Axonal Sensorimotor Polyneuropathy: Looking for someone to relate
I apologize in advance for any grammatical mistakes. Dictation isn’t always my friend. Hello! Just stumbled upon this website and hope to find someone like me. My name is Laura: 26 years old and live in North Carolina. Eight months ago, I began to lose feeling in my toes, feet, leg above the knee, and from my elbow down. I was admitted to the hospital for over one month, as well as appointments at top rated institutions. My current diagnosis is systemic symmetric sensorimotor subacute axonal polyneuropathy. I experience extreme soreness as if I ran a marathon. My life is playing the violin and I am no longer able to do that. I’ve never been heartbroken like this before. Hoping to find someone who understands and relates.
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Thank you for the YouTube video. It cleared up a lot for me and allows me to have a much better understanding of my husband's condition.
John — anyone with PN really should look at this video, great source of information, thanks for posting! Ed
Good Morning, @laurask I just came across this conversation again and it made me wonder how you are doing. Has there been any improvement? I know you said 2 years but have you seen any yet at all? We are all pulling for you. The best of course would be if someone could figure out the cause of your problems but even solving them without knowing the cause would be wonderful.
JK