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Smoldering Multiple Myeloma (SMM). Questions and Answers
I wanted to start a discussion specifically on SMM. Asking specific questions about time of diagnosis, like age, m-spike level, protein in urine level and % of bone marrow involvement. If you had MGUS prior to diagnosis? Any bone or joint paint? What your Hem-onc has as your monitoring schedule? Etc.
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I was diagnosed at the age of 61. I had 10% plasma cells. I did not have MGUS before my diagnosis. I had no joint pain or any indication I had it. I was diagnosed on a work up for neuropathy. My oncologist was a wait and see type. My Rheumatologist convinced him to start therapy (Revlimid). I am glad I did. I progressed to myeloma (from labs). I had no symptoms. I have had a stem cell transplant and now I am in remission after Car-T therapy last spring. I was diagnosed in 2017. I had no symptoms until 2024 when I broke my clavicle and had myeloma in my jaw. So I have had myeloma now 8 years.
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