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Slowly waiting for Ureter cancer diagnosis. Is this normal?
Hello everyone! I've had two CTs and a Pyelogram that showed a dense mass in my left ureter. They suspect Transitional Cell Carcinoma and am waiting for a scope of my bladder and ureter to be done on May 19th. They first found it on February 16th in the ER due to me passing out at my son's house. So, I have been waiting a while now for the "official" diagnosis. Is this unusual to have to wait this long to get a biopsy done? Do they give you results right away? If not, how long do you have to wait for the results? Any help that you could give me would be great! It feels like I have been waiting forever for an answer!
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I had similar discovery about two years ago. It was determined to be slow grow cancer. Treated by lazer and periodic observation. A year later discovered again in kidney. Treated with Jelmyto chemo. Then discovered again in bladder. Treated with GemDoce Chemo. Nothing seems to move fast in the world of doctors care. The waiting and wondering plays he'll on your mind with worry. My advise is keep doing your research and read all you can find about treatment options to avoid any radical surgery. Ask questions. Be persistent. This is personal to you...it is just a 'job' to the doctors where you are just a name on a file. Pray. Keep us informed.
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3 ReactionsHello Pcondon! So sorry for all that you have been through in your cancer journey. Oh believe me, I already turned down exploratory surgery that the hospital I was diagnosed at was trying to schedule me for. I told them that I didn't even live in the area and was going home to see my doctor and go from there. My doctor called BS on the exploratory surgery and got me in with a urologist. The urologist is doing a scope of my bladder and ureter instead of the big surgery. My daughter is alive today because I ripped the ER doctor up one side and down the other when he tried to send my daughter home. She was 14 and had a blocked pancreatic duct from a gallbladder packed full of stones!! She nearly died from pancreatitis AFTER they went in and got the stone out of her duct. I question everything and if I know something is wrong, they better watch out! lol I think that everyone needs to be their best advocate. Like you said, it's personal to me, not to the doctor. I will definitely keep you posted. I'll be praying for you and appreciate your support! God bless and have a great day! 🙏🤗😁
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2 ReactionsI had the same problem waiting for my bladder cancer biopsy results. Was told it depends largy on the hospitals lab. Some get results in as little as one week, while others are a month or more.
There are both alternative treatments and alternative ways of test for cancer or recurrance.
I have had stage II muscle invasive bladder cancer and am now cancer free and doing my own version of maintenance which I also used heavily during my treatment.
You might want to look at taking 95% standardized curcumin wit black pepper extract to both help recovery and possibly inhibit reccurrance, I would reccomend 1000 mg doses posssibly more than once a day. It is know to reduce side effects of treatment.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6277549/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5840955/
Also "timed release" vitamin C is helpful for building the immune system.
There are now less invasive ways to check for reccurance than cystoscopy. You can now take a simple DNA blood test customized for your biopsy cancer DNA. I have taken the Signatera https://www.natera.com/ and just to make sure there was no false negative I also took the Galleri test, which also looks for many other types of cancer. I believe Natura is FDA approved while Galleri is not yet approved, But I think it will be.
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3 ReactionsHi donsunlover! Wow, that's great that you're cancer free and doing so well! I would hate to have to wait a month for my results and like a week much better. Me and my family are into alternative medicine and I really appreciate the tips you gave. I will look into your suggestions right away. Thank you!
Be aware, this alternative medicine, as you call it, is becomeing part of real medicine. It is happening all over the world. The way you can tell that is to see the trials and studies that are being done and what they prove, You can do this by using the internet and google works well.
In google enter "curcumin cancer" or "vitamin C cancer" or "immune system cancer" or anything you might wonder about. Even well informed doctors can't possibly know about all the research going on in every different direction all over the world. Only some of this research shows useful results. So I think the internet is most useful in providing leading edge data. You may have to make your own decisions as to what is good information. Only trust reliable sources.
Hope this is helpful.
My mom had breast cancer and never had surgery, chemo, or radiation. She had it for several years and it didn't grow any until just before she died last May from a massive stroke and heart attack at the same time. That didn't even kill her immediately and she was 81yrs old! She treated her cancer by taking natural supplements etc, alternative medicine as I call it, instead of mainstream medical treatments. She also relied on her faith as well. I plan on doing the same as my body is already racked with neuropathy, GI issues, etc. I really do appreciate your input and support. Thanks!