Starting Tymlos..

Posted by daisylou @daisylou, Jan 15, 2025

I tend to overreact to meds and often get the side effects. I do better if I start with a baby dose and work my way up. What would be a good dose to start with? I will have the first dose in the doctor’s office. Do I understand correctly that this is done with how many clicks you give it?
I already have heart palpitations and take a beta blocker for that , starting half a year ago. I am thinking I can up the dose of the beta blocker if I get increased palpitations. Anyone else given a beta blocker to manage palpitations?
One last thing. My calcium level was abnormally high, despite my hyperthyroid numbers being normal. The Dr ordered additional tests to rule out some other things and I haven’t heard back yet. Has anyone else had high calcium without being on a med that caused it? I can’t start the Tymlos till this gets sorted out .

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Profile picture for patst @patst

@njx58 thank you so much. Its all so confusing as to all the steps i need to do, & i’m not getting much guidance from endocronologist, other than to order & start full dose of Tymlos. He said nothing about testing, so i guess i’ll have to call & ask his nurse.

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@patst I recently finished a two-year course of Tymlos. Here's what we did:

1. Baseline DEXA and blood tests (including P1NP, CTX, calcium, PTH)
2. Follow-up blood tests at three months, six months, nine months
3. DEXA at one-year mark, plus blood test
4. Blood test at 18 months
5. DEXA at two-year mark. Blood test. Start Fosamax.
6. I will have a blood test three months into the Fosamax treatment just to monitor.
7. DEXA probably every year.

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