Stopping Evenity Early

I think that may be FRAX score.

Sorry, the link is not cooperating.

See report

sbcher, Thanks for explaining. That does make it sound scary. I can empathize with your reaction to the results.

You made me really curious to know what qualifies as "FRANK stage."

I was on a mission to find the answer. After struggling to find a clear explanation online, I turned to ChatGPT for some insights. Surprising me, the AI described "frank" in medical terms as indicating that a condition or finding is unmistakable, obvious, or clearly visible on examination or diagnostic tests. Essentially, it's like when we use the phrase "To be quite frank," meaning straightforward and clear.
I had a little chuckle because I initially thought it was a technical stage or measurement. The term "frank" simply reflects how clearly our osteoporosis shows on our DEXA results, rather than indicating a stage or severity on its own.
Reflecting on my own experience, even though it wasn’t described using the word, my DEXA results also showed "frank" osteoporosis. I distinctly remember the radiology tech's reaction while doing my first DEXA scan—her expression said it all, even though she couldn't say anything.
So, your explanation wasn't off the mark. In the context of DEXA results, "frank" does signify the seriousness of the condition.
Thanks again! 🙂

I had high calcium in my blood. It turns out it is a symptom of a parathyroid problem. I had one of four removed in Tampa by Dr Norman a specialist in this area.

I had parathyroid surgery but no bad glands were found so I know that's not the reason. Thank you for the info though.

Are you taking anything for your Osteoporosis? Reclast isn't working for me. Doctor is suggesting Evenity. I'm not liking the comments.
TIA

Yes. Also, you can become his patient, via telehealth. I feel like I am in great hands with Dr. McCormick. After 2 shot of Evenity, I got constant headaches and intense joint pain. Completed 3 shots then called it quits. That was 6 weeks ago and those adverse events have not subsided. It's impossible to know for sure if these symptoms are Evenity related or not. Would love to know how long it takes to get over symptoms. I have heard 60 days.

That's my question too. I stopped 6 weeks ago. Am told it could take 2 months or more. Meanwhile, intense, constant headaches and joint pain, shoulders, hips, and knees.

I’m 72 with a history of parathyroid and thyroid issues. Initially I was on Prolia for 3 yrs, but then I displaced L4-5 due to a fall. The surgeon wanted me on a better bone building med. I’ve been on Evenity for 7 months now. Prior to that I took Tymlos with too many significant side effects thus the switch. I’ve had minimal side effects with Evenity now- possibly increased arthritis pain but more manageable than tymlos. My most recent Dexa showed 10% improvement in Lumbar spine but significant decrease in left femoral neck - 19%. Everyone is different and it’s a crapshoot!

I, too, had lots of side effects…the most common ones,
as well as some that were obscure. I gave up after the 5th set of injections. My quality of life had been very adversely affected. (I have osteopenia in my spine and osteoporosis in my hips. Evenity is the first osteoporosis drug I have taken. It will be my last.) My last set of injections was March 27, 2025.
Although side effects persist, I am doing much better. I spoke to the pharmacist associated with my insurance plan’s prescription program. To the best of my understanding, he said it might take me until late June or early July before Evenity side effects were completely out of my system. I sure hope it is sooner than later. While taking Evenity, I
felt like I needed assisted living. I had difficulty walking and my balance was affected due to stiffness and muscular/joint discomfort and pain. Actually,
my husband did everything for me…cooked, cleaned. I hurt from my neck to my toes. I had mouth sores, terribly chapped lips, gum sensitivity above my upper teeth and below my lower teeth. The level of fatigue was intense. That could be due to constantly disrupted sleep because of joint and muscle pain that would strike in the middle of the night. I also had tinnitus and had an appointment scheduled with an ENT, but it seems to have left as quickly as it came on. Prior to Evenity, I was an extremely healthy 77 year old woman. I take no medication except synthroid. I do have osteoarthritis, but take no medication except Tylenol, as needed. I have had no fractures. This attempt to make my bones stronger has upended my life, robbing me of any quality. I share all this because most people (fortunately) do not suffer from all these side effects. I wanted those who do not breeze through taking Evenity to know that they are not alone.
Friends who have been through chemo therapy tell me that what I described is how they felt on chemo. The EOB form from my insurance company notated Evenity as chemo therapy. I ignored it, thinking surely not..that must be a blanket term that they use for the injections I was receiving.