Completed 5 years of anastrozole. Withdrawal symptoms? Side effects?

Posted by christinej @christinej, Jul 24, 2018

Monday, July 23rd, after consulting with Dr. Loprinzi, we decided to have me stop taking anastrozole. (Arimidex). It has been 5 years since I started the drug after breast cancer surgery and radiation. Has anyone stopped this drug and had any withdrawal symptoms? The nurse from Blue Group sent me an email today saying that there are no withdrawal symptoms after stopping this drug. Soooooooooooooo, is this all in my head? Definitely having some type of withdrawal.

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Do any of you pink queens know if it is fine to take vital protein collagen peptides daily if your on Anastrozole? I’m estrogen positive. I’ve been taking collagen for years and it helps with hair and nail health. If the blocker is suppose to deplete estrogen totally from the body will this product increase estrogen? Thanks

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Profile picture for joulibarrigmailcom07 @joulibarrigmailcom07

I went off my anastrozole about 3 weeks ago after 7 years, and started feeling horrible. Couldn't figure out why. My daughter just realized it started happening when I went off it. Makes sense now, started to get scared. The fatigue, horrible body aches, incontinence, weakness. I can hardly wait to feel better

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I had no withdrawal symptoms when I went off anastrazole after five years. Just no more severe diahrea. Little hair loss now. With the help,of WW was able to lose weight

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Profile picture for Miriam, Volunteer Mentor @mir123

If this was me, I'd check in with my primary care doc as all of these symptoms sound like they might also be an unrelated infection--viral or bacterial. That is, if you have a flu-like illness or even an atypical UTI you'd have these symptoms. If you are not additionally ill, the doctor might have advice too if this is the anastrozole. Personally, I have come off my AI for brief "vacations" and never had symptoms. Wishing you the best!

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I see my doctors, both my oncologist and gp regularly, so I'm very confident these are withdrawal symptoms. I don't know how long your"vacations" are, but I wish you the best, when you are taken off the anastrozole. It's not fun.

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Profile picture for joulibarrigmailcom07 @joulibarrigmailcom07

I went off my anastrozole about 3 weeks ago after 7 years, and started feeling horrible. Couldn't figure out why. My daughter just realized it started happening when I went off it. Makes sense now, started to get scared. The fatigue, horrible body aches, incontinence, weakness. I can hardly wait to feel better

Jump to this post

If this was me, I'd check in with my primary care doc as all of these symptoms sound like they might also be an unrelated infection--viral or bacterial. That is, if you have a flu-like illness or even an atypical UTI you'd have these symptoms. If you are not additionally ill, the doctor might have advice too if this is the anastrozole. Personally, I have come off my AI for brief "vacations" and never had symptoms. Wishing you the best!

REPLY
Profile picture for joulibarrigmailcom07 @joulibarrigmailcom07

I went off my anastrozole about 3 weeks ago after 7 years, and started feeling horrible. Couldn't figure out why. My daughter just realized it started happening when I went off it. Makes sense now, started to get scared. The fatigue, horrible body aches, incontinence, weakness. I can hardly wait to feel better

Jump to this post

I tapered. Maybe that would help-?

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I went off my anastrozole about 3 weeks ago after 7 years, and started feeling horrible. Couldn't figure out why. My daughter just realized it started happening when I went off it. Makes sense now, started to get scared. The fatigue, horrible body aches, incontinence, weakness. I can hardly wait to feel better

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I reached my 5 years last November and stopped taking the drug. My digestive issues stopped after 9 days. My insomnia is slowly resolving, but I have a bit to go. I switched from anastrozole to exemestane 4 years ago - so my joint pain was minimum already. So I'd have to say most if not all of my side effects from the drug have gone away. Best wishes to all of you.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@2scottymom, I noticed that you wished to post a URL to an article with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe.

Allow me to post it for you:
- Anastrozole (Oral Route) https://www.mayoclinic.org/drugs-supplements/anastrozole-oral-route/side-effects/drg-20061868

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Thank you for posting it, I am having some in the less common catagory, may help others to know its possible to be from getting off the pill

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Profile picture for 2scottymom @2scottymom

brain fog is one of the side effects here too, but MD says it will improve now that i stopped taking it. Hoping the blood pressuer and weight will go back some too

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I had no withdrawal symptoms just felt better stomach issues are gone hair loss’s slow down as well as weight gain. Congratulations you made it five years

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Profile picture for 2scottymom @2scottymom

Seems like as time goes by they know more... I found this article and the vaginal thing is happening to me, with a complete hyssy in 2002. 🙁 So its not in my head, and the Onc seemed defensive" we didnt cause it" !
Well, no, but the drug did, cant wait to get past the symthoms. mayo clinic has an atricle that lists more things we may feel

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@2scottymom, I noticed that you wished to post a URL to an article with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe.

Allow me to post it for you:
- Anastrozole (Oral Route) https://www.mayoclinic.org/drugs-supplements/anastrozole-oral-route/side-effects/drg-20061868

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