Anyone have spindle cell sarcoma?

Posted by amybr @amybr, Dec 6, 2022

Has anyone had spindle cell sarcoma on the sacrum & sciatic nerves? How was the outcome?

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Profile picture for abartels @abartels

Now, since he has finished his last treatment, they have scheduled the removal of his thyroid. A calcified ridge on the thyroid was found in a PET scan. Testing has shown there is a 50% risk of it being cancer. He is on medication for his thyroid, so it was recommended to have it completely removed.
Does pleomorphic spindle cell sarcoma attach to thyroids?

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@abartels
The thyroid was removed. No cancer was found.
The next CT scan showed a spot in the lung.
Lung biopsy confirmed pleomorphic spindle cell sarcoma.
Surgery in July at St Mary's in Rochester, Minnesota.
Next week, the blood tests, an MRI, and a PET Scan.

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Profile picture for abartels @abartels

@abartels
The thyroid was removed. No cancer was found.
The next CT scan showed a spot in the lung.
Lung biopsy confirmed pleomorphic spindle cell sarcoma.
Surgery in July at St Mary's in Rochester, Minnesota.
Next week, the blood tests, an MRI, and a PET Scan.

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@abartels
The PET scan is showing a 3 cm tumor in the same lung in the middle. No biopsy, the pleomorphic spindle cell sarcoma has returned.

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Profile picture for abartels @abartels

@abartels
The PET scan is showing a 3 cm tumor in the same lung in the middle. No biopsy, the pleomorphic spindle cell sarcoma has returned.

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@abartels, I'm sorry to hear that the sarcoma has returned. What treatment is being recommended? How are you doing in light of this news?

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We are heading back to Mayo on Monday. For tests and an appointment.

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Profile picture for abartels @abartels

We are heading back to Mayo on Monday. For tests and an appointment.

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@abartelsm how did the appointment go?

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