Surf is UP !!!! @@

Thank you so much for replying in detail. We are also being told that waiting wont change anything, but i do not believe it. We were also told that 30% of the time the cancer would be upgraded and that may not be because it has grown/spread but may be because the initial biopsy before surgery didnt get everyything there was. Just dont know what to do. We live in Canada and hence have no option but to wait 2 more months. Your posts have been very helpful and you have been a role model! Wishing you guys the best of luck for the future!

I understand your frustration, but I honestly think that the cancer was already 4+5 when you took the biopsy. Many cancers change the Gleason grade in the pathology, either up or down. The reason being that a 12 or 14 core Biopsy is simply too small a sample to hold much statistical power, hence is prone to errors. It’s like the BLS conducting its job market report based on 12 households surveyed.

Did you share your husband’s biopsy details? Upgrades are more likely in 3+3 or 3+4 biopsies, but downgrades are more common in higher risk cancers at biopsy.

*sigh, could be ...but he had only one 4+3 out of 14 and this upgrade happened in that EXACT spot where 4+3 was found during biopsy. Since biopsy was actually of so called "saturation" kind sampling in that single small lesion that he had on the right side of a prostate, I do not think that anything was "missed". Urologist even pointed to all cores taken in extreme close proximity around that 4+3 core which had 3+3 or LESS changes. 4+5 was found now in that EXACT small spot ! TOTAL tumor size is 6-10% of a gland, nothing was found in 90% - 94% of the gland with detailed examination of the whole gland taken out. So it is not like they all of the sudden found new spot that needle missed on a left side or different location. His whole tumor is that tiny spot but sooooo aggressive that it is mind boggling 🤯 ! That is for you cribriform and IDC ! And I just want to jump out of my skin when patients with indolent PC here start giving advice to cribriform and IDC patients to "just do surveillance" or "try focal therapy" as a blanket advice. 😨

Thanks Shalom for your kind words 💗. I can understand you anguish 100%. I do not know if your husband has cribriform or IDC in his pathology report, and if he does not than he is in much better position than mine , knock the wood 🧿. Only those crazy features tend to change and grow fast. Regular PC cells usually grow slow and perhaps he will be just fine. Please don't take my husband's weird PC history as good example, he is aberration both in PC type as well as in having bad luck with doctors 😢... Try to push your doctor to take him sooner, call every day and ask if there is any cancellation for surgery, maybe there will be 🍀

Yes, small but aggressive 😞. Did they tell you the percentage of pattern 5? It is usually reported as the secondary pattern if it is >=5% of the cancerous tissue. That might be an important metric moving forward. And I imagine that a small percentage of 5-10% inside a tumor that is only 6-10% of the gland can easily be missed at biopsy….

30% 5,
40% 4 , in that 6-10 % of tissue.
and gleason was it seems "upgraded" because maybe of IDC that is now confirmed and of it's high grade ?! It is said specifically that IDC feature was INCLUDED into grading.

DAY 6 !!!

Time flies, indeed 👍 ! Just 2 more days and cath. goes out 🙂. Not that it was a big problem, actually today couple of times we forgot that it is even there lol. For example, today at one point he started walking without picking up his trusty bag XP and felt a "pull in his pants" XP lol and than remembered that he is "on a leash" actually and can not just take off as he pleases 😆.

His pelvic floor is almost completely back to normal, he can sit in any position and on any surface with minimal feeling of any kind of discomfort.

Incisions are even thinner lines, honestly if he had his hairs back (they shaved him ) one would not be able to see anything even with magnifying glass. There is still some light brown bruising under bellybutton and bluish on the right side of his ribs - I have no idea why those on ribs are there, I hope they did not bang him of the gurney when they were sliding him from one bed to the other 😔.

His energy is back 100%. He went to bed at 1:30 am and got up at 7:30 am ( he usually needs just 6 or 7 hours of sleep unlike me ). He did not have a nap this afternoon. He is in good spirits regardless of pathology and jokes that I am silly to be upset about all those findings since they are all "CUT OUT" and thrown in a paraffin 😂, and that I am crying about things that are not inside him anymore 😜 which made me laugh and cry at the same time 🤣 lol.

All of the rest is looking good also, BMs, urine, blood pressure, etc, etc. , all normal and same as they were pre-op.
He had normal working day today, he works from home. His work buddies were happy to have him back and they all joked about his bag and all. He gave them friendly lecture about importance of PSA testing 👍.

I think we all did that - tell family & workmates about PSA testing - when we'd never heard of it ourselves, until all this happened.

He's doing well.
With the catheter out in a couple of days, it'll be tempting to go back to normal activities when he has that feeling of freedom again.
But he's still healing. No lifting until the surgeon has checked that the incisions are healing well.
Doing too much too soon will earn him another hospital visit.

Yes, I will have to watch him today like a hawk 😖 !!!
Just sent him out to the garden to have some sun and he returned back with a package form AMAZON that he found in front of the gate 😫 ! "It is not heavy" , were his words when he saw my panicked face - I mean HOW do you know it is not heavy IF you did not first try to pick it up and see how heavy it is "young man" !!!???? *sheeeshhhhh This man will be the end of me, honestly ... 😵‍💫 !!!