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Switch to IVIG as medication for Clippers
My rheumatologist and neurologist are preparing to for me to try IVIG (such as Gamunix C) as a medication that could replace prednisone. I have been on 20 mg prednisone for 6 months steady and it has stabilized me but they think it would be better to move away from it if possible, I would start with both medications and gradually taper off the prednisone. Does anyone have experience doing this that you could share?
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I have been having IVIG infusions for six months for SLE and small fiber neuropathy. It may not be the same as most people but I have had an incredible response to this therapy. My chronic pain has been helped and I feel like a different person. I was not on prednisone but have been taking many medications to control, or try to control, my chronic pain which I am able to stop. If there’s anything I can help you with, please let me know.
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1 Reaction@twinkie23
Glad to hear. Thanks.
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1 ReactionEl fin es tomar solo inmunoglobulina? Sin prednisona o un inmunosupresor ? Y tienes Clippers? 🤔
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1 ReactionAnswers to your questions are in my post. The goal is to possibly maintain me only on the IVIG after tapering off prednisone.
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1 ReactionEn tus publicaciones no indicas si estás con inmunosupresores.
Las inmunoglobulinas te proporcionarán defensas, pero ninguna utilidad en cuanto a disminuir o controlar las inflamaciones por ello mi pregunta de si te suprimen cortisona, ¿Cómo controlarán tus inflamaciones?
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1 ReactionHope I’m doing this correctly, head pressure , brain fog, anxiety, more clustsy , eye lids feel heavy , memory. Two ANA test 1:640 and 1:320 , two DSDNA 32.9 iu/ml and 29.2 iu/ml ..blood is medication controlled but jumped after Pfizer 2nd , head pressure started after 1 st injection and has never gone away .. everyday , does not bother when sleeping, lowering blood pressure made no difference
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1 ReactionI take Gamunex-C for a immune deficiency. I've never had any problems with it but make sure you are always extra hydrated and the flow rate is very slow. You should have Benedryl at minimum to help with any allergic reaction and tylenol for headaches. I'm very tiny so my dose is just 40grams and it takes a full 4 hours to complete. Good luck!
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2 Reactions@donnyboy I was on prednisone for 6 years and finally stopped the end of November. I’m also on mycophenelate which does the same as prednisone without the side effects. I’m also on IV rituxan twice a year which gives me great results!
@kitchener64 Welcome to Mayo Clinic Connect! You’ve given some lab values, which, I’m sorry to say, none of us can comment on as we’re not medical professionals. You did mention some symptoms, brain fog, anxiety, and just not feeling well. Have you seen your doctor and what do they say? Let us know more and I’m sure someone will come to your assistance!
@luma22 Welcome to Mayo Clinic Connect! If you have any questions or concerns, just let us know and we’ll do our best to help you. You’ve come to the right place!
You mentioned Clippers, do you also have Clippers?