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Sjogrens and Lung issues
I have Sjogrens and I am having lung problems. Getting a CT scan tomorrow, I have questions about ILD… anyone here with Sjogrens and ILD?
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I have Sjogrens and I am having lung problems. Getting a CT scan tomorrow, I have questions about ILD… anyone here with Sjogrens and ILD?
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
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I also was just diagnosed with ILD. I have been tested twice for a variety of auto-immune diseases (including Sjorgrens) but results been negative. I am interested in information that you find. I am currently using oxygen when walking distances but don't need it in the house.
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1 ReactionI had the mouth biopsy for Sjögren where they take four glands send it off for testing. I tested positive. I now been diagnosed with Sjogrens. My ENT doctor did the biopsy. Just an fyi it’s been a month and I don’t feel my lip.
hydroxychloroquine (plaquinil) helped my sjogrens dryness symptoms a lot (I have mixed connective tissue disease). Best of luck.
I have Sjogren's and can answer questions about SFN and IvIg but not ILD. Best Wishes, also.
What do you use for your eyes?
Systane ultra: works well.
@artemis1886 I use Miebo it’s prescribed by my eye doctor. After using it for almost a year I love it because it’s an oily drop , but I just lost my Medicaid and my insurance isn’t wanting to approve it. It is expensive