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Diagnosed with granulosa cell (GCT) ovarian cancer
Dear Mayo Clinic, I am 48 years old and diagnosed with adult granulosa ovarian tumor (sex-cord). Stage 1C because the 15cm 10cm 7.5cm capsule had ruptured. They thought they were going in to remove a cyst on my ovary. I suffered for 3 days because the emergency room said I had to wait until my scheduled Monday for surgery. I have slight hyperthyroidism and protein S deficiency. My They removed both ovaries/tumor, a full hysterectomy and oophorectomy, removal of one lymph node, the omentum (an area of fat attached to the lower part of the stomach). All samples came back clean from the hysterectomy. My family and I are confused on the issue to follow with BEP chemo. Is there another treatment or do observation? Do you have any data to support that chemo could lesson my risk of recurrence? Percentage of recurrence? @sc2017oobydo
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Last week! I would love to join in on anyone who has guidance or updates with AGCT and the post surgery treatment
Hi @sophiaphilia!
I’m not sure if you still get on here but I have just started my journey and am late night researching. I just had complete hysterectomy and removal of FIGO stage IIB 11cm Adult GCT. To start, I did not have a period for almost two years prior, and was told I was going through menopause. I actually only found out about my tumor from an mri of the hip. I then ironically had the increased pelvic pain after it ruptured and really had no time for decisions as I had found out the day before I had cancer or the possibility. Just received my pathology back and it looks like it spread to the rectum but they removed everything. My CA125 was a 5.6 prior to surgery, inhibin B was 2400 (a little higher) and my AMH was 46 I believe. At this point they aren’t recommending chemo or radiation. Have you read or heard anything different? I hope you are still cancer free and have received the answers you were looking for!!
Hi @sophiaphilia, I thought I'd check in. How did your followup appointment go after surgery? How is recovery going?
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1 ReactionHi,
I had surgery two weeks ago. Figo 1a
No chemo recommended as no metastases was found, however will have surveillance testing done twice a year to keep an eye on inhibin and CA125. Followup is next week and I have tons of questions for my gyn/oncologist. She is amazing and had to remove the tumor from three blood vessels that it had wrapped itself around. (I was in surgery over 5 hrs.) I am still very sore — feel bruised and wearing a bra is complete misery. If anyone has alternative suggestions, please share.
I’m happy to discuss with anyone here. Also, my surgery was done at a small teaching hospital in VA, not one of the larger hospital systems.
Welcome @imr. I believe that both @tamcbart and @cpl have had surgery for GCT and can share their experiences.
IMR, can you share a bit more about you? Is this a new diagnosis for you? Has surgery been recommended?
What is your current status? How often do you do follow-up inhibin tests?
What was the final outcome of your GCT treatment?
Has anyone had surgery for an ovarian Granulosa Cell Tumor?
Hi, I just sow this post. I am GCT, stage 1c2 , tumor size gross 6cm, did not go to chemo as it was not recommended from Sloan NYC or Anderson TX.I was diagnosed 7 months ago and my inhibin b level was <10 after 1 month...I did not check before that. Prior surgery was very high,1500. How it went?
claire
Thank you!
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