Anyone taking Tagrisso for Lung Cancer?

Welcome @divemaster, I'm so glad that Tagrisso has been effective for her. NED is amazing!
I take a similar targeted therapy for a different mutation, and I'm over 5 years. Best of luck to you both for continued success.
What are the most impactful side effects that she continues to experience after three years? Those side effects can be tough.

@debgibson I've been on Tagrisso for a month now. Stage 4 lung with mets to brain and bone. I've had few side effects- minor diarrhea and a little shortness of breath. I have a 3 level townhome, so I get a bit winded when I go from 1st level to 3rd for laundry, but nothing I can't live with.

@colleenyoung hello! I have stage 4 lung cancer - tumours only in my lungs. I had lung cancer 26 years ago (lobectomy & chemo sorted that), then breast cancer 20 years ago (primary. Mastectomy, radiation & chemo sorted that) and now another primary lung cancer! I'm somewhat short of breath but really doing fine!

My wife had stage 2 lung cancer and stage 4 brain cancer and has been on Tagrisso for over three years and as of today NED no evidence of disease. Tagrisso is a life savers, but has many challenging side effects. I guess the punishment fits the crime.

@debgibson, welcome. I'm glad that Tagrisso was an option for you after Tarceva. Can you clarify for me, do you have stage 4 lung cancer or lung metastatses from cancer at another site/organ? How are you doing?

I started on Tagrisso about a month ago after about 2.5 years on Tarceva after being diagnosed with stage 4 lung cancer (metastises on in lungs at this time). So far I think there are fewer side effects than Tarceva except that I feel a lot more tired (which might not be the Tagrisso, of course). My skin is still dry, nails still pathetic, but I have a bit more appetite and don't have such bad diarrhea. There hasn't been enough time to see if my hair returns to normal (it went extremely curly/frizzy - a bit like Beethoven or Einstein!) but I have great hope! Best wishes to you all.

@medtech4 I hope you had a good visit with your doctors. I’m not sure how much I can help, as I’ve only been on Tagrisso so far, but there are some Facebook groups that may be helpful. If you search for Tagrisso, EGFR, or Stage IV lung cancer, you should find several. Wishing you the best of luck.

@firefly33 Thank you. I see the doctor tomorrow, 1/14, for a follow up. I hope my cell counts are okay. I've only been on tagrisso for 11 days and had my 1st chemo on Jan.2. I was diagnosed with stage IV lung cancer about a month ago with metastases to the bone and brain. I got radiation on my head where there was a painful bump, that now has gone down.