Starting Radiation tomorrow
Hi All, starting radiation tomorrow. 38 sessions. Other than full bladder, empty bowels, and get there on time, any suggestions from those who have been through this?
Also, I’m on Firmagon and abiraterone. No side effects yet. I watch my blood pressure, still good.
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I don’t mean to imply dissatisfaction with the quality of care. I am confident it is top notch. Just would have liked a bit more warmth from the ancillary staff. Sadly health care has become less humanistic even as the science has improved. It’s the way of the world these days.
Well good luck to you and your husband. UCLA is top notch even if the experience could be more warmly delivered … I’m afraid that is becoming the way of healthcare these days .
Madison, what type of seat did you use? I was told not to bike ride for at least 2-3 months after radiation. Did you have much tenderness during and after the ride?
BTW, my effects after radiation (July 30th or close to that) and even with ADT are minimal. I get urgency sometimes and I found that if I hold it back it may go away sometimes. For the first time, I just about pee'd myself the other day, it was close.
I don't think I get fatigue from the radiation, but the lack of testosterone sure makes it tough to get started in the mornings. One thing that I thought i would lose with the hormones is looking at pretty women, well that hasn't happened, they still are just as pretty! Just can't do anything about it.
I ride a TREK Domane SL5, a purpose built endurance bike. The saddle is split with a groove down the middle which minimizes contact with delicate anatomy.
I previously rode a Cannondale Super six Evo which was fast but rode as hard as something from the Flintstones.
Distance riding is all muscle memory anyway so it’s not difficult to finish so soon after treatment.
I went through 5 weeks of daily external beam IMRT radiation and found laxatives useless to clear my bowels. However, I quickly used one cup of coffee on my drive to the hospital and it did the job every day.
To ensure full bladder I drank a large 33 oz bottled SMART water on the way as well and had 100% full bladder for every treatment. I was never sent out of the treatment room to drink more water as I observed many other patients doing. Only catch on the full bladder if if one of the IMRT machines goes down causing delays which is an issue with a 100% full bladder.
All in all, I found the IMRT treatments to be very tolerable
Good luck
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@mnburns2000, a belated welcome to Connect. It is helpful to hear from someone who have experience only mild side effects. I look forward to learning more about you. Are you living with metastatic prostate cancer? Have you had other treatments in addition to radiation? How are you doing now?
@madisonman0326, I encourage to add your reply to this related discussion that @bonanzaman started:
- Bicycle seat after radiation https://connect.mayoclinic.org/discussion/bicycle-seat-after-radiation/
@colleenyoung
Yes I have one small spot that my last round of radiation was targeting. Tried cryo-freezing but couldn’t get to the spot. Long time on hormone therapy. Status : living with it. Hormone therapy has difficult side effects. But I’m making progress and the doctor has more things to try if this radiation didn’t kill it. Besides going into my every 3 month appointment to check progress I don’t think about it. 7 years so far. Many more planned