Small Nerve Fiber Neuropathy (Idiopathic) EYE ISSUES

Well I am at it again. This will be long. March 13,2025 I was watching TV and I noticed a feeling around my right eye. It was not painful but it was there. I took my BP and it was 180/90. I took a Clonidine and went to the ER. They did a CT of the head and found nothing. Since then I was going to have an MRI of the head and neck with and without contrast. They called me up and due to my age they wanted me to have blood work to make sure my kidneys were good. They asked me if I could go on that day. I said yes. Right after I hung up the phone I felt the feeling around my left eye for the first time. So I packed my bag with stethoscope, BP cuff, clonidine and water. I took my BP meds before I left because they were due. I got to Quest and the place was full of people. I checked in and sat down for the wait. After awhile I notice the feeling was now near my right eye. So now it was near both eyes. I took my BP and then took a clonidine because I also felt a lot of pressure in the back of my head this time but not like a headache. After having my lab work done I went home. My MRI was done April 17th. My BP has been very good except for when the eye thing happens. I had an EMG done on Monday
April 29. I took advantage of the fact a neurologist was in the room and told him what was happening. I also said I couldn't see a neurologist for 4 months because they were booked up. So he said he would get me an appt. I got one the next day. I told him all the things I have experienced since I had the head pressure and blurry vision. (Three Doctors have said I did not have a TIA.) The neurologist said that none of what I told him is related to my small nerve fiber. He did tell me one thing. He said don't go to a Neurosurgeon. I did not RESPOND to that. I had already asked that a referral be sent to a neurosurgeon. I have had the following since the head pressure. Large burning pain on top of my head. I know that is related to nerves. I have had intermittent pains in my head they come and go. I felt some feelings in my head like something fluttering in there but it didn't hurt. I also had pain once that was all the way across my upper back just below my shoulders and neck. I also had two large sore spots on top of my head. I know I didn't hit my head. But I googled it and then took my BP and it was up. So I took care of that. I am gonna write my MRI issues. I think whatever is going on in my neck is causing this.
C2-3 Central disc bulge with mild-to-moderate left and mild right neural foraminal narrowing. There is mild canal stenosis. Uncovertebral hypertrophy is appreciated. Central canal measures 12mm AP
C3-4 there is broad-based central disc osteophyte complex with mild-to-moderate bilateral neural foraminal narrowing. There is mild canal stenosis. Uncovertebral hypertrophy is seen. Central canal measures 12 mm AP
C4-5 There is posterior disc osteophyte complex with canal stenosis and uncovertebral hypertrophy. Mild bilateral neural foraminal narrowing is see. There is abutment of the ventral aspect of the cervical cord.
C5-6 There is a broad-based central disc herniation with compression of the cervical cord. There is mild bilateral neural foraminal narrowing. Uncovertebral hypertrophy is seen. Central canal measures 8 mm in AP diameter
C6-7 there is a broad-based central disc herniation with compression of the cervical cord. There is mild bilateral neural foraminal narrowing, right-greater-then-left. Uncovertebral hypertrophy is seen.
Central canal measures 9 mm AP diameter
C7-T1 there is broad-based left paracentral disc herniation. There is mild bilateral neural foraminal narrowing. Uncovertebral hypertrophy is seen. Canal stenosis is appreciated. Central canal measures 12 mm AP
T2 Hyperintense focus is seen within the cervical thoracic cord without evidence of enhancement. Findings likely represent syrinx.
This measures 2.9 cm in craniocaudad dimension and 1 mm transverse dimension. I was told years ago after a scan I had what they thought was one and I had to see a neurosurgeon who told me no. I know what a syrinx is and what it can do.
There is also straightening of the normal cervical lordosis.
When I tell you I get a feeling around my eyes it is subtle. It doesn't hurt. But I know it's there. And my Blood pressure goes up. When I leave my. house I take my bag with my BP stuff with me because I never know when the eye feeling will come. I recently saw my cardiologist and she is aware of the first eye feeling I had. I had others after that visit. My blood pressures are great except for when the eye feeling happens. I called my Regular Doctors office and spoke to the nurse line and told them I needed a referral to the neurosurgeon. Unfortunately I have to have the same one I had a couple of years ago.
If he tells me he can't help me I am gonna lose my stuff. I am not that kind of a person but what has been happening to me is not right. The differences between a Doctor (radiologist) and a Doctor you see who then reinterprets your MRI on disc is a whole different ballgame. Believe me I know. If there is just one person out there that has had feelings around the eye or eyes please let me know. Something caused the head pressure that was on Feb 17th that lasted 2 minutes or less with blurry vision. I have been to the ER and had scans and they didn't find anything. I wrote a lengthy note about the eye issues and had them give it to my Opthalmologist . I asked if he thought I would need to see him and if not just let me know. I did not need to see him. @rnlorena