Has anyone been diagnosed with sibo even when your UC is in remission with Entyvio?
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Yes, I tested positive for CSID. I knew within 20 minutes of taking the test, that I would be positive due to my reaction. After years of gut problems with almost anything I ate, I have some clear answers. This is not an easy diagnosis as it requires continual monitoring of what you put into your body. I’ve been taking Sucraid with my meals for almost 2 years. There is a program that allows me to pay only $5 for a month’s supply. There is a CSID Cares website for dietary suggestions. I also have lactose intolerance to contend with.
Anyone else have CSID and lactose intolerance?
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I do. But what program do you have that lets you pay only $5 a month for Sucrade, please? They’re telling me $35 a month, which is ridiculous.
The $5 must just be the cost after getting run through my Prescription benefits. I know everyone’s insurance coverage is different though. I’d ask the supplier if there are any programs to get you down to the $5 a mo. Honestly, a month’s supply is more like 2 for me as I don’t need to take Sucraid with meals/snacks that don’t have sugar. I met with a dietitian through my GI doc’s office to come up with safe foods. Good luck.
Thanks so much! I have to call the manufacturer tomorrow anyway so I’ll plead my case. I’m retired and on a fixed income and $35 a month is ridiculous considering I won’t be using it more than once or twice a day. I found a new book by a SIBOette that has dos and don’t foods plus recipes that I’m following. I don’t have all the SIBO symptoms but breath doesn’t lie according to my gastro.
I appreciate your help so much – this is a most annoying thing to have but it could be worse!
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