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Trying everything - Sick of feeling sick
Just had an upper scope done today for my forever annoying gut. Just as I feared, everything looked normal, they did take a couple biopsies, which wont be back right away.
Im just burnt out. After trying to figure out my gut and immune system for years…im heartbroken. 33, female, problems started around 19.
Ive been diagnosed with Slow transit constipation and pelvic floor disorder for a few years, but ive found no relief. Ive done everything, miralax, metamucil, benefiber, citracel, milk of magnesium, magnesium supplements, magnesium citrate, enema, suppositories, fish oil, probiotics, low fodmap diet, stretching, exercising, small meals, only liquids, linzess, amitiza, trulance, stimulants, sofers, am currently still working on pelvic floor therapy and biofeedback.
The only thing that helps is stimulants, mag citrate, and coffee paired with suppositories and enemas. And not all the time do these work.
I have constant constipation, i work at it every day, and i know that if i get rid of some, the process starts over.
Im having a hard time with finding no help. I just dont feel believed after i get a good test result.
I dont know what to do next. My mental health is suffering. I dont have steam, heart of an idea.
Feeling way too hopeless to be sober
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Yes I do but the surgeon said it to small. That it doesn’t need surgery
Hi, do I just ask the doctor to write that it’s to small to fix? Or get a copy of his report?
I’ve been either not eating or eating very small amounts. I get so sick to stomach..
Any ideas on what makes my guts to sore to wear anything tight or driving down a rough road it hurts my stomach.. I hv to walk softly so it doesn’t jar my insides.. very painful..
Suggestions or ideals??
Yes I do hv hernia. But the surgeon I was using said it’s to small to fix wright now ..
@acid2come The reason I asked about a hernia that sometimes with the fundoplication they will use mesh to repair the hernia. If they did a repair like the surgeon I had at the time.. the mesh can cause pain if incorrectly placed. The surgeon I had at the time placed the mesh on the fundus for the repair. I kept complaining of pain and the surgeon ignored me and dismissed me. The hernia again brought my stomach into my chest and caused difficulty breathing. I wen to a different surgeon that my gastroenterologist recommended. He ran more test and said I needed to go to the Mayo Clinic in FL (I live in GA). He said they are very good at fixing other doctors' mistakes. He was correct.
Thank you, I hvnt had the hernia fixed yet because the surgeon said it was to small… I wish that I lived closer to a Mayo Clinic… I wld go in a second… I’ve went to a new Gastroenterologist and really like him so far..
I will b having test next wk with him.. I hope I get some answers as to what’s going on with me…
@acid2come I advise everyone to keep notes on what their symptoms are… a diary. Notating what symptoms you are having what you ate or did before and during symptoms.. it can be very helpful. Also get copies of your medical records.. especially tests and procedures and read them. That way you can understand better what the doctors are telling you and you can up with questions of concerns you have. Take a notebook to your doctor visits with questions written down so you will not forget and if you can bring someone with you… two sets of ears are better than one… most of the time… but especially for me because some days my hearing is whacky or my mind is not right from lack of sleep. Make notes of the visit. Mayo has an app and they post the doctor's or NP's notes on there.
Best wishes for you upcoming appointments.
ZeeGee
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1 ReactionThank you. And im sorry youre having troubles. Getting diagnosed can be frustrating. It took about 13 years for 2 of mine.
1 Peter 5:7 casting all your anxieties on him, because he cares for you. From the Bible
Dear @ januaryjane – I understand your feelings of being burnt out. You are so young! My daughter- close to your age/ has been going through a similar ordeal- she ended up at home with us- it’s not easy. Her father is somewhat similar to yours. Her main illness is gone but other autoimmune problems popped up- so it is still a struggle. She is working now- I think this has helped her moving forward and dealing with her health problems. She doesn’t have enough income to move out, which is my goal for her. I’m also dealing with chronic illness that has drained all energy- even now after I was cured – autoimmune illness of course. I see a therapist once a week. Do you have opportunity and funds for that?
May I ask what kind of surgery you might have?
Are you able to live independently? Somewhere with convenient public transportation to get everywhere you need to go. Have you applied for Disability? Maybe talking to the Social Services office to find out what services you are entitled to. I know you are tired, but you are the best spokesperson for yourself. Same with me. I would sit here and rot if I didn’t force myself out there. Write down your goals and deal with one at a time.
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2 ReactionsDon’t give up.
I felt the same way after my doctor appointment at Mayo,like why can’t they fix me! Or even just do something to help with the never ending pain.
But then I realized I have to fight even harder to make the doctors understand how it is in my body.
And I will go on.
We have family and friends who wouldn’t want us to just give up.
Keep on fighting JanuaryJane we all care and pray that answers will come for you.
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