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Small Intestine Bacteria Overgrowth (SIBO)
My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?
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Welcome to Connect, @wljs,
Thank you so much for your encouraging words, and for sharing your experiences in this discussion, and elsewhere on Connect too.
Please join us anytime with your questions and insights; we're glad to have you here.
Sounds awful, I am glad they have found the source of your problems now though. So how are they treating your SIBO?
After leaving the Mayo in November, I went through a round of Diflucan, Flagyl, and Cipro. That's it! The GI doctor at the Mayo said that was all I needed to do, and then take a daily probiotic. He strongly recommended Align, so that's what I take. I guess the bacteria is gone? I sure feel like it is, at least for now. I no longer have excessive gas, bloating, stomach pain, indigestion, diarrhea, vomiting, etc. Of course, SIBO wasn't my sole diagnosis, so some of my symptoms could've been related to other issues. Anyway for now I feel great. If at any point I have recurring symptoms, I was told to contact my Mayo GI doctor, and he'd reassess my situation.
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5 ReactionsGlad you managed to find some answers. 20 years is a long time!
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1 Reaction<br>How do I get appointment with GI at the Mayo Clinic?<br><br>Thanks<br>Virginia <br>
Sorry, 25 years!
Hello @vwerner,
If you would like to make an appointment at Mayo Clinic, the contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.
Here's a link to Mayo Clinic's Gastroenterology department as well: http://mayocl.in/2mZtoGR. When you call any of the three locations, they will ask questions to help direct you to the best specialist.
@vwerner, I see that you posted about SIBO a while ago, and although it seems you've not found much relief, do you have any suggestions or tips for other members in this discussion?
Welcome back @melaniewa! A sincere thank you for all the support, information, and insight that you and @lizbee78 are offering.
It's obviously stressful, worrisome to have all these symptoms, but it seems to be a relief to at least get a firm diagnosis, so that you can get on the right treatment path.
@jacque6977, I can see that you are doing everything to help your wife, and I would really encourage you to view these discussions about chronic nausea; some of these are older conversations, but feel free to go through them, tag members, and join in.
Chronic Nausea http://mayocl.in/2nNRXdQ
Nausea http://mayocl.in/2ncxkF8
What could constant nausea,off and on stomach pain,bloating be? http://mayocl.in/2ni1FnA
I'd also like to tag @concernedmtnmom, who wrote about her daughter's symptoms in a past discussion, and I sincerely hope she returns with some insight for you.
@jacque6977, i hope your wife continues to heal. My daughter had severe nausea for 5 months, with vomitimg and then diarrhea. Turned out to be severe case of Clostridium difficile, a nasty bacteria in the colon. Rifaxamin finally killed it and WITHOUT side effects. It was an off-label use but it was a miracle. I know a lot about probiotics from this and working for a yogurt company. VSL#3 is good, a blend of 10 strains and refrigerated, which means viable. Kombucha, yogurt, kefir all good but also test for fructose intolerance, which can cause nausea, bloating, misery. Get to Mayo if you can, they work miracles...very thorough! Good luck and never give up! You are a great advocate for her.
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2 ReactionsIt's the toast!!! She could have Celaic but with all the tests that is probably the first thing they tested for but she could have carbohydrate interlorance. Have her cut out all grain products and after a week see if she feels better. Experiment cutting out food groups, diary, fruit, wheat, one week at a time. It took me years of meds and surgery until I figured out I couldn't eat fruit!
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