Starting Radiation tomorrow

Posted by johndavis60 @johndavis60, Sep 16 9:09am

Hi All, starting radiation tomorrow. 38 sessions. Other than full bladder, empty bowels, and get there on time, any suggestions from those who have been through this?

Also, I’m on Firmagon and abiraterone. No side effects yet. I watch my blood pressure, still good.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for surftohealth88 @surftohealth88

Wow - I would expect more from that institution, but again, I would not be surprised that the same treatment is at all UCs. *sigh So far I am not happy with our UC organization either : (.

Wishing you the best of luck and great success with cancer eradication 🍀🍀🍀

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I don’t mean to imply dissatisfaction with the quality of care. I am confident it is top notch. Just would have liked a bit more warmth from the ancillary staff. Sadly health care has become less humanistic even as the science has improved. It’s the way of the world these days.

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Profile picture for ucla2025 @ucla2025

Thanks for the heads up. My husband had his prostatectomy at the Westwood location. Rising PSA so radiation is likely next on the menu.

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Well good luck to you and your husband. UCLA is top notch even if the experience could be more warmly delivered … I’m afraid that is becoming the way of healthcare these days .

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Profile picture for madisonman0326 @madisonman0326

That’s great! To be honest, my side effects weren’t all that bad - urinary urgency, diarrhea, some fatigue - but nothing severe enough to prevent me from doing what I wanted.
Two weeks after my 30 sessions ended, I biked the Peninsula Century (101 miles) and finished in 6h13m, slower than previous times but acceptable considering radiation left me severely anemic. I had two friends riding with me, prepared to call the sag wagon if I faltered but I finished strong.

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Madison, what type of seat did you use? I was told not to bike ride for at least 2-3 months after radiation. Did you have much tenderness during and after the ride?
BTW, my effects after radiation (July 30th or close to that) and even with ADT are minimal. I get urgency sometimes and I found that if I hold it back it may go away sometimes. For the first time, I just about pee'd myself the other day, it was close.
I don't think I get fatigue from the radiation, but the lack of testosterone sure makes it tough to get started in the mornings. One thing that I thought i would lose with the hormones is looking at pretty women, well that hasn't happened, they still are just as pretty! Just can't do anything about it.

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Profile picture for bonanzaman @bonanzaman

Madison, what type of seat did you use? I was told not to bike ride for at least 2-3 months after radiation. Did you have much tenderness during and after the ride?
BTW, my effects after radiation (July 30th or close to that) and even with ADT are minimal. I get urgency sometimes and I found that if I hold it back it may go away sometimes. For the first time, I just about pee'd myself the other day, it was close.
I don't think I get fatigue from the radiation, but the lack of testosterone sure makes it tough to get started in the mornings. One thing that I thought i would lose with the hormones is looking at pretty women, well that hasn't happened, they still are just as pretty! Just can't do anything about it.

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I ride a TREK Domane SL5, a purpose built endurance bike. The saddle is split with a groove down the middle which minimizes contact with delicate anatomy.
I previously rode a Cannondale Super six Evo which was fast but rode as hard as something from the Flintstones.
Distance riding is all muscle memory anyway so it’s not difficult to finish so soon after treatment.

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I went through 5 weeks of daily external beam IMRT radiation and found laxatives useless to clear my bowels. However, I quickly used one cup of coffee on my drive to the hospital and it did the job every day.

To ensure full bladder I drank a large 33 oz bottled SMART water on the way as well and had 100% full bladder for every treatment. I was never sent out of the treatment room to drink more water as I observed many other patients doing. Only catch on the full bladder if if one of the IMRT machines goes down causing delays which is an issue with a 100% full bladder.

All in all, I found the IMRT treatments to be very tolerable

Good luck

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Profile picture for xahnegrey40 @xahnegrey40

yes, well I got my spacer today- same exp as you...4 people in the room...tape up your junk so it wont be in the way..but the tape came loose and one of the nurses held it out of the way til doc ( he looked like he was fresh off golf course) finished..now ordinarily this might have been a kinda fun event..however, no drug except very local..it was extremely uncomfortable...and yea, lots of on lookers..I asked if everyone had paid..and pls remove all tools and orange work cones when done..drew a few laughs but all in all, a tough crowd..I will not play that venue again.. ;=(

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.

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Profile picture for mnburns2000 @mnburns2000

I have been through radiation three times. First time 36 sessions, second time 15 sessions, last time, three sessions. My side effects were probably minor. Loss of hair in the radiation field area. I believe a little bit tired, but it wasn’t awful like my relatives who had chemo for other types of cancers.

One of the most uplifting parts of the radiation session, was standing in the hall, talking to other patients waiting in their gowns, waiting to be called to their machine room. People can be so positive and uplifting in a time of challenge for us.

Gods Blessing on you and your family

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@mnburns2000, a belated welcome to Connect. It is helpful to hear from someone who have experience only mild side effects. I look forward to learning more about you. Are you living with metastatic prostate cancer? Have you had other treatments in addition to radiation? How are you doing now?

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Profile picture for madisonman0326 @madisonman0326

I ride a TREK Domane SL5, a purpose built endurance bike. The saddle is split with a groove down the middle which minimizes contact with delicate anatomy.
I previously rode a Cannondale Super six Evo which was fast but rode as hard as something from the Flintstones.
Distance riding is all muscle memory anyway so it’s not difficult to finish so soon after treatment.

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@madisonman0326, I encourage to add your reply to this related discussion that @bonanzaman started:

- Bicycle seat after radiation https://connect.mayoclinic.org/discussion/bicycle-seat-after-radiation/

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Profile picture for Colleen Young, Connect Director @colleenyoung

@mnburns2000, a belated welcome to Connect. It is helpful to hear from someone who have experience only mild side effects. I look forward to learning more about you. Are you living with metastatic prostate cancer? Have you had other treatments in addition to radiation? How are you doing now?

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@colleenyoung

Yes I have one small spot that my last round of radiation was targeting. Tried cryo-freezing but couldn’t get to the spot. Long time on hormone therapy. Status : living with it. Hormone therapy has difficult side effects. But I’m making progress and the doctor has more things to try if this radiation didn’t kill it. Besides going into my every 3 month appointment to check progress I don’t think about it. 7 years so far. Many more planned

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