Stage 4 Glioblastoma Brain Tumor

Posted by annagayle @annagayle, Jan 19 12:18pm

My 34 yr old son Justin was diagnosed with a Stage 4 Glioblastoma Brain Tumor 4 yrs ago due to him having severe headaches and severe seizures.
Justin had surgery June 2025 which wasn't a success so he is still living with the tumor/effects of having this tumor. If anything his symptoms have progressively worsened since the surgery. Idk if it was just so progressed at the time of the surgery or, if surgery made it progress. And that doesn't even matter anyway...And I am not trying to dissuade anyone from trying surgery as it might be successful for someone else because all brain tumors are different and every person is different. I'm just saying that it wasn't successful for my son. It doesn't look as if there is a cure for this disease and from what I have read not very many treatment options and those treatment options aren't going to cure it but, they may give someone a little better quality of life or mabe even some kind of comfort. But there are no guarantees with any surgery as we all know.. so I encourage u to seek out whatever u think is right for u..Surgery might be a great option for u or someone else. And it's sad but, it wasn't a good option for my son.
Justin is now on end of life care with hospice and he doesn't have very much time left. And as a grieving mother I'm just asking for some support, some suggestions or anything that u have got, as Justin, myself and also his life partner/caregiver Oscar, go through this extremely difficult time. And yes, I do believe in the power of prayer and believe me, I pray daily. Every chance that I get, I send up a prayer, not only for my son, but for anyone that is experiencing this kind of trauma in their lives... But hey, I don't mind your prayers either...at this point and time, we need and appreciate all the prayers that we can get..
It's just been a very hard thing to process and some days I just don't know how to process it..
So just whatever u guys can do or tell me,I will appreciate it..I just need a little comfort in my life at this time..
So that's all I have to say about it at this time..please pray for our family..thank u ..sending up prayers for u all..🙏❤️🙏❤️🙏❤️🙏

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Just wanted to suggest you reach out to ABTA America Brain Tumor Association- can hopefully find support for you and even your son. I was assigned a peer mentor and it was helpful. The NBTS National Brain Tumor society is also out there, both have local or online support groups, and we all need support. Good luck, one day at a time🙏🫂☀️

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Just wanted to suggest you reach out to ABTA America Brain Tumor Association- can hopefully find support for you and even your son. I was assigned a peer mentor and it was helpful. The NBTS National Brain Tumor society is also out there, both have local or online support groups, and we all need support. Good luck, one day at a time🙏🫂☀️

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@jeanneoc ...thank u so much for caring and thank u so much for this info..
I promise I will be reaching out to these groups asap ..thank u🙏

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Let us know if you find anything helpful! Good luck🫂🙏

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