this week (18.3 pg/ml).
Any insight? Thanks!
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I used orgovyx. It was the RO's drug of choice. The conventional wisdom seems to be a) it's more even as you suggest since you take it every day. b) It's not a shot, so less painful and c) the belief is that you recover from the side effects more quickly. I really don't know about the 3rd one.
I would've have thought the thing to do, depending on other medical history, would be ADT for a few months then a targeted radiation to that tumor. (others likely will have more info)
I think getting a straight answer is tough because there are a lot of other variables, such as insurance coverage. If I recall the Orgovyx was about $80 per pill in the US, I was lucky and it was all covered but not everyone is in that situation. Maybe Lupron is covered and Orgovyx isn't etc.. Without getting too far up on my soapbox, unfortunately, a lot of docs here in the US seem to answer questions based on things like that instead of what is medically best for us.
There also may be something in your medical history that makes one better than the other.
Best of Luck to you!
I'm now 73, took only 4 months of Orgovyx but that was plenty to mess up my system seemingly forever with the 4 main symptoms: Hot flashes, ED, weak/tired and belly fat. My pre-ADT T was 467, post-ADT 32, then 12. All my Drs., from two major institutions, had said that after one year, if my T doesn't recover to the normal range they'd consider adding some. In Jan. 2025, I was still at 152 and started talking to a couple fertility urologists. Around March, after consulting at least 5 ROs and urologists, I started daily 5 mg. cialis and T Gel, Testosterone 1.62% Gel, 2 pumps per day. He also added a lot more test, like lipids, into my quarterly monitoring. In April, my T rose to 427 with Free T at 44. All the major symptoms immediately improved, however, I still had a few hot flashes. In my last consult with the fertility urologist, I asked about getting off the drugs and he said that it's unclear how the symptoms would return. I found when I stopped T Gel, I got a quick return of all symptoms, some with vengeance. So, I decided to try one pump per day and that seems to be better, but I won't know my actual T reading for another 2 months. Hopefully, my body can do the job on it's own and my PSA stays very low.
Yes, I agree on the money rabbit hole. This is why we as cancer victims need to do all the research we can. There is so much out there. Don’t know what is real and what is not. I thank you for your honesty. Keep up the good fight
Testosterone is a primary nutrient for prostate cancer. I'm 73 and have had almost no testosterone for a decade as a result of various drugs and a radical orchiectomy fighting prostate cancer. I still remain extremely active, get my 8-9 hours sleep each day and push through any fatigue. 9 years ago, I was on Androgel to boost testosterone, which ended up accelerating my initial problem by pushing testosterone levels even higher. The DUMBEST advice I ever received. Now, it's a decade later, I'm still here to talk about it. Perhaps a little more tired, but my grandkids still have a grandfather who can still beat them on the tennis court.
Be informed, make good decisions and good luck.