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Sibo treatment, long term success??
Anyone have success with SIBO treatment? Id love to hear what has worked for you. I'm struggling to find a doctor who understands and treatments that work long term, in the meantime Im loosing too much weight. Thank you in advance.
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@hallward same with my coverage and the GI dept suggested a nutritionist. The very few I have found in my area aren’t taking new clients.
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1 Reaction@hallward
I've been lucky to have a gastroenterologist who ordered tests (colonscopy, endoscopy w/biopsy, MRI defocography, SIBO breath test) and to have insurance that paid for them and also a course of Xifaxin (expensive drug). But, yeah, we're on our own. We're learning along with the doctors. I will say, though, that even since summer 2024, when everyone with SIBO was basically being diagnosed with "IBS," I've seen a big increase in information about SIBO on doctor/medical sites. But it will all be trial and error and essentially, self-doctoring. I've thought for a long time that what Western (or at least US) medical care is good at is diagnostic tests, but not really "care." But those diagnostic tests can be very informative and useful. And yes, do have a look at any supplements and medications you are taking that might be contributing to symptoms.
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3 Reactions@mbusch12 each and every time, no matter the Doctor, no matter the recommendation. What works for one may or may not for another as I can fully testify to and in some instances may make things worse.
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2 Reactions@dt61
Yea I can honestly say I’m learning after surgery that it definitely isn’t a a one size fits all with anything. So much trial and error. I have been fortunate also having so many Drs being very attentive and on top of my scenario. I have had the same family Dr for 48 years and she suddenly became sick and died. One of the best Drs in our city. She was like family. This makes it so tough working with different Drs especially with different approaches. One day at a time.
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3 Reactions@mbusch12
Hi. I really feel for you. I'm in a very similar situation, I have insomnia too. My dr said to stop this antibiotic, flagly, and ordered me xifaxian. The insurance company won't approve it without a 3 page PA, I dont know who is being unreasonable, but my dietician said insurance wont cover it if they diagnose it as sibo, has anyone else heard this? they need to say IBS-D, not sibo. I'm trying to communicate this to the office but they aren't listening.
Im afraid stopping this antibiotic before i finish the 10 days will encourage antibiotic resistance. Does anyone have and thoughts or experience with any of that? One thing I am very grateful for is this community!! It does bring me comfort knowing I'm not the only one struggling with this. I'm not ready to accept this is a chronic condition...this is a just for today condition ... thanks everybody. Hanging in here!!
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3 Reactions@eileene7
I’ve not had trouble with insurance refusing to cover xifaxin but now that I’m on Medicare Rx, I can’t afford it even with the co-pay. My doctor suggested I try the Canadian Discount Pharmacy in Belleview, FL. It’s easy - I scan and email my prescription - but is a little slow so I get a three month supply. Here’s the website: https://www.candisrx.com/
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5 ReactionsAnother good pharmacy that the Gastroenterologist nurse told me about is progressiverx.com. I think they're Canadian and they charged a lot less for the Xifaxin than my local pharmacy wanted. (My insurance wouldn't cover it either.)
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2 Reactions@eileene7
Originally they were going to put me on Flagyl but decided the Xifaxian which had been a struggle for me. What did the Flagyl do to you?