Small Intestine Bacteria Overgrowth (SIBO)

Posted by jacque6977 @jacque6977, Feb 22, 2017

My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?

@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

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How do I get appointment with GI at the Mayo Clinic?

Thanks
Virginia

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@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

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Sorry, 25 years!

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@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

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Hello @vwerner,

If you would like to make an appointment at Mayo Clinic, the contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.
Here’s a link to Mayo Clinic’s Gastroenterology department as well: http://mayocl.in/2mZtoGR. When you call any of the three locations, they will ask questions to help direct you to the best specialist.

@vwerner, I see that you posted about SIBO a while ago, and although it seems you’ve not found much relief, do you have any suggestions or tips for other members in this discussion?

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@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

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Welcome back @melaniewa! A sincere thank you for all the support, information, and insight that you and @lizbee78 are offering.
It’s obviously stressful, worrisome to have all these symptoms, but it seems to be a relief to at least get a firm diagnosis, so that you can get on the right treatment path.

@jacque6977, I can see that you are doing everything to help your wife, and I would really encourage you to view these discussions about chronic nausea; some of these are older conversations, but feel free to go through them, tag members, and join in.

Chronic Nausea http://mayocl.in/2nNRXdQ
Nausea http://mayocl.in/2ncxkF8
What could constant nausea,off and on stomach pain,bloating be? http://mayocl.in/2ni1FnA

I’d also like to tag @concernedmtnmom, who wrote about her daughter’s symptoms in a past discussion, and I sincerely hope she returns with some insight for you.

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@jacque6977, i hope your wife continues to heal. My daughter had severe nausea for 5 months, with vomitimg and then diarrhea. Turned out to be severe case of Clostridium difficile, a nasty bacteria in the colon. Rifaxamin finally killed it and WITHOUT side effects. It was an off-label use but it was a miracle. I know a lot about probiotics from this and working for a yogurt company. VSL#3 is good, a blend of 10 strains and refrigerated, which means viable. Kombucha, yogurt, kefir all good but also test for fructose intolerance, which can cause nausea, bloating, misery. Get to Mayo if you can, they work miracles…very thorough! Good luck and never give up! You are a great advocate for her.

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@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

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It’s the toast!!! She could have Celaic but with all the tests that is probably the first thing they tested for but she could have carbohydrate interlorance. Have her cut out all grain products and after a week see if she feels better. Experiment cutting out food groups, diary, fruit, wheat, one week at a time. It took me years of meds and surgery until I figured out I couldn’t eat fruit!

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@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

Jump to this post

So true. I was sick for years until I learned that gluten was my enemy. My
throat and lungs would fill with mucous and I would cough for hours after eating
anything gluten. I kind of knew that instinctively because as a child; I would
not eat my birthday cake, ever. nor cookies, pie, etc.
 

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@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

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Took xifaxan 2 months ago for breath test confirmed sibo. It has returned… not sure about diet requirements or if probiotics help or hurt… am losing weight again and getting depressed… what is the best diet?

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@jacque6977

Xifaxan must have worked because a positive SIBO diagnosis upon retesting showed a negative SIBO diagnosis.

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Paleo!

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I started with Paleo Autoimmune Protocol and started slowly adding foods back in to see what affected me. Some folks do the FODMAP diet. I also take supplements as recommended by Dr. Kris Kresser

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@kanaazpereira

Hello @lizbee78,

Welcome to Connect, and thank you for joining this conversation with such great information.
Although diagnosed with different conditions, @ptfitzy, @michellecrcrn, @tessie, @decosmo, @windwalker, @jillnc, @irene5, @mcpucho, @doron, have all discussed the many benefits of probiotics as well.

@lizbee78, did you have any questions about EPI?

Jump to this post

I had breath test too with negative results. They did find an ulcer but I don’t think that’s my only problem. What did you do to get relief? Thankyou

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Have you tried Phenergan?

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