Spinal Cord Stimulator Removal

If you don't feel comfortable to confirm we'll figure out another way.
Im tied up for the next few hours but will be in touch early evening. Im hopeful by supporting each other/ exchanging info. We might be able to make some progress.
I'm deeply affected by your story. My own has me devastated, and yours has me outraged on your behalf.
Talk later...stay strong...it will get better🙏
And yes the Trauma runs deep...I get it. Hugs.

@hazel73, as a new member, you do not yet have the ability to send a private message. However, you can receive a private message from @anniesezu812.
Please do not share your emails addresses on the public forum.

Be safe when taking conversations beyond the moderated forum.

I just looked up how to private message and because im still a new member, it wont allow me to private message. I dont understand that but we can chat more when it allows me to accept and/or request private messaging. I think we have a lot to offer each other information wise from our experiences. I have a lot more going on and its a lot for me to write about all at once. Im actually recovering from a recent major surgery which is not going well. Im in a lot of pain and caught the flu so im not feeling to well right now. Ill keep checking to see when i can request or get a request from you to private message. It will really help to have someone to talk to and understand what im going through and hopefully for you too. Thank you for reaching out to me! Talk soon.

I feel the same! Wish no one had to suffer but it helps not to be alone💓

I wish that also! It breaks my heart and makes me very angry so many people are being forced to suffer through very severe, intense pain. Im going to be that one person who stands up for those who cant stand up for themselves. No one deserves to suffer in pain especially when surgeons have caused the extra pain. Im doing this alone so i want to thank you for reaching out to me! I really appreciate it❤️

I didn't do the private message correctly. I will try tomorrow. Take care and like you I want my voice to be heard! Look forward to getting in touch.
Gd night. 💖

I wish that also! It breaks my heart and makes me very angry so many people are being forced to suffer through very severe, intense pain. Im going to be that one person who stands up for those who cant stand up for themselves. No one deserves to suffer in pain especially when surgeons have caused the extra pain. Im doing this alone so i want to thank you for reaching out to me! I really appreciate it❤️

Don’t let your anger overcome your common sense.
I wish you well. I think it’s time to end our discussions.

Hi, @heisenberg34, you may find this article from John Hopkins Medicine of interest:

- Spinal Cord Stimulator Removal: Q&A With a Neurosurgeon
https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/spinal-cord-stimulator-removal-qa
I'd also like to invite back @mamabear62 who posted in 2020 wondering about having a spinal cord stimulator removed in the neuropathy group:

- Anyone had a spinal cord stimulator removed? Replaced?
https://connect.mayoclinic.org/discussion/spinal-stimulator/
@heisenberg34 - this all sounds like a really frustrating situation, have you discussed the possibility of changing out the battery so that you can get your MRI? After reading the article from John Hopkins, it sounds like you are not alone in your experience with not obtaining relief from a spinal cord stimulator. Have you discussed your desire to have your SCS removed altogether?

I was told that I could never have a MRI or have my SDS ever removed! Do even think about it!! Good Luck! Bob