Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

I was diagnosed around May 2013. Out of 12 plugs, 2 or 3 were Gleason 8 and I believe one or two 9's. I remember bc i argued that the majority of the pugs were 7 or 6 and that seem like it should prevail. They quickly explained I was wrong. I recently looked at paperwork from post op labs. I think they staged me a 3Ta(?) The only thing I noticed was a 3. The PCa did go to exterior of prostate, but nothing found in semi vesicles, nor lymph nodes. I fought hard to have the nerve sparing surgery, but Dr. Alan Partin was against it. My RP surgery was July 2013, so I'm coming up on 10 years. Late in 2021 I had a PSA come back at .2 after 8+ years at

Where are you being treated? I'm going to Phelps Hospital in Tarrytown NY. I got a second opinion at Memorial Sloan Kettering in White Plains NY and that doctor agreed with the treatment my doctor is giving me. He was also cool and said I could book appointments with him anytime if I had questions even though he's not the one who's actively treating me.

I will be 62 this fall. and I was diagnosed at 52. I had a prosectomy followed with radiation. Then I had 6 rounds of chemo followed by Zytiga and prednisone for almost 4 years. After that stopped working they put me on Xtandi which didn't work too good, it sort of stabilized my PSA though it started rising after 3 months. Then came 13 rounds of Jevtana chemotherapy. Every 3 weeks from May of 22 until February of 23. PSA was stable but it slowly started to rise. I'm now on Pluvicto. I have just completed my 2nd round of 6 at 6 weeks apart. Too soon to tell if is working. During these years my PSA has been between .20 and never above 3.5 during all of these treatments. I'm on xgeva shots for my bone mets on my rib cage, middle spine and on the back of my neck. The 2 on my back were fractures which have healed nicely. Almost no pain. I get Lupron injections every six months. All I can say is that everyone is different. I have a good sense of humor and just go on like nothing has happened. Fatigue is the biggest hurdle and I can deal with that. They told me at the beginning that they were going to throw everything but the kitchen sink at me in the beginning and they weren't kidding. Hope this helps and good luck!

Not quite ten years, 9 years and 4 months.

While many do die of PCa, some statistics say 27k or or so each year. thanx to clinical research, treatment options to manage PCa have exponentially increased since I was diagnosed in Jan 2014. So, for most, it may be one of managing a chronic disease, balancing quantity and quality of life.

Kevin

Don’t overdo the weights. You don’t want to break down muscle because the lack of testosterone will not let you rebuild it.Best to do a routine that keeps you toned. Don’t overdo!

I joined the gym on May 1 and my goal is to work out 4-6 days a week. I will be retiring at the end of June and I will have plenty of time to make the gym part of my regular schedule. I have always been considered a very naturally strong guy, though I never went to the gym before. I am pushing myself with the heavier weights to try and maintain as much muscle mass as I can for as long as possible. I also do 30 minutes on the treadmill at this time. it is amazing how much PC changes your perspective on life and motivates you! my libido dropped off very quickly once I started on the hormone therapy. I used to be incredibly active. My wife is also very understanding about this and I try to schedule sex instead of wait for one of us to be in the mood. As you all know, I don’t think I would ever be in the mood due to the hormone therapy.