Colleen Young, Connect Director | @colleenyoung | Dec 7, 2022
Hi @amybr, I'm bringing @dbmenger and @zazu into this discussion as they also have experience with spindle cell sarcoma.
I read in another post you made that your husband has had successful chemotherapy to shrink the cancer in the pelvic area and he is now preparing for surgery. How is he doing? How are YOU doing?
He is doing pretty good right now. We are trying to find out more answers about the surgery & are trying to get a 2nd opinion. Have only talked to the surgeon briefly & he said to remove & replace the sacrum. He & I are very nervous about this & don't want to rush into it without talking to others that may have had the same thing or Dr's that might have more experience with this situation. Lots of praying for a Christmas miracle.
He is doing pretty good right now. We are trying to find out more answers about the surgery & are trying to get a 2nd opinion. Have only talked to the surgeon briefly & he said to remove & replace the sacrum. He & I are very nervous about this & don't want to rush into it without talking to others that may have had the same thing or Dr's that might have more experience with this situation. Lots of praying for a Christmas miracle.
Learning more about your situation made me think of members @wsh66 and @me67, who I believe had sarcoma in the pelvic area, possibly involving either the sacrum or sciatic nerve or both. You can read more about @me67's experience here: https://connect.mayoclinic.org/comment/153585/
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Hi @amybr, I'm bringing @dbmenger and @zazu into this discussion as they also have experience with spindle cell sarcoma.
I read in another post you made that your husband has had successful chemotherapy to shrink the cancer in the pelvic area and he is now preparing for surgery. How is he doing? How are YOU doing?
He is doing pretty good right now. We are trying to find out more answers about the surgery & are trying to get a 2nd opinion. Have only talked to the surgeon briefly & he said to remove & replace the sacrum. He & I are very nervous about this & don't want to rush into it without talking to others that may have had the same thing or Dr's that might have more experience with this situation. Lots of praying for a Christmas miracle.
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3 ReactionsIt's a good time for miracles, Amy. 🙂
Learning more about your situation made me think of members @wsh66 and @me67, who I believe had sarcoma in the pelvic area, possibly involving either the sacrum or sciatic nerve or both. You can read more about @me67's experience here: https://connect.mayoclinic.org/comment/153585/
I also wonder if proton beam therapy has been discussed as a potential option for your husband. See this Mayo Clinic Q&A interview with Dr. Safia Ahmed, a radiation oncologist at Mayo:
- Proton beam therapy spares surrounding tissue when treating bone cancer https://connect.mayoclinic.org/blog/podcasts/newsfeed-post/proton-beam-therapy-spares-surrounding-tissue-when-treating-bone-cancer/