Connect
Is there anything to help stop or slow progression of MGUS?
I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a lot to learn. My oncologist said there is nothing that can be done. Also could some of you share how long you have had MGUS. I am like I’m sure like all of you very concerned about my MGUS processing. Thank you.
Like
Helpful
HugInterested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
Connect
@theadosi
The length you had MGUS to the time you converted to SMM.
Sorry I wasn’t clear.
@jellyboo, I see you wanted to post a link for @1oldsoul to the research. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe.
Allow me to post it for you:
- A High-Fiber Dietary Intervention (NUTRIVENTION) in Precursor Plasma Cell Disorders Improves Biomarkers of Disease and May Delay Progression to Myeloma https://ashpublications.org/blood/article/144/Supplement%201/671/530290/A-High-Fiber-Dietary-Intervention-NUTRIVENTION-in
@1oldsoul, can you access the PDF?
-
Like -
Helpful -
Hug
4 Reactions@1oldsoul try this (get rid of the words 'dot' ) ashpublications dot org/blood/article/144/Supplement%201/671/530290/A-High-Fiber-Dietary-Intervention-NUTRIVENTION-in
@paula0
Has anyone been able to see the results of the study without paying $50? The link takes you to register, which I did but then states you must pay $50 for a 24 hour access to the article!
@madkm hey there. Sorry, what did you mean almost the same? I’m in Canada and not aware of any studies at the moment. Would be curious to learn more!
It may be the MSK study and I may have been wrong about DF…. it has been 2 years since he mentioned to me? He was very excited about it. He was at Emory and now he’s at Fred Hutchinson. Such a fabulous doctor, we all miss him in Atlanta.
@hsminc Website describing the Sloan study:
https://www.mskcc.org/news/diets-for-mgus-smoldering-myeloma-and-multiple-myeloma-q-with-msk-cancer-and-nutrition-experts
-
Like -
Helpful -
Hug
1 Reaction@tracypage The study was listed under "Spark Cures". SparkCures is a myeloma and MGUS website that lists studies at major centers that are recruiting patients. I believe their goal is to get participation in research studies. Many of the studies do not require that you be in the center "AREA" to participate.
I believe Sloan also did a similar study and I wonder if the results and the foods used would be available. Sloan published the results of their study, which I remember as being positive.
-
Like -
Helpful -
Hug
2 Reactions@theadosi
I am almost the exact same with MGUS 3.5 years ago and now advancing to Smoldering MM. do you plan to participate in any early treatment available through a study? I am considering
Possibly, there is a study (if it has not been discontinued with NIH funding issues) led by Dana Farber I think, looking at nutritional management. The idea is that certain diets might show some substantial benefit in managing progression. I believe they are focused on plant based diets. I had a long talk with my hematologist who wanted to know if I was interested in participating but then he moved on to another hospital when research funding at his institution came under threat.
He was not a lead on the study but partipating.