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Is there anything to help stop or slow progression of MGUS?
I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a lot to learn. My oncologist said there is nothing that can be done. Also could some of you share how long you have had MGUS. I am like I’m sure like all of you very concerned about my MGUS processing. Thank you.
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@nboulet, claims about ivermectin have been circulating a lot in the news and on social media for the past few years now. Ivermectin should not be used to clean the body or to treat MGUS. Always check the source of information your find and make sure it is coming from a trusted, evidence-based medical source.
Here's more info:
Ivermectin is used to treat river blindness (onchocerciasis), intestinal infection from threadworms (strongyloidiasis), and other kinds of worm infections. Ivermectin is an anthelmintic. It works by interfering with the nerve and muscle functions of worms, by paralyzing and killing them. This medicine is available only with your doctor's prescription; More from Mayo Clinic: https://www.mayoclinic.org/drugs-supplements/ivermectin-oral-route/description/drg-20064397
Ivermectin is not a proven standard treatment for cancer.
While pre-clinical trials (mice studies) show promise, the use of ivermectin alone for cancer control in humans has not yet been tested in human trials. Researchers are actively studying the use of ivermectin in combination with other drugs.
Important
It is NOT safe to take ivermectin used in veterinary medicine. Please talk to your doctor before taking any over-the-counter medications or supplements that claim to fight or cure cancer.
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1 ReactionI would not use it. It says it is used for parasites and worms. That is not MGUS. Suggest talking to your MD and stay away from questionable treatments. Ivermectin is for what it says it is for and definitely not MGUS. It could really cause many complications. It was advised in the last few years by non qualified conspiracy theorists who were advising it cures almost everything. Do not listen to conspiracy. This is a pre cancerous disease. Stick with conventional medicine and some palliative care i.e. massage etc.
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2 ReactionsDoes anybody have any thoughts using ivermectin, oral paste, any benefits? It is apparently used for parasites & worms. I’m told it helps clean the body. I do not have warm issues.
LDH is a marker of cell inflammation. Most likely, my LDH was originally high due unrelated injury. I was considering a PET scan to check MGUS progression like bone lessons, but don't want the radiation exposure. My theory is with normal LDH, I'll just check the area where I have pain with a MRI.
I am very concerned too. I was diagnosed about 6 months ago.
I don’t think my LDH was tested with the other MGUS tests can that be. What is the LDH? Glad yours is normal now.
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1 ReactionThanks
Most all oncologist add the label hemotologist. I work with a “blood” pathologist. They are few and hard to find out of academic circles. My favorite is Dr Thomas Hirose at UCIrvine
@amyboylan1
I sure will. I don’t look at my chart. I’d rather be in the room with my hem/onc doc so I’ll see him on 1.2. Will post.
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2 ReactionsAbout 6 years ago I would meet with Canadian snow birds in the US. My understanding was they had insurance that paid for their out-of-country Healthcare. So they would get everything taken care of in the US. After a certain age the insurance prove was too high for them to travel down.