Sjogrens and Lung issues

I also was just diagnosed with ILD. I have been tested twice for a variety of auto-immune diseases (including Sjorgrens) but results been negative. I am interested in information that you find. I am currently using oxygen when walking distances but don't need it in the house.

I had the mouth biopsy for Sjögren where they take four glands send it off for testing. I tested positive. I now been diagnosed with Sjogrens. My ENT doctor did the biopsy. Just an fyi it’s been a month and I don’t feel my lip.

hydroxychloroquine (plaquinil) helped my sjogrens dryness symptoms a lot (I have mixed connective tissue disease). Best of luck.

I have Sjogren's and can answer questions about SFN and IvIg but not ILD. Best Wishes, also.

What do you use for your eyes?

Systane ultra: works well.

@artemis1886 I use Miebo it’s prescribed by my eye doctor. After using it for almost a year I love it because it’s an oily drop , but I just lost my Medicaid and my insurance isn’t wanting to approve it. It is expensive

Google the manufacturer and see if they have discount plans. A lot of pharmaceutical companies have. Majjor discount plans. Two of mine covered 100%.

Autologous plasma eye drops are the only thing that have worked for me.

I have had Sjogrens for over 25 years. In 2017 I was diagnosed with (ILD) Lymphocytic Interstitial Pneumonitis (LIP) . I have visits with my pulmonologist every 6 months and have PFT'S and CT scans regularly. As of now, thankfully, my PFT tests are normal and my scans are stable. I have several cysts in my lungs as well as nodules that my doctor is watching. I am currently not on any medication for the LIP, but I do take hydroxychloriquine for the Sjogrens. In October of last year, I was diagnosed with Extranodal Marginal Zone Lymphoma which my doctor told me could be contributed to the Sjogrens. I had radiation treatments and now thankfully I'm in remission.