Small Intestine Bacteria Overgrowth (SIBO)

Posted by jacque6977 @jacque6977, Feb 22, 2017

My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?

@jacquelinek1956

OMGosh, I have the same exact issues! My Gastro. is not very knowledgeable about SIBO and I am even surprised he knew to do a breath test. I live in Oklahoma where there is very little concern for health issues, so getting help is impossible!! He keeps treating me with X drug, like you (very expensive, I have no insurance), once it’s gone, the issues starts again! It’s like a viscous cycle and meantime my life sucks, low on energy lay around alot and afraid to eat for fear of an episode of stomach bloating. SOMEONE has got to get a hold on this and help us ALL!!

Jump to this post

Meds

@lizbee78

I was diagnosed at the Mayo Clinic this past November with SIBO, small bowel damage, and Exocrine Pancreatic Insufficiency. After 25 years of suffering I am finally feeling well. The Mayo put me through a round of 3 different antibiotics to kill the bacteria. I was told to begin taking Align Probiotic daily. Probiotics are very important in keeping the bad bacteria from taking over. I include probiotic rich foods in my diet daily in addition to the Align, such as Kefir, yogurt, Kombucha, supplemented juice blends. I no longer really need anti-nausea medicine, but I used to take Promethazine, which I found to work better than Zofran. I also found that a simple Gas-X chewable would often help with belching and bloating. SIBO creates an excessive amount of gas. I hope this helps, and that your wife feels better soon!

Jump to this post

May I inquire as to which antibiotics you were prescribed and the dosage. I’ve been through 3 gastros. They all failed me and I want to know, beyond neomycin and xifaxan, what is possibly usable.

@lizbee78

I was diagnosed at the Mayo Clinic this past November with SIBO, small bowel damage, and Exocrine Pancreatic Insufficiency. After 25 years of suffering I am finally feeling well. The Mayo put me through a round of 3 different antibiotics to kill the bacteria. I was told to begin taking Align Probiotic daily. Probiotics are very important in keeping the bad bacteria from taking over. I include probiotic rich foods in my diet daily in addition to the Align, such as Kefir, yogurt, Kombucha, supplemented juice blends. I no longer really need anti-nausea medicine, but I used to take Promethazine, which I found to work better than Zofran. I also found that a simple Gas-X chewable would often help with belching and bloating. SIBO creates an excessive amount of gas. I hope this helps, and that your wife feels better soon!

Jump to this post

550 xifaxan….I hate the stuff! It makes me so sick, but I was told that’s all there is! I wish someone would come up with something better for sure. I am setting myself on the FODMAP diet, taking xifaxan, eating lots of Activa and just making sure I don’t eat ANYTHING that will bring the symptoms back!! I am still really tired all the time!

@jacquelinek1956

OMGosh, I have the same exact issues! My Gastro. is not very knowledgeable about SIBO and I am even surprised he knew to do a breath test. I live in Oklahoma where there is very little concern for health issues, so getting help is impossible!! He keeps treating me with X drug, like you (very expensive, I have no insurance), once it’s gone, the issues starts again! It’s like a viscous cycle and meantime my life sucks, low on energy lay around alot and afraid to eat for fear of an episode of stomach bloating. SOMEONE has got to get a hold on this and help us ALL!!

Jump to this post

Can you copy and paste what you are referring to? Thanks! JK

@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

Jump to this post

Can you share the name of your GI physician you saw at Mayo MN?

@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

Jump to this post

Sure. Dr. Andres J. Acosta Cardenas.

@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

Jump to this post

Thank you!

@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

Jump to this post

My gastro put me on the FODMAP diet, however, I can’t swear by it. I am still having issues after meds, so anyone on here might have a different one to try.

@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

Jump to this post

What probiotic are you taking? I was taking Align, as recommended by my Mayo gastro doctor, but begin having some signs of bacteria overgrowth again. I switched probiotics to Hyperbiotics Pro-15 with 15 billion CFU-15 strains (bought it at Target). I felt better one day later, and have had no more symptoms since I’ve been taking it.

@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

Jump to this post

Thanks, I will have to go by Target and get it. Do you happen to know the cost?

@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

Jump to this post

It was $27-$28 for 30 tablets. The maintenance dosage is 1 tablet/day. Intensive treatment is up to 3 tablets/day. I started with one, and that seems to work for me. Hope it brings you some relief.

@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

Jump to this post

ANYTHING is worth trying at this point. I am on day 12 of being drained and dizzy. I believe my vitamins are totally depleted. The pro-bio I am trying to really harsh (small white tablets that are hard to swallow). I am on the 14 day challenge with Activia, but soon want to start maintenance tablets. Thanks for sharing. BTW, Herb.com had a better deal.

@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

Jump to this post

Please don’t eat activa, worthless and full of sugar!

@jacquelinek1956

I am totally new to this issue, even though I have suffer and been “treated” for acid re-flux for years! Now I wonder if I ever had acid re-flux! When I accidentally found out (my gastro. nurse said I had it, two days ago), I started to read about it. Apparently, the re-flux meds totally upset the whole system and may be what has been giving me such episodes. Apparently, my gastro has known, but did not share it with me? I would have stopped the reflux meds back in January!! I am beginning to believe there is NO DOCTORS in my state that really care! At this point, I am not sure WHERE to start. I did call and FINALLY got new script for XIFAXAN, but can only afford, week by week, the 14 days supply, will it help or not? Second, I am not sure what I should and should not eat, I read about the Align Probiotics, so I will start those soon. ANYONE who can suggest ANYTHING at this point would be wonderful! Thanks in advance…JK

Jump to this post

Hello @jacquelinek1956 and @sweetmaize,

I apologize for the tardy welcome, but I wanted to let you know that we are so glad to have you here, on Connect. And a sincere thanks to the members who have jumped in with such insightful conversation!

You may also wish to view this discussion, Relentless bile reflux / pain, http://mayocl.in/2sJuOeB, where you will meet @alina151 who has posted about SIBO

@tzm1995 @zwar @gfamy @fa7100 @gregoryd @melaniewa @jwatch @momochan @janovr @lateacher @azdrew @vwerner, and @haighsue, do you have any suggestions for @jacquelinek1956 and @sweetmaize?

CAN SOMEONE PLEASE HELP ME! I NEED THE TEST KIT FOR SIBO, I HAVE BCBS BUT CAN’T FIND ANYONE THAT TAKES MY INSURANCE. I AM DIDABLED AND CAN’T AFFORD TO PAY THE OUTRAGEOUS PRICE FOR THIS TEST! I LIVE IN FLA AND MY DR CAN’T FIND THE KIT ANYWHERE@! PLEASE HELP!! I AM AT THE END OF MY ROPE!!!

Please login or register to post a reply.