Spinal fusion with pelvic fixation (T-3 to pelvis).

Posted by allison49 @allison49, May 12, 2025

Had spinal cord damage thoracic T-3 ,4, 5. Also spondylitis, spondylitis, foraminal, osteocytes . All spine issues were taken care of with fusion( 4 rods , 32 screws). Legs just will not work properly. Nerves , muscles not on same page. I can walk but not much else. Leg nerve tests showed nerves strong. My quads feel like half frozen chicken thighs. Hams and quads fighting each other. Front of legs feel like I have catchers gear on. Trying to get back to playing sports. Shins feel like bees under skin. Numb front of legs but not back of legs.

Interested in more discussions like this? Go to the Spine Health Support Group.

Try MFR there’s a great section on it here. Try a couple different MFR therapist and find some good ones go a couple times a month. Your insurance will cover it. You might have to work with the political situation in place that is to get it all covered, but you will need attention for the rest of your life like I do. Good luck.

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Profile picture for loriesco @loriesco

Try MFR there’s a great section on it here. Try a couple different MFR therapist and find some good ones go a couple times a month. Your insurance will cover it. You might have to work with the political situation in place that is to get it all covered, but you will need attention for the rest of your life like I do. Good luck.

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I'm looking for a hopefully positive opinion about the outcomes of others who have had T-3 to pelvis fusions . The challenges and the quality of life improvements (if any)

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Profile picture for richstein52 @richstein52

I'm looking for a hopefully positive opinion about the outcomes of others who have had T-3 to pelvis fusions . The challenges and the quality of life improvements (if any)

Jump to this post

Hi, @richstein52 - You may notice that I moved your post and combined it with this existing discussion on spinal fusion, because I thought it might be beneficial for you to be introduced to members who have discussed the same:

- Spinal fusion with pelvic fixation (T-3 to pelvis) https://connect.mayoclinic.org/discussion/spinal-fusion-with-pelvic-fixation-t-3-to-pelvis/

If you are replying by email, click on VIEW & REPLY so that you can read through some of the earlier messages and meet some of the other members talking about their or their or their loved ones' experiences.

Fellow members such as @allison49 @jenniferhunter @loriesco may have some input for you on a spinal fusion, including challenges and quality of life improvements, like you are describing, T-3 to pelvis. @dawnj and @mrmacabre also may have insights to share.

While awaiting their replies, you might check out this Mayo Clinic article on this spinal fusion:

- Spinal fusion https://www.mayoclinic.org/tests-procedures/spinal-fusion/about/pac-20384523

richstein52 - was this a procedure your doctor recommended for you? Do you have any specific concerns in mind about challenges and quality of life?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @richstein52 - You may notice that I moved your post and combined it with this existing discussion on spinal fusion, because I thought it might be beneficial for you to be introduced to members who have discussed the same:

- Spinal fusion with pelvic fixation (T-3 to pelvis) https://connect.mayoclinic.org/discussion/spinal-fusion-with-pelvic-fixation-t-3-to-pelvis/

If you are replying by email, click on VIEW & REPLY so that you can read through some of the earlier messages and meet some of the other members talking about their or their or their loved ones' experiences.

Fellow members such as @allison49 @jenniferhunter @loriesco may have some input for you on a spinal fusion, including challenges and quality of life improvements, like you are describing, T-3 to pelvis. @dawnj and @mrmacabre also may have insights to share.

While awaiting their replies, you might check out this Mayo Clinic article on this spinal fusion:

- Spinal fusion https://www.mayoclinic.org/tests-procedures/spinal-fusion/about/pac-20384523

richstein52 - was this a procedure your doctor recommended for you? Do you have any specific concerns in mind about challenges and quality of life?

Jump to this post

@lisalucier I didn’t have a surgery that attaches my spine to my pelvis so I can’t speak to what @richstein52 is asking for advice on. However, I can say that both of my fusion is my cervical and my lumbar are 100% successful and I attribute that to having an amazing orthopedic surgeon so my biggest suggestion is to get multiple opinions more than two and Dan don’t have surgery unless you’re in love with your surgeon.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @richstein52 - You may notice that I moved your post and combined it with this existing discussion on spinal fusion, because I thought it might be beneficial for you to be introduced to members who have discussed the same:

- Spinal fusion with pelvic fixation (T-3 to pelvis) https://connect.mayoclinic.org/discussion/spinal-fusion-with-pelvic-fixation-t-3-to-pelvis/

If you are replying by email, click on VIEW & REPLY so that you can read through some of the earlier messages and meet some of the other members talking about their or their or their loved ones' experiences.

Fellow members such as @allison49 @jenniferhunter @loriesco may have some input for you on a spinal fusion, including challenges and quality of life improvements, like you are describing, T-3 to pelvis. @dawnj and @mrmacabre also may have insights to share.

While awaiting their replies, you might check out this Mayo Clinic article on this spinal fusion:

- Spinal fusion https://www.mayoclinic.org/tests-procedures/spinal-fusion/about/pac-20384523

richstein52 - was this a procedure your doctor recommended for you? Do you have any specific concerns in mind about challenges and quality of life?

Jump to this post

@lisalucier Hi Lisa ...yes it is what my neurosurgeon is recommending ...upper thoracic to pelvis (Dr. Alexander Tuchman, Cedars=Sinai Los Angeles) I am extremely interested in hearing about positive quality of life changes Of course I realize there will be huge challenges. I would like to know about some of the challenges too. Actually anything that could enlighten me about what I can expect would help. I am pretty terrified of this procedure.

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Tagging a few other Mayo Clinic Connect members who've talked about pretty extensive fusion surgeries in other Connect discussions. These fellow members may also be able to share the challenges and the positives of a surgery similar to what you described, spinal fusion with pelvic fixation (T-3 to pelvis).

Please meet @jksawyers @nlback22 @morkat @sully101. They may know more about what you can expect and empathize with your feeling terrified. @cjboo @sherrym25 @karenoharmon and @rashida also may have thoughts to share with you about the surgery your neurosurgeon recommends.

@richstein52 what part of this surgery feels most terrifying right now?

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