How long do you take Gabapentin?

Posted by ttibsen @ttibsen, Sep 9, 2020

My wife got a Rx for Gabapentin yesterday to deal with chronic pain affecting her lower right leg below the knee. They couldn’t find anything obviously wrong and I guess that in those situations they fall back on Gabapentin. The instructions simply said take as needed and I am somewhat sceptical of this as it’s my understanding that Gabapentin is not like an analgesic which you do take on an as needed basis. I thought that for Gabapentin, once you start the meds, you continue at least until the meds is finished. She was given a one month supply.

@rwinney

@amkhead Have you ever been diagnoses with occipital neuralgia? I have that in addition to neuropathy. I get awful tightening from the base of my head up the back, and neck. Hard to lay on a soft pillow when I flare. I freeze it with ice on neck and head. I'm glad the morphine at least helps you regardless of hating to take it. I completely understand that theory. I used to receive nerve blocks in neck and occipitals then moved on to radio frequency ablations. Have you tried these?

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@rwinney I see people talking about morphine on here and how much it helps. I have been om 10/325 percocet for 2 years because of neuropathy and fibromyalgia. The beak through pain puts me in tears. I hear people talking about morphine/time released. Is this something I can ask ,y pain management doctor about and how does that work. She had mentioned the pain pump or something like that. I do not want anything put in my back. The pain is getting to me., but I don't want her to think I am drug seeking when I am pain relief seeking. I am 75 so I don't think looking for a high is what I am doing.

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@summertime4 I'm with you there today in pain . I'm going to see my neurosurgeon on Monday and have to get something for this relentless pain I have Fibromyalgia and neuropathy also I'm 77 so not looking to get high just relief

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@summertime4

@rwinney I see people talking about morphine on here and how much it helps. I have been om 10/325 percocet for 2 years because of neuropathy and fibromyalgia. The beak through pain puts me in tears. I hear people talking about morphine/time released. Is this something I can ask ,y pain management doctor about and how does that work. She had mentioned the pain pump or something like that. I do not want anything put in my back. The pain is getting to me., but I don't want her to think I am drug seeking when I am pain relief seeking. I am 75 so I don't think looking for a high is what I am doing.

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@summertime4 – I take morphine only when my pain level is 8-10
You need to have a honest talk with your doctor about your level of pain , and your pain is getting to you and you need some kind of relief

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@rwinney

@amkhead Have you ever been diagnoses with occipital neuralgia? I have that in addition to neuropathy. I get awful tightening from the base of my head up the back, and neck. Hard to lay on a soft pillow when I flare. I freeze it with ice on neck and head. I'm glad the morphine at least helps you regardless of hating to take it. I completely understand that theory. I used to receive nerve blocks in neck and occipitals then moved on to radio frequency ablations. Have you tried these?

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Have not been diagnosed with occipital neuralgia- my pain is only in my head
Not in my neck or back- and I have no problem sleeping on pillows.
Yours sounds horrible too- hope you can get some kind of relief
I have tried the radio frequency, I believe that is what they tried, and most of the medical neurology doctors tried a ton of stuff within the first 2 months of my onset .

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@summertime4

@rwinney I see people talking about morphine on here and how much it helps. I have been om 10/325 percocet for 2 years because of neuropathy and fibromyalgia. The beak through pain puts me in tears. I hear people talking about morphine/time released. Is this something I can ask ,y pain management doctor about and how does that work. She had mentioned the pain pump or something like that. I do not want anything put in my back. The pain is getting to me., but I don't want her to think I am drug seeking when I am pain relief seeking. I am 75 so I don't think looking for a high is what I am doing.

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@summertime4, @lioness I'm so sorry you ladies are both suffering terribly from your chronic pain.

@summertime4 You replied to me asking if you should ask your pain management Dr about morphine/time released. I'm wondering who currently prescribes your 10/325 Percocet? Is it your Pain Management Dr.? I understand you not wanting an implant in your back. Unfortunately, our bodies build tolerance to opiod treatment which prompts us to continue seeking a higher dose for effectiveness. As I understand it, if you are on a maxed dose of one opiod, sometimes switching to a different opiod may offer help. I recommend speaking to your PM Dr or whomever prescribes your Percocet as to other options. Best of luck to you in your quest to find pain relief. Hang in there dear.
Rachel

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@amkhead

we have tried chiropractic, massage, Botox, nerve blocks, sent me to Cedar Sinai in Los Angeles for 1 week of testing with a neurologist, My list is long of things we have tried. I take morphine if my pain is 8-10. My pain is a 6 always, and I do get migraines over the headaches, and I take migraine meds, and migraine gone within a hour. Headaches are a severe pressure, get worse with ANY activity now. Lost my job of 10 years-and now fighting severe depression ( which I am getting help for )

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Well, U have tried it all, for now. Will pray God sends you a miracle, dear!! SO sorry.
I also pray God will open another door, for an even better job. That's what HAPPENED for my daughter & she was distraught & hurt, too. Never underestimate the power of pray!

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@amkhead

we have tried chiropractic, massage, Botox, nerve blocks, sent me to Cedar Sinai in Los Angeles for 1 week of testing with a neurologist, My list is long of things we have tried. I take morphine if my pain is 8-10. My pain is a 6 always, and I do get migraines over the headaches, and I take migraine meds, and migraine gone within a hour. Headaches are a severe pressure, get worse with ANY activity now. Lost my job of 10 years-and now fighting severe depression ( which I am getting help for )

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Have you ever tried a tense machine. Not a spinal stimulator, but the tense machine with patches. I love them. Cannot feel any pain and I am always in a lot of pain.

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@bellaann

Have you ever tried a tense machine. Not a spinal stimulator, but the tense machine with patches. I love them. Cannot feel any pain and I am always in a lot of pain.

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Hello @bellaann – Welcome to Mayo Clinic Connect. Thank you for sharing your experience with a Tens unit. You might want to join in the following discussion and share a little more information on the type of Tens unit you have that helps you.

– TENS Units: https://connect.mayoclinic.org/discussion/tens-units/

Are you able to share a little more about your diagnosis and how you use the Tens unit to help with the pain?

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@amkhead

I just started Gabapintin last week, For chronic pain ( Headache I have had for 2 years now, nothing has helped yet,)
So my dose starts at 300mg -take one at Pm for 1 week
Keep a journal to see if you are feeling better or any side affects.
My first week has been fine, no changes
So my 2nd week I'm taking 600mg-twice a day.
And I believe it is helping a little on the pain.
I have chronic headaches 24 hours a day, and the best of best neurologist doctors can't not find out why?
So my 3rd week will be 900 mg, 3 times a day
I need to be aware of how I'm feeling, so the doctors will know how much gabapintin will be good for me.

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update on the gabapentin, I was to edgy, irritable and more- I weaned myself off of the gabapentin.
This chronic headache has gone on now for 2 years, doctors have tried allot -it’s not a migraine ( I can stop the migraine with over the counter migraine meds) Weird to have a migraine with my headache ( pressure on both sides of head, more I do the worst it gets. I feel like I am beginning to live in a black hole

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@amkhead

update on the gabapentin, I was to edgy, irritable and more- I weaned myself off of the gabapentin.
This chronic headache has gone on now for 2 years, doctors have tried allot -it’s not a migraine ( I can stop the migraine with over the counter migraine meds) Weird to have a migraine with my headache ( pressure on both sides of head, more I do the worst it gets. I feel like I am beginning to live in a black hole

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I have had headache for years and nothing worked. Tried Tramadol and it was a miracle! If I take it the minute I feel a H/A coming on, it nips it right in the bud. Hope you find something!

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@amkhead

update on the gabapentin, I was to edgy, irritable and more- I weaned myself off of the gabapentin.
This chronic headache has gone on now for 2 years, doctors have tried allot -it’s not a migraine ( I can stop the migraine with over the counter migraine meds) Weird to have a migraine with my headache ( pressure on both sides of head, more I do the worst it gets. I feel like I am beginning to live in a black hole

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Hello @amkhead. I can't imagine your suffering due to your chronic headache lasting that long.

I am curious what sort of testing your PCP has done and what has been ruled out at this point of your journey? Have you considered another opinion from another hospital to get a fresh perspective and team looking at this for you?

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@rwinney

Hello @amkhead. Welcome to Connect. I'm glad you've joined us to seek help, answers and support. You have come to a great place!

I am very sorry to hear of your headaches and migraines. I too am a sufferer. It sounds as though you have tried a plethora of approaches. It appears you have been recommended Gabapentin for daily maintenance in hopes of pain relief. I hope you feel relief in due time. Has your Neurologist ever recommended monthly migraine injections such as Ajovy, Emgality, or Aimovig? May I ask what migraine meds you currently take? Unfortunately, pain meds like Morphine can inflict headaches which is a challenge when we need them for other chronic pains.

I fully understand the depression that goes along with being a chronic headache/migraine person. I'm sorry you lost your job. I lost my job as well (27 years) due to chronic pain and migraine. I am happy to hear you are seeking help. That's huge. Good for you!

Wishing you a comfortable and pleasant day,
Rachel

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I am now trying Emgality injections- my first dose was doubled. I got severe migraines within hours of the injections, Doctor does not feel the first dose ofEmgality made those headaches. So 4days later after trying my over the counter migraine meds, finally stopped.
And 3 weeks in, I felt unstable, like deep black hole.
Informed doctors- no change ( and I already have depression, and they take chances on let’s try this drug.)
I’m trying 1 more dose, Jan.12-see if any of the head pain is relieved..
otherwise I’m not fighting anymore, if headaches don’t go away- I hope I go away..

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