Still frustrated about blurry vision from GCA

I am frustrated that no vision test or specialist can confirm my blurry vision from GCA. I’ve been to an ophthalmologist, vascular neurologist, and as of today a neuro-ophthalmologist.

Don’t get me wrong, I’m happy no test is showing a problem with my vision, but also frustrated there is no still no definitive confirmation or explanation for my blurry eyes, except that it could be from GCA (even that isn’t a definitive diagnosis, just a suspected one because I had a negative biopsy, which could still mean you have it). Rheumatologist also suspects PMR and really hasn’t ruled out other autoimmune diseases, but focus are GCA and PMR right now.

I had high hopes/expectations that the neuro-ophthalmologist would have answers today. After he was ready to send me off because he found nothing wrong, I pressed for what he thought about my blurry eyes, he suggested trying dry eye drops or maybe checking if I need new prescription eye glasses.

After I left the doctor I realized he checked my vision and my glasses (and so did ophthalmologist), wouldn’t they know and tell me if I needed a new prescription?! And between the ophthalmologist and neuro ophthalmologist, if I had dry eyes, wouldn’t they know and tell me?

I took it upon myself to start using drops for dry eye a while ago because I heard it couldn’t hurt, haven’t seen improvement, but maybe I need to use them more regularly.

My eyes have been blurry since I started this autoimmune disease journey in October 2024. They have been worse the last few days (recently down to 20mgs prednisone). I was actually happy I was going to neuro ophthalmologist when my eyes were blurry today, hoping he would see or find something.

I feel the need to get to the bottom of it, but is it pointless? Should I just accept there is no rhyme or reason behind it? What if there is some other autoimmune disease or a completely different diagnosis that could explain it or that there is a different treatment for that is not being considered? Any suggestions? Anyone relate?