Small Cell Lung Cancer: Let's connect

Margo, My husband was diagnosed with Small Cell cancer that has metastasized to his liver with a clear Brain scan thus far. He started his first round of Chemo and immunotherapy therapy last week with no side effects at all. Praying that more trials will produce a cure, while hoping to keep his cancer at bay until a cure is found. Happy to share his 3 chemo drug/immuno cocktail info if you like.

Margo, my husband was just diagnosed with small cell lung cancer which has spread to his liver and bladder. The diagnosis is poor, yet with new treatments, keeping it at bay and living with it is increasingly possible. They found his secondary tumor in the liver before Christmas and the primary lung mass on January 6th. Luckily we live in Tampa Florida and He decided to be treated at Moffitt by a small cell Thoracic specialist, Dr Alberto Chiappori who is doing a clinical trial For small cell endocrine Lung cancer study . He saw my husband and started him on a 3 cocktail Chemo and immunotherapy treatment immediately. Pop had his first treatment January 15th,16th and 17th. So far he has had NO side effects, yet fatigue often happens this second week.
We have been told that This type of cancer is very effective when treated with Chemo. I have posted the 3 drugs he is receiving, should you want to read that post as well. Happy to speak with you if you like.

Happy you have joined, lady. I am Stage IV now with nodes and spots on my liver. Brain MRI was clear, so far. If the doctors had listened to me for months, maybe this would have been caught sooner. I haven't even seen an Oncologist yet! Praying we can all beat it. Were you sick from the treatments and where were you treated? Since this is a Mayo discussion board, I assume there.

Happy you have joined, lady. I am Stage IV now with nodes and spots on my liver. Brain MRI was clear, so far. If the doctors had listened to me for months, maybe this would have been caught sooner. I haven't even seen an Oncologist yet! Praying we can all beat it. Were you sick from the treatments and where were you treated? Since this is a Mayo discussion board, I assume there.

I am good .we both play pickleball together 5 days a week. Hopefully this treatment will work for him. So far so good. We just want another option, should this treatment not be successful to hold this aggressive cancer at bay. Hopefully all will go well .

After his first round of Chemo for 3 days, there has been no side effects at all. He had an anti nausea medication drip with his first treatment. He still has a Great Appetite and he exercises 5 days a week , playing pickleball or golfing. We are waiting for the fatigue to appear but so far so good. Three more rounds of treatment to see where we are. If the treatment is not working, then we will seek a second opinion. We are just seeking Out any other Small cell lung cancer treatment alternatives at this point. I have not seen any alternatives thus far.

@popkorhn- I am sorry that I have been away. I had a scary bout of very bad vertigo. I'm much better now but waiting to see a specialist for this. Now that the room has stopped twirling I can type!
Fatigue is a BIG problem and side effect of many cancer treatments and I know that you know this. It must be great that he has no other side effects, so far as this writing.
It might be a great idea to get him outside and walk for a bit- or until he wants to rest. How is his appetite?

Margo, my husband was just diagnosed with small cell lung cancer which has spread to his liver and bladder. The diagnosis is poor, yet with new treatments, keeping it at bay and living with it is increasingly possible. They found his secondary tumor in the liver before Christmas and the primary lung mass on January 6th. Luckily we live in Tampa Florida and He decided to be treated at Moffitt by a small cell Thoracic specialist, Dr Alberto Chiappori who is doing a clinical trial For small cell endocrine Lung cancer study . He saw my husband and started him on a 3 cocktail Chemo and immunotherapy treatment immediately. Pop had his first treatment January 15th,16th and 17th. So far he has had NO side effects, yet fatigue often happens this second week.
We have been told that This type of cancer is very effective when treated with Chemo. I have posted the 3 drugs he is receiving, should you want to read that post as well. Happy to speak with you if you like.

Thank you for starting this discussion, Merry. I was just diagnosed with SCLC. A PET scan showed a spot in my left lung, nodes and 3 spots on my liver. A liver biopsy confirmed the diagnosis. If you smoke or not, if you ever smoked, if you worked in an industry tgat coukd cause lung issues, if you are over a certain age, insist on at least a low dose CT!! I had a cough for months doctors just attributed to smoking. This was not a smoker's cough. My doctors were unfamiliar with LDCT and none available in my area. I knew of this because my cousin's doctor, in NC, has had her do them for 3 years. I kept after my Pulmonologist who would just respond to quit smoking. Finally, he says, "I will order a CT, if it will make you feel better, but it probably won't show anything." Had the test and get a call to call his office ASAP! By now, this had been going on for about 4 months! So, now I am in the nightmare of urgency. He tells me to start treatment or I am going to die. I can't even get into see an Oncologist here until next week. I called Stanford and will get a call back in 2-4 days. I would like to know if anyone has been treated at Stanford. Any feedback would be greatly appreciated!