Tapering off clonazepam (Klonopin, Rivotril)

Posted by mmussak @mmussak, Dec 19, 2018

Hi my name is Mary and I am a first time user of ever using a discussion blog online but have felt in my heart I need some advice and help with an issue I am having. My dr I have seen for many years moved out of state and referred me to another phychiatrist within his office. At the time of his moving away he had me weaning off clorazapam slowly and doing it as slow to not make it not so difficult as you all know , and I was doing well at it until I was having extreme chest pain and they put me in the hospital for 2 days to check to make sure it wasn’t my heart, with all this happening I knew it was the weaning off the meds that was causing it so i went back up in dosage and it all went away again, and I was almost off it…My old dr started me on this med 27 years ago and I had no idea what it was but my body anxiety was shutting down my body and it helped it all go away so i didnt question it, well not until I went to school for nursing did I find out what it was all about. He put me on .5 mg three times a day and that stayed that way for 27 years not knowing what It does later in years, so I asked my dr to help me with the weaning off it, so our weaning process was as follows: Take .5 in a.m. ,25 afternoon and ,5 evening dose for 2 weeks then cut morning dose to .25 afternoon to .25 and evening .5 for 2 weeks then finally .25 three times a day for 6 weeks and then starting the last of the wean at this point the same as we did the first .25 till i was off. My new dr went from .50 3 times daily to .25 two times a day starting right away to get off it, that is over 1.0 mg a day off it all in one day and forward , I am already sad and crying because I dont know what to do, I have been there and I know how hard it was just to get off the way my old dr did slowly…..anyone out there that can help me with what to do I am so scared and I don’t think she knows how extremely hard it is to get off this stupid stuff or that I really do want to do it, but please make it as painless as possible if there is such a thing with these meds. At 56 I didnt think I would have to go through menapause and this hell(sorry about the word but so true) all at once…at times I think it would be easier to just get cancer or something and die. Sorry but its true if you have been there you will understand. PLease help me!!!

Liked by Leonard, falon

I have been on Effexor 150mg for anxiety for about 16 years and Klonopin (.5 – .75 mg) for sleep for about the same amount of time. I have stuck with .5 for last month, adding 6 mg of Melatonin about 4/week. My psychiatrist has recommended tapering klonopin by adding more melatonin (he recommended 10 mg of melatonin) I want to get off klonopin as I have a history of a minor stroke at 47 with no known cuase and have a family history of dementia.

Anyone else using klonopin for sleep or using melatonin to assist with tapering?

I am 53 now. Tend to get panicky with insomnia due to 4 year battle with it post partum (pre-klonopin)

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@jimlindac

Hi, Jim is right. Living your best life is the goal of any treatment. If you read the studies done on benzos and dementia you will find that at this time, they don't have any concrete evidence that they cause dementia. There is no direct link because there is a missing piece about the question of whether people started on the benzos later in life because they were already in the beginning stages of dementia. For example, ten years ago my mom started having anxiety issues at age 73. Her doctor put her on xanax .25 3 times a day. This is a very low dose and she usually only took it twice a day. In hindsight, the anxiety was being caused by the onset of dementia/alzheimers and the xanax was added to combat those symptoms. At age 73, the xanax did not cause the dementia. The studies they are currently referring too are having the same difficulty…what came first the chicken or the egg? In the future, they may prove that there is a connection to some of these medications ie: benzos, statins, beta blockers, but for now there is a lot of speculation. I hope you ultimately live your best life in this moment. I have been taking Klonopin for about 15 years 1 mg at bedtime. It has really helped and I too have occasionally tried a slow wean thinking that being off of them is better for me. I always end up back on my 1 mg and am comfortable there, no side effect and no panic attacks at night.

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I totally agree with what comes first the chicken or the egg theory….living quality life I have decided at 56 is more important than going through the horrible withdrawals along with menapause so i see my dr on 10th of this month and am going to explain that to her….there mission is to make our life livable with this mental illness not to make us suffer for THEY want u off of it…I was prescribed this over 27 years ago and didnt ask for it but it along with anti depressants have given me my life back for over 30 years….why change something that has worked for so many years.. ty all for ur responses on this feed now I can only hope I can make her u understand!!! Happy new year to all of u

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@jimlindac

Hi, Jim is right. Living your best life is the goal of any treatment. If you read the studies done on benzos and dementia you will find that at this time, they don't have any concrete evidence that they cause dementia. There is no direct link because there is a missing piece about the question of whether people started on the benzos later in life because they were already in the beginning stages of dementia. For example, ten years ago my mom started having anxiety issues at age 73. Her doctor put her on xanax .25 3 times a day. This is a very low dose and she usually only took it twice a day. In hindsight, the anxiety was being caused by the onset of dementia/alzheimers and the xanax was added to combat those symptoms. At age 73, the xanax did not cause the dementia. The studies they are currently referring too are having the same difficulty…what came first the chicken or the egg? In the future, they may prove that there is a connection to some of these medications ie: benzos, statins, beta blockers, but for now there is a lot of speculation. I hope you ultimately live your best life in this moment. I have been taking Klonopin for about 15 years 1 mg at bedtime. It has really helped and I too have occasionally tried a slow wean thinking that being off of them is better for me. I always end up back on my 1 mg and am comfortable there, no side effect and no panic attacks at night.

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Yes if you need the medication and the doctor is not wanting you off of the meds, then staying on is best. I weaned off of Klonopin because my need no longer existed and my doctor wanted me to.

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@johnhans

Yes if you need the medication and the doctor is not wanting you off of the meds, then staying on is best. I weaned off of Klonopin because my need no longer existed and my doctor wanted me to.

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No my dr wants me off after 27 years…not me its working just fine I dont understand why she feels the need to change it.. I want to stay as is

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@elwooodsdad

I am switching from Trintillix to Prozac with the assistance of Clonazepam. Worst time of my life. I understand why people throw up their hands and quit trying. Insomnia, flu like symptoms, having to over-subscribe to companion drugs just to get by. Suicidal ideation is frightening and sometimes appealing, but not an option for me. I have a good psychiatrist, and a wife who is my greatest gift. This experience cannot be described in words. It just has to be endured, like any other torture. I am miserable, but know in my soul that there is light at the end of this very dark tunnel…

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I switched from prozac to trintellix fir yo prozac was way to stimulating for me with my anxiety even with taking clorazapam with it ….I wish u the best for finding the right meds is such a big part of the battle…bless your heart that u see the blessings in your life to struggle through…it does get better and life gets better…I believe people with mental illness are the strongest people for what they fight and struggle through!!!

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@mmussak

I switched from prozac to trintellix fir yo prozac was way to stimulating for me with my anxiety even with taking clorazapam with it ….I wish u the best for finding the right meds is such a big part of the battle…bless your heart that u see the blessings in your life to struggle through…it does get better and life gets better…I believe people with mental illness are the strongest people for what they fight and struggle through!!!

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So agree. It has cost some of us many relationships with family/friends because of their own ignorance. Not feeling sorry for myself as I am far stronger than they will ever be as they live their perfect lives. Wishing all of us who have and are hurting because of ignorance and arrogance.

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@elwooodsdad

I am switching from Trintillix to Prozac with the assistance of Clonazepam. Worst time of my life. I understand why people throw up their hands and quit trying. Insomnia, flu like symptoms, having to over-subscribe to companion drugs just to get by. Suicidal ideation is frightening and sometimes appealing, but not an option for me. I have a good psychiatrist, and a wife who is my greatest gift. This experience cannot be described in words. It just has to be endured, like any other torture. I am miserable, but know in my soul that there is light at the end of this very dark tunnel…

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I am on my third day on my change from Trintillix to Prozac. I have had insomnia issues during this. My prescribed dose of clonazepam is 3mg per day. I have taken the liberty of adding an added 1mg to address the sleep issues. I slept 101/2 hours last night in bed. Not in a chair in the den. Not wandering about the house. Not sitting or laying wide awake in the dark. This is scary, and very little scares me, but this has. Join my celebration of sleeping normally(with a little extra pharmacological assistance) one night in a row. Could it be a trend. I see my physician on the 10th.

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@elwooodsdad– You are a hoot! yay for a good long sleep! All kidding aside I know that the lack of sleep can exacerbate every little symptom and add to them! I get edgy and shaky and just awful.

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@elwooodsdad

My only concern for you is taking the extra 1 mg at night and then sleeping 10.5 hours. You need to be careful not to take so much that your respiration is decreased. Many deaths are the result of this cause. If you are taking other medications they may add a cumulative effect to your central nervous system slowing down. Be very careful and let your doctor know what you're doing.

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@elwooodsdad: In addition to what Gail said an hour ago, please don't take the extra 1 mg of Clonazepam for more than 1 or 2 days because then it will become very difficult for you to come off of it. In fact, stop taking it immediately, if possible.

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@gailb

@elwooodsdad

My only concern for you is taking the extra 1 mg at night and then sleeping 10.5 hours. You need to be careful not to take so much that your respiration is decreased. Many deaths are the result of this cause. If you are taking other medications they may add a cumulative effect to your central nervous system slowing down. Be very careful and let your doctor know what you're doing.

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I sleep with a cpap, so I breathe whether I want to or not. During this fiasco, I would have been pleased to stop breathing for good…I think I am close to transitioning and the extra clonazepam will not be an issue. Heck, after 25 years another 1mg has been earned. I have a friend whose wife is Ph.D psychologist, and she said take the pill. The lack of sleep is worse for you. And the beat goes on…

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@elwooodsdad

I sleep with a cpap, so I breathe whether I want to or not. During this fiasco, I would have been pleased to stop breathing for good…I think I am close to transitioning and the extra clonazepam will not be an issue. Heck, after 25 years another 1mg has been earned. I have a friend whose wife is Ph.D psychologist, and she said take the pill. The lack of sleep is worse for you. And the beat goes on…

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@elwooodsdad: I fully understand your need for good sleep, and, therefore, need for extra 1mg of Clonazepam. But it would be good if you could stop it as soon as your sleep returns to normal. I will pray for you. God bless you.

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@elwooodsdad

I sleep with a cpap, so I breathe whether I want to or not. During this fiasco, I would have been pleased to stop breathing for good…I think I am close to transitioning and the extra clonazepam will not be an issue. Heck, after 25 years another 1mg has been earned. I have a friend whose wife is Ph.D psychologist, and she said take the pill. The lack of sleep is worse for you. And the beat goes on…

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@elwooodsdad– Although I want you to have a succession of good sleeping nights a PH. D psychologist is not an MD. She knows not to be giving medical advice. Please be very careful

Liked by lauren123, Parus, lioness

REPLY
@elwooodsdad

I am on my third day on my change from Trintillix to Prozac. I have had insomnia issues during this. My prescribed dose of clonazepam is 3mg per day. I have taken the liberty of adding an added 1mg to address the sleep issues. I slept 101/2 hours last night in bed. Not in a chair in the den. Not wandering about the house. Not sitting or laying wide awake in the dark. This is scary, and very little scares me, but this has. Join my celebration of sleeping normally(with a little extra pharmacological assistance) one night in a row. Could it be a trend. I see my physician on the 10th.

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@elwooodsdad I'm very curious to hear how your appointment with the Doctor went on the 10th? Lack of sleep creates a monster in me after a week. I'm not on Klonopin or Prozac because of the opioids I take. I take Trazodone but often don't sleep. Such is life!

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@sandytoes14

@elwooodsdad I'm very curious to hear how your appointment with the Doctor went on the 10th? Lack of sleep creates a monster in me after a week. I'm not on Klonopin or Prozac because of the opioids I take. I take Trazodone but often don't sleep. Such is life!

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Ty for asking….actually my appt went really well I just explained some things to her and we compromised and I will be going down to just two a day instead of three and we will leave it there….I dont take it for sleep…I have no problem sleeping usually but when my anxiety gets so high my body starts to shut down…this last time she had me try and wean off I was In Hospital for 2 days for my heart and severe chest pain and could not digest my food…she put me back to regular dose I have taken for 27 years and everything went away….I have never gone up on my dose it has stayed the same for all those years…

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