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skin is extremely sensitive to touch. it. started after Covid

Posted by ginaschra @ginaschra, Mar 11 12:18am

My skin is extremely sensitive to touch. I’m miserable. Gabapentin prescribed Doesn’t seem to be working. My hands and arms are the worst. Legs and feet hurt but not as bad. Best way to describe it is when you were a kid and fell and scraped your skin on the concrete . This all started after my 2nd time getting Covid. Not sure if this is from Covid. I’ve seen a dermatologist, neurologist, and a rheumatologist. No answers. I’m so tired of the pain, it’s causing me to lose sleep because of the pain. I’ve put up with this for over a year now. Was grasping at straws to see if anyone else has these symptoms. 😢

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dlydailyhope | @dlydailyhope | Mar 11 7:28am

@ginaschra
Have you had a neurologist do a skin punch biopsy from thigh/ankle to check for small fiber neuropathy? Have you been tested for prediabetes or other viruses? Are you vitamin deficient?

Covid can affect your nervous system in many ways since it is a toxic and destructive spike protein. I started getting a sensitive scalp that would flare every now and then after Covid plus I had new breathing and heart/chest pain after the mRNA shot.

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ginaschra | @ginaschra | Mar 13 12:07am

No I have not had the skin punch biopsy. I go for my regular checkup and will ask my dr about this. I am no longer pre diabetic. I am vitamin d deficient. Thanks for reaching out. I’ll keep you posted.

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m | @mh10 | Mar 13 5:46am

Skin sensitivity, especially to touch, is something I've experienced as part of my long COVID recovery. It could be caused by nerve dysfunction or inflammation triggered by the virus, and it's also been linked to MCAS, where mast cells become overly active, releasing histamine and other chemicals. This can lead to a variety of skin issues, such as burning, itching, or heightened sensitivity. In many cases, it's a combination of nerve irritation and immune system dysregulation that causes the skin to become more sensitive, even with slight touches. I’m a little over two years in and it still is happening here and there. I believe it’s MCAS.

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1 reply
vostie | @vostie | Mar 13 10:53am

I also have a very heavy load of mast cells with heightened allergies including skin sensitivities. It does help to take a Zyrtec every day to block histamine H1 receptors and some also take a Pepcid to block the H2 receptor. I have not been able to find a doc who specializes in Mast Cell Activation to see if there are other steps I can take.

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1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | Mar 13 3:54pm
In reply to @vostie "I also have a very heavy load of mast cells with heightened allergies including skin sensitivities...." + (show)
@vostie

I also have a very heavy load of mast cells with heightened allergies including skin sensitivities. It does help to take a Zyrtec every day to block histamine H1 receptors and some also take a Pepcid to block the H2 receptor. I have not been able to find a doc who specializes in Mast Cell Activation to see if there are other steps I can take.

Jump to this post

@vostie I’m so sorry that you’re dealing With all the skin problems and Long Covid! I have a resource that you can use to, hopefully, find a doctor who knows MCAS.
NORD. National Organization for Rare Diseases. https://rarediseases.org/
GARD. Genetic and Rare Disease Organization. https://rarediseases.info.nih.gov/
Give them a call!

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vostie | @vostie | Mar 14 9:13am

Thanks Becky - I will check with them. Very nice of you!

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itsmeagain | @itsmeagain | Mar 16 3:49pm
In reply to @mh10 "Skin sensitivity, especially to touch, is something I've experienced as part of my long COVID recovery...." + (show)
@mh10

Skin sensitivity, especially to touch, is something I've experienced as part of my long COVID recovery. It could be caused by nerve dysfunction or inflammation triggered by the virus, and it's also been linked to MCAS, where mast cells become overly active, releasing histamine and other chemicals. This can lead to a variety of skin issues, such as burning, itching, or heightened sensitivity. In many cases, it's a combination of nerve irritation and immune system dysregulation that causes the skin to become more sensitive, even with slight touches. I’m a little over two years in and it still is happening here and there. I believe it’s MCAS.

Jump to this post

@itsmeagain
Yes I’ve had this extreme sensitivity for 4 years now. It’s constant and the slightest touch is terrible.
I’m pretty much bed bound and people getting me into bed or getting me dressed don’t always remember and I’m constantly having to remind them if my yelp doesn’t do it.
I’m going to have to address this with my neurologist. He just seems to want to stay on the Privigen ivig teatment and I think we need to try something else . Thanks

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