Sore stoma: Is this normal?

Posted by pez01 @pez01, Apr 19 1:29pm

I had surgery in Nov but my stoma still gets sore No rash or open skin problems Is this normal

Interested in more discussions like this? Go to the Ostomy Support Group.

What is the surgeon's diagnosis?

REPLY
@kenc

What is the surgeon's diagnosis?

Jump to this post

Havent been back yet

REPLY

Is this your first surgery? If so it will take time to heal around the stoma

REPLY
@tdt

Is this your first surgery? If so it will take time to heal around the stoma

Jump to this post

Yes it is and I am 85 so I guess I dont heal as fast thank you

REPLY

Mine was really sore for long time. It was constantly changing shape and size for 2 months after surgery. Tried many different brands of pouches, rings, etc for sensitive skin. However it does take a long time for the stoma to heal - I think the skin gets kind of whitish. I've found the surgeons once they do surfery don't seem to have much interest and expect you to see the stoma nurses. But the Mayo clinic and other hospitals can only use one or two types of pouches due to insurance and there many other brands out there (european made). One pouch was cutting into me when I leaned forward at work to do my job. Maybe if it's not skin related you should see the doctor.

REPLY
@jsindc

Mine was really sore for long time. It was constantly changing shape and size for 2 months after surgery. Tried many different brands of pouches, rings, etc for sensitive skin. However it does take a long time for the stoma to heal - I think the skin gets kind of whitish. I've found the surgeons once they do surfery don't seem to have much interest and expect you to see the stoma nurses. But the Mayo clinic and other hospitals can only use one or two types of pouches due to insurance and there many other brands out there (european made). One pouch was cutting into me when I leaned forward at work to do my job. Maybe if it's not skin related you should see the doctor.

Jump to this post

My experience both before surgery (when I was trying to make a decision) and after was that WOCNs are a better source of practical, day-to-day advice than my surgeon.

Although Mayo and others are limited to using certain brands by contract the nurses I have dealt with are (1) a good place to start to see what is going on (I have sent pictures through the portal and got a response, and (2) are familiar with other products.

You also might try the calling the major suppliers (Hollister, Coloplast, Convatec) to see what they have to say. They will usually send samples to try if it sounds like supplies will help..

I use Byram to order supplies and found our regional liaison helpful in one situation where I was looking for ideas (I'm in AZ).

Hope you work things out.

REPLY
@jsindc

Mine was really sore for long time. It was constantly changing shape and size for 2 months after surgery. Tried many different brands of pouches, rings, etc for sensitive skin. However it does take a long time for the stoma to heal - I think the skin gets kind of whitish. I've found the surgeons once they do surfery don't seem to have much interest and expect you to see the stoma nurses. But the Mayo clinic and other hospitals can only use one or two types of pouches due to insurance and there many other brands out there (european made). One pouch was cutting into me when I leaned forward at work to do my job. Maybe if it's not skin related you should see the doctor.

Jump to this post

It was quite a Job settling on a pouch I finally found that Coloplast Mio Flex Convex closed end pouch works best and is most comfortable. I am very petite and shortwaisted so none are really comfortable Due to the bad arthritis in my right hand I cannot use drainable pouches

REPLY
@pez01

It was quite a Job settling on a pouch I finally found that Coloplast Mio Flex Convex closed end pouch works best and is most comfortable. I am very petite and shortwaisted so none are really comfortable Due to the bad arthritis in my right hand I cannot use drainable pouches

Jump to this post

@pez01, how are you doing? Is the soreness getting less?

REPLY
@colleenyoung

@pez01, how are you doing? Is the soreness getting less?

Jump to this post

a little I am trying to be more gentle when I wash it

REPLY
@pez01

a little I am trying to be more gentle when I wash it

Jump to this post

Try some of the products that help to control stoma irritation and possible infections.

REPLY
Please sign in or register to post a reply.