Small Cell Lung Cancer: Let's connect

Posted by Merry, Alumni Mentor @merpreb, Jan 12, 2019

Most of the discussions about lung cancer has been about Non-small cell lung cancers. There are many sub-types of this that are included. But there is another type of lung cancer that needs to be discussed and that is Small Cell Lung Cancer. This aggressive form of lung cancer most commonly occurs in smokers. It usually starts in the breathing tubes (bronchi) and grows very quickly, creating large tumors and spreading (metastasizing) throughout the body.
Symptoms include bloody phlegm, cough, chest pain, and shortness of breath.
Treatment includes surgery (for small tumors) as well as chemotherapy, sometimes in combination with radiation therapy.
Lung cancers cells are sometimes classified by where they tend to grow.
There have been huge breakthroughs in lung cancer research of late.
Please join @margot69 and I in this new disussion.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@margot69

Happy you have joined, lady. I am Stage IV now with nodes and spots on my liver. Brain MRI was clear, so far. If the doctors had listened to me for months, maybe this would have been caught sooner. I haven't even seen an Oncologist yet! Praying we can all beat it. Were you sick from the treatments and where were you treated? Since this is a Mayo discussion board, I assume there.

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I was diagnosed with small cell carcinoma in my lung. Stage three. I got very sick from the chemo and dehydrated. In three months, was in the hospital four times. I didn’t have any problems with radiation until the end. Then it was really bad. Radiation burns to my thorax and stomach. It hurt to breathe, even swallowing water. After 11 days in the hospital, I’m still recovering at home. What has helped me the most are the THC=CBD gummies from a marijuana dispensary. They aren’t strong but helps with my pain, nausea and appetite.
Good luck and prayers.

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Is there anyone on here that was diagnosed with extensive small cell lung cancer, had chemo, and has had a good outcome?

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@joycegray1940

On Tabrecta over a year. I have something called mucinous adenocarcinoma. I understand it is rare & is slow growing. Have had pneumonia & bronchitis several times, so they did a biopsy & decided I have lung cancer. Tabrecta makes me swell - now on two pills of lasix but still have swelling. My creatine is up with the two pills.

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I have been on tabrecta too and because I have neuropathy I was in agony from the swelling taking Tabrecta and I had to go off after a week.

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@gallery123

I took Tabrecta and had some serious side effects from it , I have neuropathy and the swelling it caused almost stopped me from walking , I had to go off of it. I am on nothing now.

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On Tabrecta over a year. I have something called mucinous adenocarcinoma. I understand it is rare & is slow growing. Have had pneumonia & bronchitis several times, so they did a biopsy & decided I have lung cancer. Tabrecta makes me swell - now on two pills of lasix but still have swelling. My creatine is up with the two pills.

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@lls8000

Hello @mitchmurphy7, welcome to Mayo Connect. I'm glad that you've found us. I hope that you've held up ok over the past 3 months. The early days of this journey are not for the faint of heart. I'm a non-small cell adenocarcinoma patient (4 years).
What treatments have you been receiving, chemo, radiation? Is immunotherapy an option for you?

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I took Tabrecta and had some serious side effects from it , I have neuropathy and the swelling it caused almost stopped me from walking , I had to go off of it. I am on nothing now.

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@mitchmurphy7

Hi Dee, I was diagnosed with SCLC this past April. Would love to hear about your experience.

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Hello @mitchmurphy7, welcome to Mayo Connect. I'm glad that you've found us. I hope that you've held up ok over the past 3 months. The early days of this journey are not for the faint of heart. I'm a non-small cell adenocarcinoma patient (4 years).
What treatments have you been receiving, chemo, radiation? Is immunotherapy an option for you?

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@mustangdee64

Hello! My name is Dee. I was diagnosed with small cell December 2021. I know exactly what you are going through. There aren’t many of us. Such a rare lung cancer most attention is given to non small. Praying for successful treatment and recovery!

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Hi Dee, I was diagnosed with SCLC this past April. Would love to hear about your experience.

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Hi Dee, I was diagnosed this past April with small cell carcinoma. Would love to hear what has helped you.

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@sksnow

I was diagnosed SCLC in Nov 23. Ever since that day my life has been a whirlwind of tests, appointments, treatments, etc. So far I’ve had one round of chemo, second was delayed because of low blood counts. I’ve had 7 radiation treatments so far, 23 to go. So far so good 😊. My kids and my grandkids are my joy. And my hubby 😊

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Hello! My name is Dee. I was diagnosed with small cell December 2021. I know exactly what you are going through. There aren’t many of us. Such a rare lung cancer most attention is given to non small. Praying for successful treatment and recovery!

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@sksnow

What happened to the sclc group/chat? I was excited to find it but theres been no activity for years

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I didn’t know that there was one. It’s so rare maybe that’s why.

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