Anyone have skin lesions related to sarcoidosis? What helps?

Posted by vm2947 @vm2947, 1 day ago

i was diagnosed with sarcoidosis in 2001, i had big swollen lymph nodes throughtout my body, was given prednisone & like magic everything reduced & all seemed fine, about 10 years later the skin lesions started first on my head then on my face.
the worst ones are over my eye brows & my earlobes.
its embarrassing. ive tried cortizone creams & injections, they didn't work, my concern now is that its starting to expand & i cant stop it,
any thoughts on what i could try would be appreciated, thank you.

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Colleen Young, Connect Director | @colleenyoung | 1 day ago

@vm2947, I expanded the title of your discussion to reflect your diagnosis and your question. Welcome. I'm tagging members like @tammyak22 @marilynkay @ess77 @deffie @girlugo23 who have also posted about skin problems related to sarcoidosis so they can share their experiences.

VM, I can understand that you are concerned about the lesions spreading. According to Mayo Clinic, medications like medicines such as methotrexate (Trexall) and azathioprine (Azasan, Imuran) lessen inflammation by lowering the immune system's response to a trigger. Hydroxychloroquine (Plaquenil) may be helpful for skin lesions and high blood-calcium levels. Read more here: https://www.mayoclinic.org/diseases-conditions/sarcoidosis/diagnosis-treatment/drc-20350363

Have any of these medications been suggested for you?

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