Small fiber neuropathy?

Posted by Goaway @nemo1, Feb 16 9:00pm

I never had a biopsy to dx it. I’m wondering if I have the biopsy does it make a difference in the therapies? A year ago I was dx’d with severe chronic nerve damage in lumbar and cspine: polyradiculopathy.

I have severe pain and spasms in lumbosacral back, legs and feet since 2021.

In the summer of 2023 I started (an continue having) get spasms in the trapezeous muscles on the right.

I’m currently flaring with bad pains to both shoulder that is crippling then after a long while it disappears. I developed lightning like pains to the bottoms of my feet and toes. The only thing that seemingly helps the surface pain is the lidocaine cream I apply. So far…

The neuromuscular doctor said last year no long fiber neuropathy per the nerve conduction study. She said I’d need a biopsy to determine if i have sfn.

An old nerve doctor said I had demyelination in left leg she thought secondary to diabetes. WEll, the diabetes hasnt climbed to damaging enough numbers to put me in flair much less cause the demyelination.

The foot dr last week gave referral for feet, for neuropathy and balance. So this confuses me. It all does.

I’d like to know if SNF can move around the body and cause the tingling in forarms and fingers and can the pain in SNF affect the very surface of the skin?

If someone can make sense of what Ive written I’d appreciate any help insight or feedback.

I have not received a diagnosis regarding the polyradiculopathy. I’m going to press the doctors for answers now because it’s really out of control.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@nemo1

clarification: It was the pain management doctor who spoke about the ablation it being for if the pain is not helped for long enough of a period of time - at the end of my post.Not the other doctor.

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Anxiety from PN has been increasing as the numbness in my feet has been increasing. I’ve had PN for many years with no pain recently thanks to LDN (Low dose naltrexone). I have tried everything imaginable for the numbness to no avail & the anxiety is getting too intense.
Does anyone have any solutions for this kind of anxiety?
Tx.
Bruce

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Hi Bruce,

I’m so sorry for your level of discomfort. Try (google) ‘square breathing’. I do it until I calm, which is quickly. You spend your time counting so you forget what your were thinking about prior to it.

On inspiration through the nose to a count of 4 second, hold breath to a count of 4, exhale through mouth to a count of 4, hold at exhale for 4 seconds. Repeat.

This also focuses the breath on the “held” breath so we avoid hyperventilation. Which is possible with improper breathing.

When you are used to the 4 counts to 4, you can try visualization during.

All work. Breathing like this when you need to redirect and refocus helps.

I hope you feel better soon.

🙏🏻

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SFN also affects the organs gastroparesis( slow digestion) bladder problems and CAN cardiac autonomic neuropathy. Once diagnosed with CAN they give you approximately 6-8 years left to live. You end up with arrhythmias.

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@nemo1

What is DVN?

Is the decompression you refer to done with a physical therapist? Reason I ask is because my therapist would take a long strap and hook it up around my foot (sneaker on) and do gentle tugging and swaying left to right on both legs one at a time each session. I’m not sure what it’s called but am wondering if it’s a form of decompression. Being that I know nothing about the therapy which you mention. I looked it up and found surgical intervention.

Hugs, bravery and peace - yes please!

is the top ricin like lidocaine cream?

Thank you and feel better.

🧡

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Believe it or not, a chiropractor has the decompression tables. Look up Life Force Chiropractory. It should explain.

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I have had a punch biopsy and a lower limb nerve conductive study performed by neurologists. I also have a number of MRIs of my cervical, lumbar and sacral areas. Right now with the decompression, we will see how much of this pain is attributed to my herniated disks, and how much the pain, tingling and numbness in all extremeties is due to neuropathy.

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@solobeee1

Anxiety from PN has been increasing as the numbness in my feet has been increasing. I’ve had PN for many years with no pain recently thanks to LDN (Low dose naltrexone). I have tried everything imaginable for the numbness to no avail & the anxiety is getting too intense.
Does anyone have any solutions for this kind of anxiety?
Tx.
Bruce

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My neurologist prescribed Cymbalta. I too suffer from anxiety and depression and neuropathy in all extremities. This has helped my anxiety/depression as well as the neuropathy.

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I am on my third week of this and yes it is done by a decompression table with a very professional doctor at a Chiropractor's office.

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@nemo1

What is DVN?

Is the decompression you refer to done with a physical therapist? Reason I ask is because my therapist would take a long strap and hook it up around my foot (sneaker on) and do gentle tugging and swaying left to right on both legs one at a time each session. I’m not sure what it’s called but am wondering if it’s a form of decompression. Being that I know nothing about the therapy which you mention. I looked it up and found surgical intervention.

Hugs, bravery and peace - yes please!

is the top ricin like lidocaine cream?

Thank you and feel better.

🧡

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Not a form of decompression, just an adjustment. It's a table machine device. Topricin is not like lidocaine. Topricin penetrates the nerves. Lidocaine is a numbing agent.
I've had way better relief with Topricin .

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@debduh11

Not a form of decompression, just an adjustment. It's a table machine device. Topricin is not like lidocaine. Topricin penetrates the nerves. Lidocaine is a numbing agent.
I've had way better relief with Topricin .

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Thank you Deb for elaborating on the differences on topricin and lidocaine action.

I think I’ve had that when I was in my early 20’s after a bout with sciatica. I went to a chiropractor who helped me through it.

These days, I would not be brave enough to go to one again.

I laid on a table with some type of rollers (at least that is what it felt like) that moved up and down the body and it did feel good.

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@nemo1

Thank you Deb for elaborating on the differences on topricin and lidocaine action.

I think I’ve had that when I was in my early 20’s after a bout with sciatica. I went to a chiropractor who helped me through it.

These days, I would not be brave enough to go to one again.

I laid on a table with some type of rollers (at least that is what it felt like) that moved up and down the body and it did feel good.

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I get my decompression first. Then I lay on that rolling table with ice under my lower back (feels wonderful). After that I get on the chiropractic table face down and the doctor uses some sort of 2 pronged device up and down my spine (that hurts). He uses a handheld vibrating massager up and down both sides of my spine and butt cheeks hitting trigger spots and then I'm done until tomorrow. This is all for my spinal decompression which should see if issues are related to my neuropathy.

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