Talking Frankly about Living with Advanced Cancer

I am doing well. My husband and I went in a 6000 mile driving trip to four different research hospitals. Dana Farber didn't pan out, but Johns Hopkins might work out instead.

I just finished a CT scan to see if I qualify for a clinical trial at Hopkins. If I do I will move there and live with my sister or my good friends for my husband's former boss.

BTW, while on my trip, I visited Mt Katahdin in Maine. It was my dream to hike the Appalachian Trail. I may not get to do that, but I did climb half of Mt Katahdin to Chimney Pond. Plus I got to see Stephen King's house.

Hope you all are doing well. I'll keep you posted on the clinical trial.

Hello @nogginquest

I was noticing that it has been a while since we had a post from you. How are you doing? When you last posted (in another conversation group) you were going to be talking with Dana Farber at Mayo regarding a clinical trial. I hope that meeting went well. I'd love to hear from you!

Well, that just sucks. I only got to enjoy remission for a few months. Last July I was diagnosed with stage IV pancreatic cancer (2" tumor in the pancreas & at least 18 in the liver). Within 8 months I was tumor free.
I underwent radiosurgery to the pancreas to kill off any hiding cells.
Last Friday I went in for a CT scan and learned they saw two new small spots in the liver. My oncologist ordered an MRI and biopsy to see what we're dealing with, and if the cancer has mutated, but I spent the week fighting the insurance company to pay for an MRI. The spots are so small and the CT scan fuzzy enough that the surgeon doesn't feel comfortable performing the biopsy, this the reason for the MRI and its clearer imags.
My oncologist had a peer to peer meeting with the insurance company this morning and was able to push the MRI through. I go in Friday morning and hopefully will have the biopsy soon after.

Sigh...I was really enjoying remission.

(BTW, I still feel great, and I'm still working 40 hour weeks. I told my husband, "I'm not ready to return to pain meds and debilitating exhaustion." I really hope the MRI shows nothing or the biopsy reveals no cancer.)

Hello All:

I recently saw this Mayo study that uses the Measles virus to deal with cancer. I thought about you, and I think you might find it interesting as well, Here is the link, https://connect.mayoclinic.org/newsfeed-post/measles-virus-as-a-cancer-fighter-2a2ee5/

Teresa

Hello @ventibug
Hope your Samsung & you have a long lastning & satisfying relationship, ahead of you. I am an IPhone & IPad user & it is too late to start learning how to use an android gadget. I have a computer but don’t remember where I have parked it. My memory is a bit of mess and I have accepted my condition with difficulty, due to 23 years of chemo, cancer & other treatments. I am always such a positive and happy person but now I feel that I am lost in the deepest whole of depression that can be found on earth. I feel that my husband is very tired of being this great strenght, loving partner of mine. It is not easy with ups and downs in my different treatments, side effects and various reasons to be hospitalised, more often recently. Between us I am tired of being alive but sitting in this waiting rom before the final D”eath”day. I have being diagnosed 4 time with stage 4 cancer. I don’t know if it was thanks to my Sunny personality or my wonderful oncologists that I have survived this far. But as said before, it has become tiring just waiting. On the bright side, I Said hello to my new grandchild, a little boy for almost two weeks ago. Didn’t even believe to be able to meet my first grandchild, a very bright and beautiful girl who would be 4 years old quite soon. So you see life is full of surprisens even when we found ourselves at the bortom of darkest whole in the world. My aim is to find a comfortable and pleasant mind zone for my beloved husband, where he can relax and gather his strenght back.
I am so happy that you are a believer, your trust in God Will help you through this ordeal. Nobody understands your situation better than you, but please find a place in your mind that you can the reasons for being lucky. Mine are that I have a wonderful tired husband, a handsome son, two wonderful grandchildren, and still with my spread stage 4 cancer for the past 3,5 years, I have been enjoying most of my days. If I die now, you must know that while feeling the blue, I am the luckiest woman alive.
Take care beloved ventibug❣️

I connect to almost everything you have said @saltis.. At one time or another have experienced it all especially the feeling of being tired of the fight but battling with that feeling is the stronger emotion of feeling blessed with the cancer, as I have expressed many times I am a better person now. So @ventibug I hope the replies and welcomes you have had and will continue to get supports the feelings of gratefulness for what you can still experience. If anything is "normal" during this time it is that you can feel Gods love at the same time you feel depressed for what you have lost. You can feel joy for the gifts you are still getting at the same time you feel sadness for what you have lost. Here you find compassion and understanding for whatever "stage" you are in. @saltis said it very well.

Allison

Hello @ventibug
Hope your Samsung & you have a long lastning & satisfying relationship, ahead of you. I am an IPhone & IPad user & it is too late to start learning how to use an android gadget. I have a computer but don’t remember where I have parked it. My memory is a bit of mess and I have accepted my condition with difficulty, due to 23 years of chemo, cancer & other treatments. I am always such a positive and happy person but now I feel that I am lost in the deepest whole of depression that can be found on earth. I feel that my husband is very tired of being this great strenght, loving partner of mine. It is not easy with ups and downs in my different treatments, side effects and various reasons to be hospitalised, more often recently. Between us I am tired of being alive but sitting in this waiting rom before the final D”eath”day. I have being diagnosed 4 time with stage 4 cancer. I don’t know if it was thanks to my Sunny personality or my wonderful oncologists that I have survived this far. But as said before, it has become tiring just waiting. On the bright side, I Said hello to my new grandchild, a little boy for almost two weeks ago. Didn’t even believe to be able to meet my first grandchild, a very bright and beautiful girl who would be 4 years old quite soon. So you see life is full of surprisens even when we found ourselves at the bortom of darkest whole in the world. My aim is to find a comfortable and pleasant mind zone for my beloved husband, where he can relax and gather his strenght back.
I am so happy that you are a believer, your trust in God Will help you through this ordeal. Nobody understands your situation better than you, but please find a place in your mind that you can the reasons for being lucky. Mine are that I have a wonderful tired husband, a handsome son, two wonderful grandchildren, and still with my spread stage 4 cancer for the past 3,5 years, I have been enjoying most of my days. If I die now, you must know that while feeling the blue, I am the luckiest woman alive.
Take care beloved ventibug❣️