Talk to me about Neulasta (pegfilgrastim) experiences

Posted by ilcpfighter @ilcpfightee, Oct 16, 2022

I am in my first week of TC, had bone pain bad days 4 and 5, started to subside day 6 only to violently wake me up last night (beginning of day 7) feeling like my hips and pelvic were broken. I would appreciate hearing experiences, tips, tricks, anyone...

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Has anyone received a half dose of neulasta due to side effects?

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@mdr3

OUTSTANDING! no interruption in my treatments. My Neulasta was by patch, similar to a diabetics' reading patch. No side effects.

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I can’t actually get the brand neulasta cause plan does not pay for it. Seems like a patch may be better than the shot.

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OUTSTANDING! no interruption in my treatments. My Neulasta was by patch, similar to a diabetics' reading patch. No side effects.

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My husband did very well with it. No noticeable side effects.

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@colleenyoung

Hi there, I moved your question about pegfilgrastim pegfilgrastim (Neulasta) to this existing discussion:

- Talk to me about Neulasta experiences https://connect.mayoclinic.org/discussion/talk-to-me-about-neulasta-experiences/

I did this so you can click the link to read previous posts and join @loribmt and others with their experience with this medication used to increase production of WBC after chemo treatments to help avoid infections from lower immunity.

Several members were told by their oncologists to take Claritin allergy med to prevent and alleviate the pain associated with the Neulasta. Not Clairitin D, just the regular Claritin 24-hour capsule. Was this suggested for you?

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Thankyou. Yes Claritin was mentioned then I forgot about it. Next round I will use it!! Thankyou for the link to discussion as well!! This site is invaluable and validating. Thankyou to everyone!

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I saw this post and remembered when they had me use Neulasta. I believe it was shots and after a month it did nothing. My pancytopenia i was diagnosed with soon after became a larger problem. My white cells continued to go down bit by bit along with my red and platelets.
The Chemo's effects, 13 rounds, made the Neulasta ineffective. I bought the Claritin that my dr like yours suggested and ended up giving it to me sister whose dr. recommended she take it.

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@neveragainvaccines

How did you feel after the neulasta shot to increase WBC?
OMG got the pegfilgrastim shot after chemo and it kicked my butt..or maybe contributed to chemo. Ya fourth day sucked. Day 5 post first infusion I feel a bit better. What were some of your experiences. I took the shot at 48 hrs post chemo, next round I will take it at 24 hrs so steroid still on board.

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I've not felt different with the shit. I'm really doing well over all.

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@neveragainvaccines

How did you feel after the neulasta shot to increase WBC?
OMG got the pegfilgrastim shot after chemo and it kicked my butt..or maybe contributed to chemo. Ya fourth day sucked. Day 5 post first infusion I feel a bit better. What were some of your experiences. I took the shot at 48 hrs post chemo, next round I will take it at 24 hrs so steroid still on board.

Jump to this post

Hi there, I moved your question about pegfilgrastim pegfilgrastim (Neulasta) to this existing discussion:

- Talk to me about Neulasta experiences https://connect.mayoclinic.org/discussion/talk-to-me-about-neulasta-experiences/

I did this so you can click the link to read previous posts and join @loribmt and others with their experience with this medication used to increase production of WBC after chemo treatments to help avoid infections from lower immunity.

Several members were told by their oncologists to take Claritin allergy med to prevent and alleviate the pain associated with the Neulasta. Not Clairitin D, just the regular Claritin 24-hour capsule. Was this suggested for you?

REPLY

How did you feel after the neulasta shot to increase WBC?
OMG got the pegfilgrastim shot after chemo and it kicked my butt..or maybe contributed to chemo. Ya fourth day sucked. Day 5 post first infusion I feel a bit better. What were some of your experiences. I took the shot at 48 hrs post chemo, next round I will take it at 24 hrs so steroid still on board.

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@plshouse1

Hi Lori
Thank you so much for replying.
You just feel like you are losing your mind. What's going on with me,I used to have so much energy. Now all I can do is stay in bed.
I have had 4 chemo treatments and 3 neulasta injections. You may be right about the chemo. I guess I just assumed it was the neulasta.
I have been taking Claritin and the Dr also prescribed gabapentin at night which does help.
I have 2 more treatments and then an MRI.
Thanks again for taking the time to respond.
It helps for someone to understand.
Pat

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Good morning! Hi Lori! On our way to Val’s dermatology appointment so just a quick reply regarding Neulasta. NastyLasta is what his hematology nurse called it. He had some bone pain and took Claritin (side note: he was told to take original Claritin, not generic) but he said it kicked his butt worse than the chemo or immunotherapy together. Off we go . More later🌻🌻

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