1. < Neuropathy

Tardive Dyskinesia

Posted by pworley1955 @pworley1955, Dec 25, 2023

Is anyone suffering from Tardive Dyskinesia? Having trouble with involuntary movements of tongue, mouth, hands, torso, and feet.

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Mentor
John, Volunteer Mentor | @johnbishop | Dec 25, 2023

Hello @pworley1955, I'm pretty sure you are not alone with Tardive Dyskinesia symptoms. @pworley1955, @tsch,
@diegratiatimothyrcanada, @bustrbrwn22 and others have mentioned Tardive Dyskinesia as a side effect of certain medications and may have some information to share with you.

Certain medications can cause tardive dyskinesia. Have you discussed the symptoms with your doctor?

REPLY
1 reply
pworley1955 | @pworley1955 | Dec 25, 2023
In reply to @johnbishop "Hello @pworley1955, I'm pretty sure you are not alone with Tardive Dyskinesia symptoms. @pworley1955, @tsch, @diegratiatimothyrcanada,..." + (show)
@johnbishop

Hello @pworley1955, I'm pretty sure you are not alone with Tardive Dyskinesia symptoms. @pworley1955, @tsch,
@diegratiatimothyrcanada, @bustrbrwn22 and others have mentioned Tardive Dyskinesia as a side effect of certain medications and may have some information to share with you.

Certain medications can cause tardive dyskinesia. Have you discussed the symptoms with your doctor?

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Yes, I am waiting to be seen by my Neurologist. Thank you

REPLY
wascaly | @wascaly | Dec 26, 2023

Yes, I WAS suffering from it, after taking Abilify for many years, which my doctor said caused it. I was told there was no cure - just more medication, I guess, to control it. Before I was diagnosed with the TD, I had already stopped the Abilfy, but, according to the doctor, years of taking it was the cause. Now, it appears I no longer have TD……very weird, indeed, and this was after suffering for several years. Originally, I was told there was no cure, so who knows what really happened? The human body is a really strange “animal,”.

REPLY
1 reply
pworley1955 | @pworley1955 | Dec 26, 2023
In reply to @wascaly "Yes, I WAS suffering from it, after taking Abilify for many years, which my doctor said..." + (show)
@wascaly

Yes, I WAS suffering from it, after taking Abilify for many years, which my doctor said caused it. I was told there was no cure - just more medication, I guess, to control it. Before I was diagnosed with the TD, I had already stopped the Abilfy, but, according to the doctor, years of taking it was the cause. Now, it appears I no longer have TD……very weird, indeed, and this was after suffering for several years. Originally, I was told there was no cure, so who knows what really happened? The human body is a really strange “animal,”.

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Thank you so much.

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kthlngrateful | @kthlngrateful | Feb 23 7:22pm

I'vd just been officially diagnosed with TD. I was on prochlorperizine for years and came off it a few months ago. I have excessive tongue movement in my mouth and some lip movement. It may have triggered the horrible Burning Mouth Syndrome I have. Going on Ingrezza any day

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 24 7:12am
In reply to @kthlngrateful "I'vd just been officially diagnosed with TD. I was on prochlorperizine for years and came off..." + (show)
@kthlngrateful

I'vd just been officially diagnosed with TD. I was on prochlorperizine for years and came off it a few months ago. I have excessive tongue movement in my mouth and some lip movement. It may have triggered the horrible Burning Mouth Syndrome I have. Going on Ingrezza any day

Jump to this post

Welcome @kthlngrateful, I'm sorry to hear that you also have Tardive Dyskinesia along with the Burning Mouth Syndrome. What has helped me with my different autoimmune and other health conditions is learning as much as possible about them and what different treatments might help. Not sure if you have already seen the Talk About TD website but they have a list of different resources you might find helpful: https://www.talkabouttd.com/tardive-dyskinesia-td-resources.

How long have you been dealing with the TD and Burning Mouth symptoms?

REPLY
1 reply
kthlngrateful | @kthlngrateful | Feb 24 7:58pm
In reply to @johnbishop "Welcome @kthlngrateful, I'm sorry to hear that you also have Tardive Dyskinesia along with the Burning..." + (show)
@johnbishop

Welcome @kthlngrateful, I'm sorry to hear that you also have Tardive Dyskinesia along with the Burning Mouth Syndrome. What has helped me with my different autoimmune and other health conditions is learning as much as possible about them and what different treatments might help. Not sure if you have already seen the Talk About TD website but they have a list of different resources you might find helpful: https://www.talkabouttd.com/tardive-dyskinesia-td-resources.

How long have you been dealing with the TD and Burning Mouth symptoms?

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Since June 2023
Thanks for information

REPLY
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