Completed 5 years of anastrozole. Withdrawal symptoms? Side effects?

Posted by christinej @christinej, Jul 24, 2018

Monday, July 23rd, after consulting with Dr. Loprinzi, we decided to have me stop taking anastrozole. (Arimidex). It has been 5 years since I started the drug after breast cancer surgery and radiation. Has anyone stopped this drug and had any withdrawal symptoms? The nurse from Blue Group sent me an email today saying that there are no withdrawal symptoms after stopping this drug. Soooooooooooooo, is this all in my head? Definitely having some type of withdrawal.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Seems like as time goes by they know more... I found this article and the vaginal thing is happening to me, with a complete hyssy in 2002. 🙁 So its not in my head, and the Onc seemed defensive" we didnt cause it" !
Well, no, but the drug did, cant wait to get past the symthoms. mayo clinic has an atricle that lists more things we may feel

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Profile picture for rosy54 @rosy54

Hi….. I was on anastrozole for 5 years for breast cancer. My doctor told me to stop taking it after 5 years there’s no value to continue.
I’m suffering from memory problems and worried I’m developing dementia because of it. I’ve often wonder if there’s a connection with taking anastrozole for too many years and now suffering with memory loss issues. I’m worried at 68 yrs if my memory will get worse😢

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brain fog is one of the side effects here too, but MD says it will improve now that i stopped taking it. Hoping the blood pressuer and weight will go back some too

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Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome to Connect, @christinej
I'm tagging a few other members who have mentioned taking anastrozole for some time such as @wandering @susanao1 @itskeenerific @judymroz @cindylb @chamisaand @berit. I'm not sure if all have finished AI treatment.

Christine, what symptoms are you experiencing?

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Hello, I have been on anastrozole for ten years. If you work out daily and change your diet, it. It would help with the side effects; we all have gone through the storm, put your faith. In the Lord, live daily according to his will and be blessed. Live every moment as a blessed day. I am alive with a smile, so don't let fear get in our way. Just be happy and keep moving. I welcome myself to the family, Delores.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @muzikmom66, sounds like you should talk to your doctor about the bloating and cramping. It could very well be your body adjusting, but I say it is better to be safe than sorry.

Have you noticed the bloating and cramping lessening these past few days? Any other changes?

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Good morning!
The bloating and cramping is subsiding.
Thanks for your reply.
Regards,
Betty

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Profile picture for muzikmom66 @muzikmom66

I took anastrozole.fpr 5 years and just stopped a couple weeks ago. I am experiencing menstrual type bloating along with mild cramps. I never had any problems while on the drug. I sincerely hope this is temporary.

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Hi @muzikmom66, sounds like you should talk to your doctor about the bloating and cramping. It could very well be your body adjusting, but I say it is better to be safe than sorry.

Have you noticed the bloating and cramping lessening these past few days? Any other changes?

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Profile picture for sandyjr @sandyjr

After five years, I just stopped taking anastrozole. I didn’t realize it when I was taking it because I didn’t think I had any negative reaction to it but I am feeling more clearheaded. I am questioning if it affected my mental abilities. I’m not making as many mistakes as I did, my mood seems to be better Thinking back on it now I was actually wondering if I was headed towards senility… I am in my 70s. I am going to think I am feeling more mentally like I did before this whole disaster. Has anyone else had this feeling of being more aware and on the ball?

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Yes my mind is clearer. I am not as tired. I am 75 so I didn’t realize how many side effects were age related. No more diahrea is the best post anastrazole relief. Good luck.

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After five years, I just stopped taking anastrozole. I didn’t realize it when I was taking it because I didn’t think I had any negative reaction to it but I am feeling more clearheaded. I am questioning if it affected my mental abilities. I’m not making as many mistakes as I did, my mood seems to be better Thinking back on it now I was actually wondering if I was headed towards senility… I am in my 70s. I am going to think I am feeling more mentally like I did before this whole disaster. Has anyone else had this feeling of being more aware and on the ball?

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I took anastrozole.fpr 5 years and just stopped a couple weeks ago. I am experiencing menstrual type bloating along with mild cramps. I never had any problems while on the drug. I sincerely hope this is temporary.

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Profile picture for peaches2 @peaches2

I too just finished taking Anastrazole after years and having incredible fatigue. Is it related to stopping?

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I am in week 4 and still feel terrible! I definitely think it is related.

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Profile picture for nanna1948 @nanna1948

I am off anastrazole after five years first and second week exhaustion. Now third eeek. Much better. Hang in there. Yeah no diahrea

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That is good! I am in week 4 and feeling worse--nausea, weakness, extreme exhaustion, and I even fainted once. I hope I get to feeling better soon!

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