I only had few lymph nodes removed and have not had any problems with lymphedema. Hopefully others who have had the surgery can comment with their experience.
I only had few lymph nodes removed and have not had any problems with lymphedema. Hopefully others who have had the surgery can comment with their experience.
Hi there. I just had this surgery 2 wks ago today. Left side. I was told there is no down side to having this done. This is my 2nd surgery since late August. The first surgery they took one lymphnode to check it and it did have C. I DID experience some lymphedema with taking just the one. They said this was rare. With this 2nd surgery they took 7 lymph nodes and did the bypass, these were free of C. Post opp appt today surgeons say I’m healing very well. You will have to where a drain(s) more than likely. I’ve got 1 inplace and it will be removed tomorrow. Hope this info helps you. It is relatively new where I live it’s only been around about six months. Best of luck to you and God bless
Hello, I was diagnosed with breast cancer in 2020. They took 16 lymph nodes from me! My arm is swelling up and I’m feeling really bad. Starting to cry every day about my precious body… I would have NEVER recommended that amount of lymph nodes to be removed from my body… I know how hard I’ve worked to keep a healthy body, Not perfect but I try & struggle daily with being healthy.
Is there any hope for lymphedema????
I feel like fluids are invading my body.
I’m so upset as I type, tears are not stopping. I feel so violated also disgusted. This feeling is getting stronger.
Hello, I was diagnosed with breast cancer in 2020. They took 16 lymph nodes from me! My arm is swelling up and I’m feeling really bad. Starting to cry every day about my precious body… I would have NEVER recommended that amount of lymph nodes to be removed from my body… I know how hard I’ve worked to keep a healthy body, Not perfect but I try & struggle daily with being healthy.
Is there any hope for lymphedema????
I feel like fluids are invading my body.
I’m so upset as I type, tears are not stopping. I feel so violated also disgusted. This feeling is getting stronger.
My broken heart aches with you upon reading your post! I am so sorry for all you've been through, praying for you at this instance, my friend...
As my own experience goes: my kind-hearted PCP recommended that I see an Occupational Physical Therapist at my post surgery visit; and the wonderful OT/PT did an excellent job to relieve my pain and swelling, and taught me to do specific exercises going forward.. Perhaps you already did all these, tried lymphatic massage and compression therapy? Unfortunately I have no personal experience on surgeries for lymphedema;( Hopefully @cindycrea may share with us her experience of Lymph node transfer surgery last year or other members that went through the surgery for lymphedema may share with us their personal experiences, please?
I pray that you'll get help to relieve the pain soon. Surely our spirits and prayers are alongside you for better health and brighter tomorrow, my friend!
My broken heart aches with you upon reading your post! I am so sorry for all you've been through, praying for you at this instance, my friend...
As my own experience goes: my kind-hearted PCP recommended that I see an Occupational Physical Therapist at my post surgery visit; and the wonderful OT/PT did an excellent job to relieve my pain and swelling, and taught me to do specific exercises going forward.. Perhaps you already did all these, tried lymphatic massage and compression therapy? Unfortunately I have no personal experience on surgeries for lymphedema;( Hopefully @cindycrea may share with us her experience of Lymph node transfer surgery last year or other members that went through the surgery for lymphedema may share with us their personal experiences, please?
I pray that you'll get help to relieve the pain soon. Surely our spirits and prayers are alongside you for better health and brighter tomorrow, my friend!
@lifetraveler i appreciate your support… people that’s not dealing with these issues truly don’t understand how difficult living in these situations truly are. My entire look at life has changed, I think about depth more than a person ever should… enjoying life is forced from me when it shouldn’t be.
I pray for a miracle, I pray that this goes away, I’ve been crying for 3 days straight!! Omg.
You support for me means a lot.
And if I can help you (even though I’m at my lowest) I will, I’m not strong & im tired. Seems like I’ve been surviving all my life & im so tired of living in survival!
Thanks for your kind words I needed that.
@lifetraveler i appreciate your support… people that’s not dealing with these issues truly don’t understand how difficult living in these situations truly are. My entire look at life has changed, I think about depth more than a person ever should… enjoying life is forced from me when it shouldn’t be.
I pray for a miracle, I pray that this goes away, I’ve been crying for 3 days straight!! Omg.
You support for me means a lot.
And if I can help you (even though I’m at my lowest) I will, I’m not strong & im tired. Seems like I’ve been surviving all my life & im so tired of living in survival!
Thanks for your kind words I needed that.
Thank you so much for your kind words, for they truly encourage me more than you realize it! So you see? You already helped me without knowing it, my friend:)
I know you are exhaustingly tired dealing with all these pains, @gerjuanna, but please allow me to remind you that you are strong and you will overcome all these challenges in life with adequate treatment. I pray that the gracious Lord grants you faith, hope, wisdom and strength to seek out the best physicians to help you develop the best treatment plan for you to conquer all the pains that this disease brought us. We will continually keep you in our thoughts and prayers to walk with you (in spirit) through these rough patches in the journey of life.
You shall overcome, my friend; for the grace of God is sufficient for us all!
Hi there. I just had this surgery 2 wks ago today. Left side. I was told there is no down side to having this done. This is my 2nd surgery since late August. The first surgery they took one lymphnode to check it and it did have C. I DID experience some lymphedema with taking just the one. They said this was rare. With this 2nd surgery they took 7 lymph nodes and did the bypass, these were free of C. Post opp appt today surgeons say I’m healing very well. You will have to where a drain(s) more than likely. I’ve got 1 inplace and it will be removed tomorrow. Hope this info helps you. It is relatively new where I live it’s only been around about six months. Best of luck to you and God bless
I'm glad to hear that you're healing well. It must feel good to have had the drain removed. How are you doing now? What is one thing you wished you had known before the procedure?
Hello, I was diagnosed with breast cancer in 2020. They took 16 lymph nodes from me! My arm is swelling up and I’m feeling really bad. Starting to cry every day about my precious body… I would have NEVER recommended that amount of lymph nodes to be removed from my body… I know how hard I’ve worked to keep a healthy body, Not perfect but I try & struggle daily with being healthy.
Is there any hope for lymphedema????
I feel like fluids are invading my body.
I’m so upset as I type, tears are not stopping. I feel so violated also disgusted. This feeling is getting stronger.
My heart goes out to you. I only had 3 removed and am having lots of lymphedema issues. The best advise I can give you is to keep seeking out a good massage therapist that has knowledge of lymphatic massage. I go every other week and do what I can in between. I will never stop. It is the best thing for me. I have also tried and ,when it’s not too hot , use compression. It does help. I hope you have a major turn around and find the help you need.
My heart goes out to you. I only had 3 removed and am having lots of lymphedema issues. The best advise I can give you is to keep seeking out a good massage therapist that has knowledge of lymphatic massage. I go every other week and do what I can in between. I will never stop. It is the best thing for me. I have also tried and ,when it’s not too hot , use compression. It does help. I hope you have a major turn around and find the help you need.
@jkh Thank you for sharing!! I’ve been crying now for the 4th day I was fine until I logged onto this app and read all the messages lol, Very informational app, also a very emotional app. Omg you only had 3 removed 🥹 and you’re experiencing/experienced lymphedema… 16 nodes taken is serious… I pray for us all.
Thank you, I really really appreciate you speaking to me. ❤️
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Hi there. I just had this surgery 2 wks ago today. Left side. I was told there is no down side to having this done. This is my 2nd surgery since late August. The first surgery they took one lymphnode to check it and it did have C. I DID experience some lymphedema with taking just the one. They said this was rare. With this 2nd surgery they took 7 lymph nodes and did the bypass, these were free of C. Post opp appt today surgeons say I’m healing very well. You will have to where a drain(s) more than likely. I’ve got 1 inplace and it will be removed tomorrow. Hope this info helps you. It is relatively new where I live it’s only been around about six months. Best of luck to you and God bless
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3 ReactionsHello, I was diagnosed with breast cancer in 2020. They took 16 lymph nodes from me! My arm is swelling up and I’m feeling really bad. Starting to cry every day about my precious body… I would have NEVER recommended that amount of lymph nodes to be removed from my body… I know how hard I’ve worked to keep a healthy body, Not perfect but I try & struggle daily with being healthy.
Is there any hope for lymphedema????
I feel like fluids are invading my body.
I’m so upset as I type, tears are not stopping. I feel so violated also disgusted. This feeling is getting stronger.
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Helpful -
Hug
2 ReactionsHi! @gerjuanna:
My broken heart aches with you upon reading your post! I am so sorry for all you've been through, praying for you at this instance, my friend...
As my own experience goes: my kind-hearted PCP recommended that I see an Occupational Physical Therapist at my post surgery visit; and the wonderful OT/PT did an excellent job to relieve my pain and swelling, and taught me to do specific exercises going forward.. Perhaps you already did all these, tried lymphatic massage and compression therapy? Unfortunately I have no personal experience on surgeries for lymphedema;( Hopefully @cindycrea may share with us her experience of Lymph node transfer surgery last year or other members that went through the surgery for lymphedema may share with us their personal experiences, please?
I pray that you'll get help to relieve the pain soon. Surely our spirits and prayers are alongside you for better health and brighter tomorrow, my friend!
-
Like -
Helpful -
Hug
3 Reactions@lifetraveler i appreciate your support… people that’s not dealing with these issues truly don’t understand how difficult living in these situations truly are. My entire look at life has changed, I think about depth more than a person ever should… enjoying life is forced from me when it shouldn’t be.
I pray for a miracle, I pray that this goes away, I’ve been crying for 3 days straight!! Omg.
You support for me means a lot.
And if I can help you (even though I’m at my lowest) I will, I’m not strong & im tired. Seems like I’ve been surviving all my life & im so tired of living in survival!
Thanks for your kind words I needed that.
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Like -
Helpful -
Hug
5 ReactionsDear Gerjuanna:
Thank you so much for your kind words, for they truly encourage me more than you realize it! So you see? You already helped me without knowing it, my friend:)
I know you are exhaustingly tired dealing with all these pains, @gerjuanna, but please allow me to remind you that you are strong and you will overcome all these challenges in life with adequate treatment. I pray that the gracious Lord grants you faith, hope, wisdom and strength to seek out the best physicians to help you develop the best treatment plan for you to conquer all the pains that this disease brought us. We will continually keep you in our thoughts and prayers to walk with you (in spirit) through these rough patches in the journey of life.
You shall overcome, my friend; for the grace of God is sufficient for us all!
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2 Reactions@luckygodblessed62, what a helpful post for @dmosssadler.
I'm glad to hear that you're healing well. It must feel good to have had the drain removed. How are you doing now? What is one thing you wished you had known before the procedure?
My heart goes out to you. I only had 3 removed and am having lots of lymphedema issues. The best advise I can give you is to keep seeking out a good massage therapist that has knowledge of lymphatic massage. I go every other week and do what I can in between. I will never stop. It is the best thing for me. I have also tried and ,when it’s not too hot , use compression. It does help. I hope you have a major turn around and find the help you need.
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Like -
Helpful -
Hug
4 Reactions@jkh Thank you for sharing!! I’ve been crying now for the 4th day I was fine until I logged onto this app and read all the messages lol, Very informational app, also a very emotional app. Omg you only had 3 removed 🥹 and you’re experiencing/experienced lymphedema… 16 nodes taken is serious… I pray for us all.
Thank you, I really really appreciate you speaking to me. ❤️
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Helpful -
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