Having motility issues, may be gastroparesis: Any thoughts?
hello, i really need some feedback. i have been sick for about 7-8 months and although i had my gallbladder out four weeks ago i am still sick. presurgery two different surgeons said i had more going on than just my gallbladder. i am going to see a motility doctor here in NH but im scared he willbe like most doctors and not take me seriously. i lose about a pound every day. this morning i woke up in such pain. i can barely eat which explains the one pound loss a day. i did have a stomach emptying. several months ago. this nurse practioner ordered it. the same nurse practioner who said there was nothing wrong with my gallbladder. anyway i think the test is invalid. first i never knew you were suppose to have eggs and toast. all i had was half a tuna sandwich. i saw and they told me it was normal and i just didnt empty on hour two of a four hour test. this GI wanted to put me on a antidepressent. i said no. only good thing he did was refer me to a motility doctor. i woke up in pain this morning and i dont know what to do or think. please help me.
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Hi Danny ee, I have seen so real doozies myself. I had literally lived in the emergency room these 7 months. I had a cT scan last summer which showed inflammation in my stomach near my colon. The doctor would only say go buy some mirelax. What? My former gastro after hearing all my symptoms ignored them and asked if I wanted to go on a antidepressant. I said no. The only good thing thing about him is he did refer me to the motility doctor that I'm seeing virtually on Monday. I'm hoping for the best on that visit but I'm nervous. My new pcp who is actually a Dr I used to see is the only one who believes I have gastroparisis. He told me today to just tell the motility doctor thT Reglan is helping me and to speak up for myself. Which I will do. Just hoping for the best.
@eileen, Omgosh. Don't you wonder where they were listed in their graduating class? They had to have been low. Can't believe it. It would be funny if they weren't hurting people. 🤔
Thanks for chiming in. I don’t have Gastroparesis. Eileen does. I passed my stomach emptying test fine. My severe constipation is because of no colon motility. I can’t move my bowels without meds. I was scheduled in Boston for total colectomy but canceled, rescheduled and canceled again. I just feel doctors have missed something and don’t look at the whole picture just my large colon. I’ve learned a lot going to all naturopathic doctors but I’m not any better. It is very disappointing and I’m back to a newer motility Gastro doc this month. I have some testing suggestions but it’s never easy convincing them. Since I have been on Mayo blog for a while now it just amazes me how many suffer from what you and Eileen have and also what I have. I do think someone at some point will have some idea and I’ll try it and it will help. Blessings, Joanne
Hello for me I get full fast. Can't eat like I used to. Because I can't take Reglan at bedtime to try to cut back on side effects, I wake up like this morning feeling like my insides were all twisted up. As far as the motility doctor on Monday on paper it looks like a no Brainerd nut in nh you never know. I do have a back up just in case it goes south.mass general in Boston.. I just don't know if they take my insurance.
Good luck and please share the outcome of your visit. Best wishes for your health.
Did you every try homeopathic doctor?
Will update on Monday afternoon after my visit.
No where do I find one? What do they do? I need more testing first
Yes, I see homeopathic doctor, get colonic hydrotherapy, also visceral massage and pelvic floor pt. I do it all. My entire team thinks keeping my colon was wise. I look at this group very different that the medical world and the approach is so different. I’ve eliminated sensitivities to foods from a lab test result that my pcp felt is not conclusive enough. Cutting out those foods definitely after months made me feel better but not help my bowels. I also get acupuncture from the naturopathic doctor as well.
The problem is none of this except pelvic floor pt is covered because insurance companies don’t see as true medical help. I include my pcp on everything and he is part of my care but states at some point you need to move your bowels on your own. I’ve just cut back on weekly colonics to every 10 days. They all take credit cards, thank god and right now it’s what I want to do. I think an answer is out there. It could be as simple as my digestive system shut down from anesthesia which it does during surgery and it never recovered. It’s to coincidental that it started right after surgery. I’m sure it’s rare but I think it can happen. I’ll never point a finger, doesn’t matter. I just want to feel better. Thanks, Joanne
sorry, but since i offended people in this group i wont be back. im sure tomorrow wont go well then i will have no options but to suffer.