Talk to me about Neulasta (pegfilgrastim) experiences

Posted by ilcpfighter @ilcpfightee, Oct 16, 2022

I am in my first week of TC, had bone pain bad days 4 and 5, started to subside day 6 only to violently wake me up last night (beginning of day 7) feeling like my hips and pelvic were broken. I would appreciate hearing experiences, tips, tricks, anyone...

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Profile picture for neveragainvaccines @neveragainvaccines

For SURE I will do that for the next one Nov 7th!!!!
By far the worst thing so far. Managed to go for a walk today day 7 after chemo. Still my 5 months of hyperemesis gravidirum(sp) with both pregnancies WAY worse.

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You have my empathy on both counts! I also had hyper-emesis with my pregnancy. Oy…but at least that was 40 years ago when I was offered a med that’s no longer available. I was in the hospital for dehydration. I’m so sorry you’re going through that horrid nausea with no improvement in prevention for that condition.

At least for the chemo, I know neulasta is a breakthrough to help get our immune system back on track and that Claritin definitely helps the side effect pain. Like I said in one of my former comments, I consider myself a tough old bird but wowzee…that pain was like no other. Intense and on a scale of 1-10 was a 15! If you take the Claritin don’t stop too quickly. Keep it up for at least 7 to 10 days. Let me know how it works for you and best of luck with the treatments! I’m sorry you need chemo but it can be a life saver. I wouldn’t be here without it. Hugs.

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Profile picture for Lori, Volunteer Mentor @loribmt

Did you try Claritin for the Neulasta injections? It works really well. Check with your oncologist first. But it was recommended to me by my oncologist and the staff in the infusion centers. Claritin - 24 hour capsules not the Claritin-D.
My instructions were to take capsule per day of the injection and then for at least 7 days in a row…same time each day.
It’s important to receive the neulasta because with chemo the body becomes seriously immune compromised with the reduction in blood counts. Neulasta will help jumpstart the production of neutrophils so that infection risk is lowered at a considerably faster rate than waiting for the WBC to recover on its own. If it’s ok with your oncologist, you might want to give the Claritin a try.

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For SURE I will do that for the next one Nov 7th!!!!
By far the worst thing so far. Managed to go for a walk today day 7 after chemo. Still my 5 months of hyperemesis gravidirum(sp) with both pregnancies WAY worse.

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Profile picture for neveragainvaccines @neveragainvaccines

I can’t actually get the brand neulasta cause plan does not pay for it. Seems like a patch may be better than the shot.

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Did you try Claritin for the Neulasta injections? It works really well. Check with your oncologist first. But it was recommended to me by my oncologist and the staff in the infusion centers. Claritin - 24 hour capsules not the Claritin-D.
My instructions were to take capsule per day of the injection and then for at least 7 days in a row…same time each day.
It’s important to receive the neulasta because with chemo the body becomes seriously immune compromised with the reduction in blood counts. Neulasta will help jumpstart the production of neutrophils so that infection risk is lowered at a considerably faster rate than waiting for the WBC to recover on its own. If it’s ok with your oncologist, you might want to give the Claritin a try.

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Has anyone received a half dose of neulasta due to side effects?

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Profile picture for mdr3 @mdr3

OUTSTANDING! no interruption in my treatments. My Neulasta was by patch, similar to a diabetics' reading patch. No side effects.

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I can’t actually get the brand neulasta cause plan does not pay for it. Seems like a patch may be better than the shot.

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OUTSTANDING! no interruption in my treatments. My Neulasta was by patch, similar to a diabetics' reading patch. No side effects.

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My husband did very well with it. No noticeable side effects.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi there, I moved your question about pegfilgrastim pegfilgrastim (Neulasta) to this existing discussion:

- Talk to me about Neulasta experiences https://connect.mayoclinic.org/discussion/talk-to-me-about-neulasta-experiences/

I did this so you can click the link to read previous posts and join @loribmt and others with their experience with this medication used to increase production of WBC after chemo treatments to help avoid infections from lower immunity.

Several members were told by their oncologists to take Claritin allergy med to prevent and alleviate the pain associated with the Neulasta. Not Clairitin D, just the regular Claritin 24-hour capsule. Was this suggested for you?

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Thankyou. Yes Claritin was mentioned then I forgot about it. Next round I will use it!! Thankyou for the link to discussion as well!! This site is invaluable and validating. Thankyou to everyone!

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I saw this post and remembered when they had me use Neulasta. I believe it was shots and after a month it did nothing. My pancytopenia i was diagnosed with soon after became a larger problem. My white cells continued to go down bit by bit along with my red and platelets.
The Chemo's effects, 13 rounds, made the Neulasta ineffective. I bought the Claritin that my dr like yours suggested and ended up giving it to me sister whose dr. recommended she take it.

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Profile picture for neveragainvaccines @neveragainvaccines

How did you feel after the neulasta shot to increase WBC?
OMG got the pegfilgrastim shot after chemo and it kicked my butt..or maybe contributed to chemo. Ya fourth day sucked. Day 5 post first infusion I feel a bit better. What were some of your experiences. I took the shot at 48 hrs post chemo, next round I will take it at 24 hrs so steroid still on board.

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I've not felt different with the shit. I'm really doing well over all.

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