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Starting Tagrisso: What time of day do you take it? With food?

Posted by dragonspark @dragonspark, Nov 28, 2023

I will be starting Tagrisso soon. The pharmacy is sending it to me and I should receive it tomorrow. I am supposed to let my oncologist know when I start it.

The pharmacist told me to take it with or without food did but just be consistent. For those of you that take it, when do you take it? In the morning? When you go to bed? With food? Without?

Just curious for others experiences. I’m not sure if it’s true, but in another social media platform group I’m in, someone there claims cancer cells are more active while you sleep but I’m not sure I want to take it at night when I go to bed in case I have side effects.

Also, how quickly did you experience side effects and what were they? And what do you use to manage them?

Thanks!

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Maureen | @mmusselman01 | Oct 25 10:56am
In reply to @colleenyoung "Hi @mmusselman01, good advice to check with a pharmacist on the ginger tea. I look forward..." + (show)
@colleenyoung

Hi @mmusselman01, good advice to check with a pharmacist on the ginger tea. I look forward to learning more about you. Would you mind sharing more about your journey with lung cancer?

Jump to this post

I just started this journey, was in the ER in June with what I thought was a heart attack and turned out to be reflux but they noticed a spot on my lung. Fast forward to now, I have NSCLC with an EGFR mutation. This has only spread to my lungs but has spread so considered stage IV. I started Tagrisso 22 days ago and so far handling it very well, no side effects so far so I just hope it is doing its thing. Fingers crossed.

Thank you for asking.

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2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 23 5:20pm
In reply to @mmusselman01 "Hi you may want to check with your pharmacist on the ginger tea. I mentioned I..." + (show)
@mmusselman01

Hi you may want to check with your pharmacist on the ginger tea. I mentioned I usually take ginger juice and he told me it has an enzyme that can interact with Tagrisso in the liver. So I stopped, maybe the tea does not have enough of the ginger in it. But always good to ask!

Jump to this post

Hi @mmusselman01, good advice to check with a pharmacist on the ginger tea. I look forward to learning more about you. Would you mind sharing more about your journey with lung cancer?

REPLY
1 reply
pb50 | @pb50 | Oct 16 5:42pm
In reply to @mmusselman01 "Hi you may want to check with your pharmacist on the ginger tea. I mentioned I..." + (show)
@mmusselman01

Hi you may want to check with your pharmacist on the ginger tea. I mentioned I usually take ginger juice and he told me it has an enzyme that can interact with Tagrisso in the liver. So I stopped, maybe the tea does not have enough of the ginger in it. But always good to ask!

Jump to this post

Good to know but I am not on Tagrisso

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Maureen | @mmusselman01 | Oct 16 4:53pm
In reply to @pb50 "I steep two tea bags in morning and sweeten with manuka honey or at least honey..." + (show)
@pb50

I steep two tea bags in morning and sweeten with manuka honey or at least honey local to your locale. After that initial cup, I throw one tea bag away and add one and sip on it most of the day.

Jump to this post

Hi you may want to check with your pharmacist on the ginger tea. I mentioned I usually take ginger juice and he told me it has an enzyme that can interact with Tagrisso in the liver. So I stopped, maybe the tea does not have enough of the ginger in it. But always good to ask!

REPLY
2 replies
troubletwo | @troubletwo | Sep 29 1:21pm

Hi, my hubby has been on Tagrisso for EGFR protein, left lung that had one lobe surgically removed and unsure of a couple of lobes showing possibilities, so reason for the study of Tagrisso for 3 years which will be up in 15 days, then off the Tagrisso due to it no longer being effective?? No contrast ct scans over the 3 years showed any recurrence of cancer, so perhaps that is the reason for the 3 year term. Tagrisso was taken at 1 pm daily (by choice of convenience), and other than lack of energy, and having to nap once a day after lunch due to tiredness I guess there was no real side effects. At the beginning I felt his skin was extremely dry and his feet could crack and if not drinking his 8 glasses of water a day, rashes could form. Persistently used glazel base cream which has no scent to it and it seemed to do the job. Has a good appetite with smaller portions I am seeing and if not enough food consumed he looses weight real fast. Intake of calories has been so important to keep up his weight as he lost 10 lbs. when lobe removed and has at least put 5 lbs. back on. Don't believe there is any time of day that you can't take Tagrisso, what is convenient and easy for you to remember, just be persistent in following that same time everyday.

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pb50 | @pb50 | Sep 29 12:08pm
In reply to @conyankee "Thank you. Will give it a try" + (show)
@conyankee

Thank you. Will give it a try

Jump to this post

I steep two tea bags in morning and sweeten with manuka honey or at least honey local to your locale. After that initial cup, I throw one tea bag away and add one and sip on it most of the day.

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1 reply
conyankee | @conyankee | Sep 29 11:38am
In reply to @pb50 "See picture i inserted" + (show)
@pb50

See picture i inserted

Jump to this post

Thank you. Will give it a try

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1 reply
pb50 | @pb50 | Sep 29 5:35am
In reply to @conyankee "The link doesn't seem to work. Can you give the name of the tea. Thanks" + (show)
@conyankee

The link doesn't seem to work. Can you give the name of the tea. Thanks

Jump to this post

See picture i inserted

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1 reply
conyankee | @conyankee | Sep 28 5:07pm
In reply to @pb50 "For what its worth i find Pepto bismol gel filled caps to be more effective than..." + (show)
@pb50

For what its worth i find Pepto bismol gel filled caps to be more effective than Imodium

I also find this ginger tea with a heaping teaspoon of honey to be very effective at mitigating GI distress and inflammation. I steep two tea bags and add the honey and have 3-5 cups a day. Not the yummiest but you get used to it and it really does help. Fyi The stuff in the grocery store is worthless.
https://www.amazon.com/your-orders/pop?ref=ppx_yo2dv_mob_b_pop__np_4_pp&orderId=111-8511456-0559412&lineItemId=jgnglwllrrsrsqps&shipmentId=GhNw58vV7&packageId=1&asin=B07SQX3853

Jump to this post

The link doesn't seem to work. Can you give the name of the tea. Thanks

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1 reply
pb50 | @pb50 | Aug 23 7:49pm
In reply to @conyankee "My wife started Tagrisso (80mg) about 2 weeks ago. Side effects include nausea, vomiting, extreme fatigue,..." + (show)
@conyankee

My wife started Tagrisso (80mg) about 2 weeks ago. Side effects include nausea, vomiting, extreme fatigue, occasional diarrhea. Taking anti-nausea med. & Imodium. No for diarrhea. No fever. Any suggestions on how to we can mitigate these side effects?

Jump to this post

For what its worth i find Pepto bismol gel filled caps to be more effective than Imodium

I also find this ginger tea with a heaping teaspoon of honey to be very effective at mitigating GI distress and inflammation. I steep two tea bags and add the honey and have 3-5 cups a day. Not the yummiest but you get used to it and it really does help. Fyi The stuff in the grocery store is worthless.
https://www.amazon.com/your-orders/pop?ref=ppx_yo2dv_mob_b_pop__np_4_pp&orderId=111-8511456-0559412&lineItemId=jgnglwllrrsrsqps&shipmentId=GhNw58vV7&packageId=1&asin=B07SQX3853

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