Small Cell Lung Cancer: Let's connect
Most of the discussions about lung cancer has been about Non-small cell lung cancers. There are many sub-types of this that are included. But there is another type of lung cancer that needs to be discussed and that is Small Cell Lung Cancer. This aggressive form of lung cancer most commonly occurs in smokers. It usually starts in the breathing tubes (bronchi) and grows very quickly, creating large tumors and spreading (metastasizing) throughout the body.
Symptoms include bloody phlegm, cough, chest pain, and shortness of breath.
Treatment includes surgery (for small tumors) as well as chemotherapy, sometimes in combination with radiation therapy.
Lung cancers cells are sometimes classified by where they tend to grow.
There have been huge breakthroughs in lung cancer research of late.
Please join @margot69 and I in this new disussion.
Interested in more discussions like this? Go to the Lung Cancer Support Group.
Hi @sksnow, I believe there are other SCLC patients milling about on Connect. I hope you are able to continue the chemo treatments soon and are able to settle into your new unfortunate routine for a bit. Keep an eye out for side effects and don't be shy about communicating any issues with your team. It's great that you have good family support, that can be a life saver.
I was diagnosed SCLC in Nov 23. Ever since that day my life has been a whirlwind of tests, appointments, treatments, etc. So far I’ve had one round of chemo, second was delayed because of low blood counts. I’ve had 7 radiation treatments so far, 23 to go. So far so good 😊. My kids and my grandkids are my joy. And my hubby 😊
I don’t have experience with SCLC, I have NSCLC.
@sksnow, the chat with other members with small cell lung cancer (SCLC) is still active. Let me call in the members like @joe6767 @spikeb1 @tymish17 @alcott @daisy9460 @vlpr @mustangdee64 @bonsai799, who have experience with SCLC.
@sksnow, while we wait for others to join in, I'd like to hear more about you. When were you diagnosed with SCLC? What treatments have you had and/or are currently having? How are you doing? What brings you joy?
What happened to the sclc group/chat? I was excited to find it but theres been no activity for years
RIGHT NOW I DON'T HAVE NON SMALL LUNG CANCER.
HE SAID IT WOULD RETURN, DANG. I CAN TAKE A 4 DAY BREAK ONCE IN A WHILE. OTHER WISH I HAVE TO TAKE XALKORI EVERY 3 DAYS. CT EVERY 3 MONTHS & BLOOD WORK WORK UP EVERY 6 WEEKS.
THANK YOU COLLEEN AND I HOPE YOU HAVE AN OUTSTANDING VALENTINES DAY!
I'm not an NP or a doctor, but a fellow supporter. 🙂
You're not alone in having to weigh quality of life over quantity. Since there is no evidence of disease, might it be possible to take a "treatment vacation" for a while? Sometimes this is possible so that you can get a break from the side effects.
What did the oncologist say about the risk of the cancer returning?
YES, I DID TALK TO MY ONCOLOGIST .
I HAVE SO MANY SIDE EFFECTS FROM XALKORI.
THANK YOU FOR YOUR RESPONSE ARE YOU A NP?
@peachie, that is a good question to ask your oncologist. Your oncologist can talk about the risk of recurrence with Xalkori vs without treatment based on the specifics of your situation.
How are you managing the side effects?