Sudden Hearing Loss: What are options if steroids don't work?

Posted by m53 @m53, Sep 1, 2019

A family member experienced sudden hearing loss and was treated for wax build- up. On return to Dr., there was no improvement and a referral was made to ENT. Steriod treatment has not resulted in an improvement in hearing, and family member has been told it is unlikely hearing in that ear will be regained. It is now about 8 weeks since loss. Any recommendations as to specialists/treatment to pursue in the San Francisco area?

Interested in more discussions like this? Go to the Hearing Loss group.

@jlibe

In Sept 2021 I lost hearing in my left ear. I went to an ear dr. And he put me on steroids for a week.. I haven't been back. Steroids didn't help. Not totally deaf. Planning on going to a Audiologist clinic. The first dr said it was dark behind my ear drum..

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Hi @jlibe, I added your post to the Hearing Loss group too. I'm glad that you went to your doctor right away. Sorry the steroids didn't help. Was the hearing loss in your left ear sudden? When will you see an audiologist?

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@jlibe

In Sept 2021 I lost hearing in my left ear. I went to an ear dr. And he put me on steroids for a week.. I haven't been back. Steroids didn't help. Not totally deaf. Planning on going to a Audiologist clinic. The first dr said it was dark behind my ear drum..

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I should be going soon

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@jlibe

In Sept 2021 I lost hearing in my left ear. I went to an ear dr. And he put me on steroids for a week.. I haven't been back. Steroids didn't help. Not totally deaf. Planning on going to a Audiologist clinic. The first dr said it was dark behind my ear drum..

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Yes my hearing in left ear was sudden

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@jlibe

Yes my hearing in left ear was sudden

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Thanks for the additional information, @jlibe. I have moved your question about sudden hearing loss and what to do after steroids fail to this existing discussion.
– Sudden Hearing loss–options after steroids are ineffective? https://connect.mayoclinic.org/discussion/sudden-hearing-loss-options-after-steriods-are-ineffective/

I did this so that you can connect with other members who have had a similar experience like @mikepa @mtnyankee @dwi @aviorrok @eileen123 @nurseheadakes. You can also read their posts.

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Have you had any viral infections lately. The COVID virus has been noted to cause sudden lost of hearing also -either at the time of infection or thereafter. The hearing loss does not come back. Researchers are studying all of the side effects of this SARS-2 virus which includes many brain related side effects since it passes through the blood brain barrier and also gets through our respiratory system. If the steroids' don't help, then begin direct help with hearing loss evaluations, balance exercises, vision review and all things – brain assessments to be sure you know that all systems are functioning as they should. Often if one sensory system is off, the others also become injured or disrupted. Identify what symptoms you are feeling and when. Track these since they are different from what you have experience before. These need to be reported and given to the manufacturers if you suspect this is from the vaccines/covid virus. All manufacturers are studying these hearing loss stories and need this information IF you are one of them. I report my increased instances of Migraines, headaches and tinnitus to the manufacturer Pfizer so they can track my symptoms on a regular basis. If we don't do this – the numbers are skewed and reflect wrong statistics because the public neglects to be involved. Report everything to your doctors and press them to be involved. 50% is you and 50% is your healthcare providers. Your hearing health is in the line here…

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Went to a Audiologist today. I only have 12% hearing in left ear. See ent guy on

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@jlibe

Went to a Audiologist today. I only have 12% hearing in left ear. See ent guy on

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@jlibe, I moved your update to the discussion where you were sharing your story about sudden hearing loss. I'm sorry to hear that the audiologist confirmed that you only have 12% hearing in your left ear. How is your hearing in the right ear?

When do you see the ENT specialist? What are the next steps?

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@dwi

I had sudden hearing loss in one ear 8 years ago. I have been wearing Phonak bicros since my loss. I am considering the new Osia from cochlear. The feedback has been positive so for

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How much are these hearing aids.. My ent said a hearing aid for both ears one ear better than the other was my only option. Cochlear?

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@colleenyoung

@jlibe, I moved your update to the discussion where you were sharing your story about sudden hearing loss. I'm sorry to hear that the audiologist confirmed that you only have 12% hearing in your left ear. How is your hearing in the right ear?

When do you see the ENT specialist? What are the next steps?

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ENT said I should look into a hearing aid.. The one for both ears. So my right ear would guide my left.. Looking to see how expensive and how well they work

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@jlibe

How much are these hearing aids.. My ent said a hearing aid for both ears one ear better than the other was my only option. Cochlear?

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Not exactly sure what your diagnosis is. Is it only one ear that has major hearing loss? If the other ear is OK, your provider may be suggesting a bi-cross hearing aid system. In that system, the aid worn on the bad ear broadcasts to the aid on the 'good' ear.

If both ears have been diagnosed with hearing loss, you may need two aids, but with different settings to accommodate the degree of hearing loss in each ear.

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@jlibe

How much are these hearing aids.. My ent said a hearing aid for both ears one ear better than the other was my only option. Cochlear?

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I had micros hearing aids for a while and they worked well then I was not getting stimulation in the bad ear's nerve so I got a Cochlear implant in my bad ear and have a hearing aid in my good ear. I can hear pretty well in most situations. It did take some time to adjust to the Cochlear implant. Make sure that you get one that can handle MRI's and can bluetooth to your phone.

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@mikepa

@sjd324 Did your audio or ENT send you for an MRI to rule out an acoustic neuroma? This happened to my wife 2 years ago when I was at the Salt Lake City HLAA convention. My wife woke up that morning and sent me a text to call her ASAP. She said she woke up with loss of hearing in one ear. Fortunately I was surrounded by experts at the convention. I found an ENT who said to immediately get to an ENT for steroids and an MRI. They gave her another drug but I can't remember what it was. By getting on the steroid right away, the inflammation of the neuroma, which had been pushing on her hearing nerve, reduced within several days and she has been fine since. Since her neuroma was small, we just go back every year to see if it has grown much. They are usually slow growing.

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Can your wife recall the name of the medication? Was it something other than Prednisone,?

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