Small Cell Lung Cancer: Let's connect

Tomorrow is an important day for Pop. We see his oncologist to get his Pet Scan results after having had just two rounds of treatment with chemo and immunotherapy. Since starting treatment just 7 weeks ago, he has has little or no side affects. Pop’s weight is steady so far with a healthy appetite , plays golf once a week and pickleball 4 times a week. Other than his hair loss, nothing has changed thus far. I truly believe his getting 10,000 plus steps I , 5 days a week, has helped him through this.
Has anyone heard about the new drip which was released in December and approved for a fast approval by the FDA? It is the first drug in 20 years for relapse of small cell lung cancer. I read that it will hopefully be available by August 16th, providing the EOA approves it.

Good Luck to you. Nancy

@besswillis- Phew! I have been very scared for you. This must make you feel a lot more at ease if this is possible. Please let me know how you make out!

Ap window is a space in the chest between the lungs and heart. I have been constantly on the phone with the Dr the insurance and everyone else. So we actually finally got the order sent to insurance and is finally approved, now we are going tomorrow for chemo education and a de appointment and the infusion scheduler is trying to get us doing treatment tomorrow.

@besswillis- I'm not sure what you mean by an ap window. Have you come to any solution with the insurance company? What does the dr. say about her treatments?

So she actually had no small cell lung cancer before and had 2 parts of her lung removed in 2013. Now she has small cell long cancer with a mass6.2×5.2 c.m in her ap window, 15 m.m. mass on her liver along with 3 other lesions, a spot on her spectrum, iliac bone and t11 disk.

Nancy (shortshot80) I don't know "pickleball" but I have been on the lung cancer discussions for almost four years. Visiting with Colleen (Director) and Teresa) I am doing the best I can do...I think radiation is really great. It doesn't hurt and it stops the bleeding. While doing all the medical stuff, I have written a book. My daughter is proof reading and it will go to print soon. It is a "autobiography for family and friends. It started out as a "woman commercial fishing" book. I ended as autobiography. Nancy

@popkorhn- Good morning. I finally looked up pickleball! This looks like my cup of tea! What fun. Amazing that PopKorhn's chemo and immunotherapy are going so well. I am so pleased. This must be such a relief to you. How are you holding up?

So sorry to hear about your Aunt. My husband was diagnosed with a secondary liver cancer on December 18th, 2019 after a biopsy of his liver. A Pet Scan showed his primary tumor was in his lung and gratefully no involvement in his brain . The chemo along with Carboplatin and etoposide are what the standard 3 cocktails used.

PopKorhn’s second round went extremely well. There has been little or no affect after his second round of Chemo and immunotherapy last week. He golfs every Tuesday, plays pickleball for and hour or two 4 days a week and usually gets in his 10,000 steps a day. So Far so good for a 74, almost 75 year old. He has another pet scan at Moffitt on the 28th and we meet with his small cell Thoracic specialist who is doing a clinical trial that he may be a candidate for. He is scheduled right now for two more rounds of chemo in March along with the two immunotherapy drugs. We were told that he would have the 4 Chemo treatments and possible two more depending on what his Feb 28th pet scan shows. The immunotherapy could be for life. Truly an unknown path, yet life is still good.