At a Loss – Severe Abdominal Pain and No Answers

Posted by hgarm @hgarm, Jan 21, 2019

It has been a very rough month. I started having severe pain in my upper abdomen a week before Christmas. 2 days before Christmas I had my appendix removed and then 3 weeks later my gallbladder removed (they believed this to be the cause of all of my pain) ever since I have been having severe stomach pains that ate worse then the pains I started with. I have lost almost 22 pounds in a month due to the inability to eat and I feel as though I am wasting away. I am feeling so hopeless and so depressed and I just don’t know what to do anymore because doctor’s seem to be at a loss while my pain just keeps growing. I have never felt this down before and I don’t know what to do about it

@parus

On the topic of not giving up. There are times we want to give up when we are continually invalidated. I have been facing this and it is an endless struggle. I have to have some kind of help with the head/neck/shoulder pain that is worsening. Have asked for a referral to an ortho doctor as I am still optimistic. A pain specialist does not refer. Decided to try with primary for a referral. Insurance is and obstacle most of us deal with. I have a grandson and he needs this non-drama grandma.
all I can do is ask. When I go to the pain specialist I leave feeling like a criminal. Hoops, hoops, hoops because of the real criminals.

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@parus, It is so unfortunate that people with chronic pain cannot be taken seriously by the medical community. I don't know what can be done about it either. So very frustrating. I hope that you are able to get that referral to an ortho person.

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@parus

On the topic of not giving up. There are times we want to give up when we are continually invalidated. I have been facing this and it is an endless struggle. I have to have some kind of help with the head/neck/shoulder pain that is worsening. Have asked for a referral to an ortho doctor as I am still optimistic. A pain specialist does not refer. Decided to try with primary for a referral. Insurance is and obstacle most of us deal with. I have a grandson and he needs this non-drama grandma.
all I can do is ask. When I go to the pain specialist I leave feeling like a criminal. Hoops, hoops, hoops because of the real criminals.

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@parus– Wont a pcp prescribe pain meds?

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@hopeful33250

@parus, It is so unfortunate that people with chronic pain cannot be taken seriously by the medical community. I don't know what can be done about it either. So very frustrating. I hope that you are able to get that referral to an ortho person.

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@parus Hi parus zI agree with Theresa The last time I went to my pain Dr it only lasted one day and the 2injections he gave me hurt ,before I could stand them .Ask Dr for Orthopedic referral I have to whe.n I see my Dr

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Hi, @hgarm – since this conversation has talked about feeling hopeless due to ongoing digestive issues, I wanted to let you know I changed the discussion title to “Starting to feel hopeless: Digestive issues unresolved.”

Many members, like @enska, @lioness, @gailb, @parus and others have offered good advice, as have members in the Digestive Health discussions.

You mentioned that to get into a digestive diseases/GI specialist, you will have to wait to get a referral, and your appointment with your general practitioner isn’t till mid-Feb. You also talked about being a student. Would you have access to a student health center that may be able to see you sooner? How are you feeling today?

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@lioness

@hgarm I'm so sorry I wish I knew what to tell you but when you see your Dr ask him for a referral for Gastro Dr Are you near to Mayo Clinic in your area

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Saw my doctor today he gave me a referal to a gastro, a pain management and a family doctor. I also have to go see a therapist on Monday as they are worried about my mental health

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@lisalucier

Hi, @hgarm – since this conversation has talked about feeling hopeless due to ongoing digestive issues, I wanted to let you know I changed the discussion title to “Starting to feel hopeless: Digestive issues unresolved.”

Many members, like @enska, @lioness, @gailb, @parus and others have offered good advice, as have members in the Digestive Health discussions.

You mentioned that to get into a digestive diseases/GI specialist, you will have to wait to get a referral, and your appointment with your general practitioner isn’t till mid-Feb. You also talked about being a student. Would you have access to a student health center that may be able to see you sooner? How are you feeling today?

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Saw my doctor (surgeon) today and he has refered me to a few doctor's a gastro, a pain management and a family practitioner I get to see that doctor February 6th so I am hoping there will be some help coming my way. I will also be seeing a therapist on Monday morning because they are worried about my mental health. I am looking forward to talking to someone about what's going on

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@parus

On the topic of not giving up. There are times we want to give up when we are continually invalidated. I have been facing this and it is an endless struggle. I have to have some kind of help with the head/neck/shoulder pain that is worsening. Have asked for a referral to an ortho doctor as I am still optimistic. A pain specialist does not refer. Decided to try with primary for a referral. Insurance is and obstacle most of us deal with. I have a grandson and he needs this non-drama grandma.
all I can do is ask. When I go to the pain specialist I leave feeling like a criminal. Hoops, hoops, hoops because of the real criminals.

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I can understand your pain no doctor's will give me pain medicine either even though it is clear I am suffering. I hope your doctor gives you something to help with your pain, being in pain and not knowing what to do about it is the worst

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@merpreb

@parus– Wont a pcp prescribe pain meds?

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@merpreb The PCP in this medical group no longer prescribe controlled substances. I do have the Gabapentin which I take when the fibromyalgia stuff becomes too uncomfortable. I don’t like taking it very often as it can make me wiggy if taken regularly. It had me messed up at one time. I asked for a lower dose and this helped. Are there any other pain meds that are not narcotics??

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@hopeful33250

@parus, It is so unfortunate that people with chronic pain cannot be taken seriously by the medical community. I don't know what can be done about it either. So very frustrating. I hope that you are able to get that referral to an ortho person.

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It is discouraging. I am looking for causes and
if there is something that can be done to help with the pain. I feel like up to now I have not been taken seriously. They see depression/anxiety in my chart and imply it is the depression causing pain. Needing X-rays on my spine. These bandaids are not enough as I believe the pain can be managed better. Time to work on my self advocating skills some more. It is easy to get discouraged.

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@hgarm

I live in a rural area so it's about a half hour to the nearest ER which is connected to a hospital. I have been to the ER 4 times in the past month 2 of those times they took out an organ and the other two times they just sent me home saying there was nothing emergent about me.
I don't know what else I can do because non of the doctors seem to care and my medical bills ate just growing because my insurance charges 300 per ER visit. Plus the hospitalizations.
I am only 28 so I don't think I qualify for Medicare or Medicaid

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@hgarm.
You can get Medicaid provided you don't make too much money. It's not about age. Medicare is age related. Check out Medicaid in your state.

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@parus

@merpreb The PCP in this medical group no longer prescribe controlled substances. I do have the Gabapentin which I take when the fibromyalgia stuff becomes too uncomfortable. I don’t like taking it very often as it can make me wiggy if taken regularly. It had me messed up at one time. I asked for a lower dose and this helped. Are there any other pain meds that are not narcotics??

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@parus

I took Tramadol 50 mg. I think that can still be prescribed but who knows now. I was dependent on it, but never had to increase the amount I took. It worked well for my pain. Check with your physician about it. Good luck Parus.

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@hgarm

They did CT scans each time I went to the ER and said everything was normal. Even though I told them something is wrong they just sent me home and said it wasn't emergent

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@hgarm

In order to get a real look at your pancreas, you have to get a special ultrasound or MRI. Pancreatic problems are hard to see and the person doing the test must be experienced and trained for that. As @lioness asked, are you reasonably close to a Mayo Clinic? How are you today?

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