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Superficial Siderosis

Posted by alwaysgail @alwaysgail, Dec 15, 2018

I am desperate to find anyone familiar with this disease

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janeilene | @janeilene | Jan 28 12:46am

We had very little snow so were lucky.

I'm going to have to find another neurologist I think. I didn't have a very productive appointment yesterday. When I asked her to tell me about superficial siderosis she just said it's caused by brain bleeds and I shouldn't pay attention to Doctor Google. I told her I was getting information from this website (Mayo Clinic's website) and she had nothing to add.

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stevegrinstead | @stevegrinstead | Jan 28 9:29am
In reply to @janeilene "We had very little snow so were lucky. I'm going to have to find another neurologist..." + (show)
Profile picture for janeilene @janeilene

We had very little snow so were lucky.

I'm going to have to find another neurologist I think. I didn't have a very productive appointment yesterday. When I asked her to tell me about superficial siderosis she just said it's caused by brain bleeds and I shouldn't pay attention to Doctor Google. I told her I was getting information from this website (Mayo Clinic's website) and she had nothing to add.

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I am so glad that you see the light about your current neurologist @janeilene you are wasting your time with her and you don’t have any time to wast. I recommend Mayo Clinic Minnesota. Stick with the people that know all about SS.

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